how much does a tysabri infusion cost

No kidding. I have no idea how much a doctors visit or an MRI costs. I was shown a CRAB "price list" (it was stuck in between the pages of the info/CRAB comparison booklet i was given at the MS clinic) let's just say that but for universal health care, i don't think i would be able to begin the treatment i know i need.

Hi Miche- Welcome to the group :-) Tysabri is a Disease Modifying Drug (DMD). It is given to help slow, if not stop, the progression of MS. It is not geared towards relieving current symptoms. It is supposed to help prevent new symptoms from developing or current symptoms from worsening, but not making existing symptoms better. That's the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion.

From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.

They first told me that it was going to cost $400 a month to get the infusion (out of pocket...after insurance and up until I met my max out of pocket with my insurance). Well, that was a lot of money to me. The TOUCH people (who are supposedly there to help you) said that they could refer me to some programs to offer financial assistance. Well, those programs had already given all their money away and I didn't qualify for another of the programs.

My sister started Tysabri about 2 months ago, and she had some tingling in her foot (the foot that has foot drop). I've heard really good things about this drug--things like 60% effectiveness rate (compared to the 30% rate of the ABC drugs). She's complained, so far, of having a headache on the day of her infusion and then it goes away. I've not heard any other complaints. She's wanting me to go on it, but I was just diagnosed and haven't given Copaxone a fair shake.

Well, spoke with neuro on phone 2 days ago for over 1/2 hour, she saw me yesterday for about 1/2 hour before my Neuro-Opht. appt. Here is the "final" decision, not really final but a good 90% if everything goes well with insurance... I am going to be starting Tysabri. She is very encouraged with how well I did with the Solu-Medrol this time, that it is even a better indicator of how Tysabri would go. I will be on it for 1 year, then see what is next.

( . How long also does it take to notice the drug is working for you .

m assuming it was just some bug I got exposed to, that hit me much harder than it normally would have because of the Tysabri. Have had a little more zip the last few days, till early afternoon - then I crash and burn, lol. I have had some new stuff crop up the last couple of days......new tingling in my toes and my right flank and hip, numbness in the soles of my feet returning. Now since yesterday the pain in my feet is back, and the pain in my left hip is starting again.

I did start the Tysabri.....but I have been thinking a lot about this lately. It seems a lot of people with worse symptoms are on an ABC-R. Any input would be greatly appreciated.

This price is in line with the cost of the injectables. Gilenya is the big $$ winner with a cost of $60K a year. Keep us posted, Sarah.

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

Hi all, My TOUCH center DOES monthly CBC, CD4 counts and liver function tests as a routine part of the Tysabri infusion experience. We see mid level practioners (MS Nurse Practioners) or the MD on a rotating basis so every 3 months I see the MD. Tysabri can cause liver dysfunction so they feel the testing is necessary to catch any developing trends. the CD4 counts and CBC they use to track treatment effectiveness.

I know a few people here that are on it so any feed back will be great I am nervous about it because of the PML but because I havent been treated with steroids in the past that I dont think I have to much to worry about, I am nervous about the IV I am a very hard stick to begin with usually multiple misses before they get a vein even for a blood draw has anyone had a port a cath put in for their infusions? if so how was the procedure and how are the infusion?

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

I think my cost will be 15% so it makes a big difference to me what the overall cost will be. Thanks so much for reading this. Good luck to everyone!

However, I have started to notice a couple of issues. The first is that around a week after infusion I develop big hives if I sit in the sun (not such a problem in the UK since it's rarely sunny!) They're really large itchy hives & they disappear as soon as I go indoors. It's literally only started since my 6th infusion. The other issue is I've noticed my legs feel strange first thing in the morning and last thing at night.

I had my 18th or so tysabri infusion on tuesday. This medication has been a godsend to me and I haven't had a relapse since starting it(knock on wood). I have also adjusted to my new normal and am a lot more comfortable with everything. It has been a long hard road for sure. I hope the Tysabri works wonders for you as well. The first couple of infusions made me exhausted for a week or two but that does pass.

Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.

My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.

Sorry you are having to deal with feeling crappy. Hopefully it is something else, and not really the Tysabri. Has this happened every time you have had an infusion? You mentioned you were on antibiotics - if you've been sick or had an infection of some sort, that could definitely be a big part of how you are feeling. I know the longer I'm on Tysabri, it seems I get sick easier - and when I do, it hits harder and lasts longer than it used to.

How much does a tysabri infusion cost

Common Questions and Answers about How much does a tysabri infusion cost

tysabri