Prednisone in myasthenia gravis

Common Questions and Answers about Prednisone in myasthenia gravis

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My 80 year mother has myathenia <span style = 'background-color: #dae8f4'>gravis</span> and got shingles 11/2 years ago. She is in constant pain and has not left the house in all that time except for a couple Doc. appointments. She can not wears a shirt because even that is too painful. Fears all medications for the shingles because she is afraid it might affect the medications she is on for the MG. Her last Doctors appointment they told her she may have shingles for the rest of her life.
Hi, How are you feeling now? <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> can occur in all age groups, but it is common in women in their twenties and thirties and men in their fifties and sixties. The most important features are weakness and fatigability of muscles. The weakness increases during repeated use and may improve following sleep or rest. The cranial muscles, particularly the lids and the extra ocular muscles, are often involved early, and diplopia and ptosis are common initial complaints.
I can sort of answer your first question. Mycophenolate mofetil (MMF) or Cellcept has been extensively researched for its use in <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span>. Also, it carries a FDA black box warning that it may increase your chances of infection, lymphoma and congenital malformations (for pregnant women). Also, its optimal dose is yet undecided. Pyridostigmine (Mestinon) is the usual first line treatment for MG.
Hi, IVIG are intravenous immunoglobulins. In <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> they act by diluting the host antibodies and in larger doses they suppress the production of autoantibodies. Since the level of antibodies is reduced it is possible that IVIG may have influenced the results of EMG examination. Since you are feeling better with mestinon it indicates that you are a myasthenic patient. You can repeat the test after two months just to make sure. Take care!
I don't know what it is, but I know it's not all in my head. I have heard of <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span>, have you tested me for this? If not, I'd like to be tested." Oftentimes people with MG first notice the weakness in their eye (ptosis) while they may have weakness in other areas it's not as obvious as when your eyelid droops so low it affects your vision. Feel free to 'pick my brain' but for now I am going to rest. Good luck to you both and hope you find a dx for your symptoms soon.
Oh Girl, it is good to hear from you!!! I have been worried sick about you. I don't know anyone personally who has this but I pulled this from NIND site for you. "myasthenia gravis is a chronic autoimmune neuromuscular disease characterized by varying degrees of weakness of the skeletal (voluntary) muscles of the body. The name myasthenia gravis, which is Latin and Greek in origin, literally means "grave muscle weakness.
In trying to achieve a therapeutic dosage of medications to control symptoms of <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span>, should a certain level of mestinon be tried before adding prednisone? Which drug has the most undesirable side effects in long term use? Does the Cleveland Clinic in Fort Lauderdale have any neurologists who are knowledgable about myasthenia gravis. I will appreciate any response to my posting.
It's been 3 long long years! Im currently taking Prednisone , Mestinon, Cellcept. Dr prescribes occasional narcotic painkillers but keeps stopping them out of heath concerns... leaves me in a pretty frustrating situation.. help please!
Posted By CCF Neuro MD on July 07, 1997 at 20:37:24: In Reply to: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> posted by D GRAY on June 28, 1997 at 18:41:24: I AM A 44 YR OLD FEMALE, M.G. PATIENT, THYMECTOMY MAR.7/97 CURRENTLY ON 30 MG PREDNISONE, E.O.D, DOWN FROM 80/80 , 'WEANED' FROM MESTINON YESTERDAY AND PROUD TO SAY, PROGRESSING VERY WELL. I WAS DIAGNOSED MAY/96 WITH FINAL RESULTS OF TENSILON TEST FROM UNIVERSITY OF BRITISH COLUMBIA, OCT.96. AS I BEGAN EXPERIENCING T.I.A.
Posted By ccfNeuro MD on June 19, 1997 at 16:21:40: In Reply to: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> posted by Lyn on June 10, 1997 at 12:51:37: : In trying to achieve a therapeutic dosage of medications to control symptoms of myasthenia gravis, should a certain level of mestinon be tried before adding prednisone? Which drug has the most undesirable side effects in long term use? Does the Cleveland Clinic in Fort Lauderdale have any neurologists who are knowledgable about myasthenia gravis.
Posted By Lyn on June 20, 1997 at 03:43:20: In Reply to: Re: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> posted by ccfNeuro MD on June 19, 1997 at 16:21:40: In trying to achieve a therapeutic dosage of medications to control symptoms of myasthenia gravis, should a certain level of mestinon be tried before adding prednisone? Which drug has the most undesirable side effects in long term use? Does the Cleveland Clinic in Fort Lauderdale have any neurologists who are knowledgable about myasthenia gravis.
See how you do with surgery - but unless you're doing quite well now, it may be best to pretreat you in some way. It sounds like your off Steroids now and have reacted poorly in the past. If you have had bad reactions to steroids, you might want to ask your doctor about a course of Plasma Exchange or about infusions with Intravenous Gammaglobulin for a course before surgery.
