Narcolepsy fact sheet

Common Questions and Answers about Narcolepsy fact sheet


Surprised he didn't go one higher if you said it was not working. However, you said it made you sleepy (which can be an indication of an overdose). The fact it made you sleepy is a pretty good sign you could have ADD as that amount would wire most people. What surprises me the most was that he only tried it once. Standard is to start low and keep going until something happens. How did the 18mg effect you?
Especially when I'm trying to hold it still (ie like lifting up a glass to take a drink), my head will just jerk and twitch for a second until I relax (usually I give up and just put the glass down). Also I have found that a lot of symptoms for chiari and narcolepsy are the same. Tired all the time, can't remember anything, have trouble concentrating, have trouble getting the words from my brain to my lips etc...
As a consequence, I was never given any rehabilitation and it is only now (9 years later) that I'm embarking on rehabilitation for my problems. I'm also not happy with the fact that I have had to insist to my family doctor for an MRI. Such a scan should be granted to any brain injury survivor suffering long term problems, if not to aid treatment then for nothing more than to document the full extent of the injury, eliminate any other possibilities for problems and for assurance.
This has been going on every night for the 10 years we've been together. She's under the sheet and blanket saying she's freezing and I have hardly any of the sheet on me. She can't gain weight... 5'11/115lbs, no hair loss, temp set to 71-73 depending on the time of year, best we know everything else is fine with her.
My sleep doctor's philosphy is that in these types of nondefinitive cases she wants to see any other sleep disorders therapeutically treated with consistent sufficient quality sleep nightly to see how many syptoms resolve before saying it is narcolepsy. Some doctors go with cataplexy = narcolepsy. At any rate, I just want to encourage you to begin the process of being evaluated. Restful sleep is so important.
In addition to the sleepiness of REM sleep, narcolepsy is characterized by episodes of sleep paralysis in which the person awakens from sleep unable to move. Sleep paralysis lasts a few minutes and resolves spontaneously. Rarely, this occurs in normal individuals.
I'm not even sure if the antibiotics I took would even kill Lyme bacteria, who knows. I know what I should do but giving the fact that I seriously cannot afford an LLMD and regular Drs are clueless about the treatment, even if I did test positive through IGenex, I think I will take control of my own situation. I think I will order my own CD57 as a guide as to where I stand now and during treatment.
Lets just say this, I had this when I was 16 years old and I went running and sobbing to my mother and could not sleep for the rest of the night. In fact, I remained terrified of my bedroom for about a week afterward (even though I didn't let anyone know this). Even remembering this dream in order to retell it still somewhat creeps me out... Now, one my friends (who I had never told about this nightmare) had an EXTREMELY similar one, which I found out about today.
My annoyance was compounded by the fact that the drug sample that he gave me, savella, is a SNRI which, as I did know, were a class of drugs used to treat depression. I knew I wasn't depressed and had had bad experiences before with being prescribed them based on past misdiagnoses of depression as the etiology of my pain. however, I gave the new doctor the benefit of the doubt and tried the savella and my pain vanished almost immediately.
which might have weakened my immune system enough to let other things in. In fact I know my immune system is in a terrible shape because I suddenly woke up with a tooth ache last week, went to the dentist who found 2 of my teeth had become infected! Hanging in there...
My hands and feet are almost always cold (in fact, they are right now), and I fall in and out of relatively mild depression. I have been told that carrying the thalassemia trait has no obvious symptoms, but I've been poking around forums a little bit, and the symtoms I experience seem to be fairly common. I'm still looking for ways to lessen the intensity of these symptoms, but for me I've found that maintaining physical activity helps, as well as not oversleeping, or overeating.
There is a good article in Women's Health this month in regards to Chronic pain and the fact that sometimes the nerve does not "shut off" long after the injury has healed. At least this would account for the fact that nothing shows on MRI's, X-Rays, CAT scans, Bone Scans etc., etc.. The hope was that the nerve blocks that I had would work "like shutting down and restarting your computer". One worked for 4 days, the next one 2 (they won't repeat them).
MedHelp Health Answers