Re: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> AND PAIN [ Follow Ups ] [ Post Followup ] [ The Neurology Forum ] [ FAQ ] Posted by ccf neuro M.D. on June 01, 1997 at 15:28:25: In Reply to: myasthenia gravis AND PAIN posted by JOSEPH F SZELL on May 26, 1997 at 18:43:00: : BLOOD WORK AND ALL SYMPTOMS POINT TO MG WITH THE EXCEPTION OF SEVERE PAIN IN NECK AND HIPS, REGULARLY REQUIRING A TRIP TO THE EMERGENCY ROOM. TREATMENT THERE IS TORIDOL, MORPHINE AND KENALOG AND PREDNISONE.
<span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> and surgery posted by Jennie on October 09, 1998 at 16:13:10: Hi! I was diagnosed with MG over 2 years ago, and I have had a thymectomy and been on prednisone. I have also had many svere crises, but at the moment I am doing well. I am only on mestinon 60mgs 3x a day. I am having hand surgery, and it will be done with a general. The neuro is thinking about doing a course of prednisone before surgery, but previous experiences with prednsione has been horrific.
Posted By Jennie on October 09, 1998 at 17:50:01: In Reply to: Re: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> and surgery posted by CCF Neuro MD MJD on October 09, 1998 at 16:40:27: Hi! I was diagnosed with MG over 2 years ago, and I have had a thymectomy and been on prednisone. I have also had many svere crises, but at the moment I am doing well. I am only on mestinon 60mgs 3x a day. I am having hand surgery, and it will be done with a general.
Posted By k on October 10, 1998 at 17:09:47: In Reply to: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> and surgery posted by Jennie on October 09, 1998 at 17:50:01: : Hi! : I was diagnosed with MG over 2 years ago, and I have had a thymectomy and been on prednisone. I have also had many svere crises, but at the moment I am doing well. I am only on mestinon 60mgs 3x a day. I am having hand surgery, and it will be done with a general.
Posted By k on October 10, 1998 at 17:11:58: In Reply to: Re: <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> and surgery posted by k on October 10, 1998 at 17:09:47: : : Hi! : : I was diagnosed with MG over 2 years ago, and I have had a thymectomy and been on prednisone. I have also had many svere crises, but at the moment I am doing well. I am only on mestinon 60mgs 3x a day. I am having hand surgery, and it will be done with a general.
Posted By Tess on October 16, 1997 at 23:38:27: In Reply to: Guillain-Barre & myasthenia gravis posted by B. Sheridan on September 30, 1997 at 17:59:44: : During recent research on the Guillain-Barre syndrome, I have found conflicting information concerning the recovery potential. Some research shows that 90-95% of patients fully recover...others say that only 50% may fully recover. QUESTION: Do you have any reliable information on the recovery potential for GBS patients?
are worried for my health. I have heard some scary things about these drugs, prednisone in particular. Please is there anything that can stop the Moon face & would I benefit from taking a dieretic too?? P.s I have had an eye twitch every day for the last 3 dys in my left eye, lasting for approx 20secs & about every 10 mins? Could this b another side effect & should I worry about it as it is annoying & starting to get sore?
The first noticeable symptom is weakness of the eye muscles. A delay in diagnosis of one or two years is not unusual in cases of <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span>. Edrophonium test could be performed to confirm the diagnosis. Self medication is harmful.
https://health.google.com/health/ref/<span style = 'background-color: #dae8f4'>myasthenia</span>+<span style = 'background-color: #dae8f4'>gravis</span>#Tests+%26+diagnosis While no one test will be able to completely say you have the disease or not, I would hate to be taking those drugs for no good reason. It seems a positive antibody test would need to be seen before taking Prednisone. From my readings, VDD is very common among groups of people with other aliments. For extreme examples, those in a nursing home or confined to bed rest often are VDD.
I am not overweight and will be 64 in January. I was taking the Prednisone for <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span>. What can I do to reverse this condition?
My wife has severe allergies, asthma, and <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span>. She has never had an MG crisis but is on prednisone, prograf and mestinon. She is on several medications for the allergies and asthma. Her allergist has been trying to get her to a lower level or off prednisone but when the prednisone level gets below 10 her allergies and asthma increase, then the prednisone is increased and the cycle starts over again. The allergist ordered a CT scan and found the thymus large for her 61 years of age.
Just want to know if anybody out there has had a similar experience. My husband is 34. He was diagnosed with <span style = 'background-color: #dae8f4'>myasthenia</span> <span style = 'background-color: #dae8f4'>gravis</span> when he was 14.He had a thymoctomy shortly after diagnosis.He has taken mestinon,imuran,and prednisone. He also had a plasma pheriese in 1997. Symptoms got better he has been on prednisone therapy ever since.In 2004 he fell and ruptured C- 5-6 and had a slap tear of the glenoid labrum in right shoulder. Did mri and found disc ruptured and pushing on nerve.
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