Narcolepsy fact sheet

Common Questions and Answers about Narcolepsy fact sheet


Avatar f tn I started Lyrica 75mg today and now I can't take Xyrem tonight as they don't play well together. I take Xyrem for narcolepsy. I'm hoping the sleepiness I have had all day will get me through the night or I won't be able to stay on this stuff.
620923 tn?1452919248 Especially when I'm trying to hold it still (ie like lifting up a glass to take a drink), my head will just jerk and twitch for a second until I relax (usually I give up and just put the glass down). Also I have found that a lot of symptoms for chiari and narcolepsy are the same. Tired all the time, can't remember anything, have trouble concentrating, have trouble getting the words from my brain to my lips etc...
Avatar f tn Surprised he didn't go one higher if you said it was not working. However, you said it made you sleepy (which can be an indication of an overdose). The fact it made you sleepy is a pretty good sign you could have ADD as that amount would wire most people. What surprises me the most was that he only tried it once. Standard is to start low and keep going until something happens. How did the 18mg effect you?
998545 tn?1249850830 As a consequence, I was never given any rehabilitation and it is only now (9 years later) that I'm embarking on rehabilitation for my problems. I'm also not happy with the fact that I have had to insist to my family doctor for an MRI. Such a scan should be granted to any brain injury survivor suffering long term problems, if not to aid treatment then for nothing more than to document the full extent of the injury, eliminate any other possibilities for problems and for assurance.
Avatar n tn This has been going on every night for the 10 years we've been together. She's under the sheet and blanket saying she's freezing and I have hardly any of the sheet on me. She can't gain weight... 5'11/115lbs, no hair loss, temp set to 71-73 depending on the time of year, best we know everything else is fine with her.
Avatar f tn My sleep doctor's philosphy is that in these types of nondefinitive cases she wants to see any other sleep disorders therapeutically treated with consistent sufficient quality sleep nightly to see how many syptoms resolve before saying it is narcolepsy. Some doctors go with cataplexy = narcolepsy. At any rate, I just want to encourage you to begin the process of being evaluated. Restful sleep is so important.
Avatar n tn In addition to the sleepiness of REM sleep, narcolepsy is characterized by episodes of sleep paralysis in which the person awakens from sleep unable to move. Sleep paralysis lasts a few minutes and resolves spontaneously. Rarely, this occurs in normal individuals.
4451049 tn?1387157037 I'm not even sure if the antibiotics I took would even kill Lyme bacteria, who knows. I know what I should do but giving the fact that I seriously cannot afford an LLMD and regular Drs are clueless about the treatment, even if I did test positive through IGenex, I think I will take control of my own situation. I think I will order my own CD57 as a guide as to where I stand now and during treatment.
Avatar n tn Lets just say this, I had this when I was 16 years old and I went running and sobbing to my mother and could not sleep for the rest of the night. In fact, I remained terrified of my bedroom for about a week afterward (even though I didn't let anyone know this). Even remembering this dream in order to retell it still somewhat creeps me out... Now, one my friends (who I had never told about this nightmare) had an EXTREMELY similar one, which I found out about today.
Avatar m tn Performing this action more than this does not help, in fact it can hurt. I saw a huge improvement after 3 day. 2) I started allergy shots. I was having problems with seasonal allergies that resulted in sinus drainage. This has helped a little. 3) I use a steroid nose spray before bedtime during the times of the year when pollens are at their worst and I experience significant sinus drainage. This too has helped some. All of my hearing and inner ear testing came back as normal.
Avatar f tn Well as far as my files, this is my feeling. He has this woman who works at the front desk who in my opinion, is a snake in the grass. Had I been around the block a few more times I would have not fallen for his sales pitch nor their total unethical billing, not to mention file tampering. I admit, in the beginning I went in there wanting to hear how he could fix all my problems and he basically gave me a response I wanted to hear.
Avatar m tn The disposal was broken when we moved in and it had flies coming out, they are still around even today (and it's broken again). The bathroom has the flies, in fact, there are several dead in the tub. I spray the tub down with bleach/water after getting out and noticed when I spray the faucet part some of it turns black (black mold?). Could this be a bot fly? What do I need to do to get rid of it.
975514 tn?1325001538 My annoyance was compounded by the fact that the drug sample that he gave me, savella, is a SNRI which, as I did know, were a class of drugs used to treat depression. I knew I wasn't depressed and had had bad experiences before with being prescribed them based on past misdiagnoses of depression as the etiology of my pain. however, I gave the new doctor the benefit of the doubt and tried the savella and my pain vanished almost immediately.
Avatar n tn which might have weakened my immune system enough to let other things in. In fact I know my immune system is in a terrible shape because I suddenly woke up with a tooth ache last week, went to the dentist who found 2 of my teeth had become infected! Hanging in there...
Avatar n tn However I fight this diagnosis ( though they may be right I find it hard to accept) I been to shrinks who points to meds. Matter of fact every doc I saw wrote me at least 2 scripts. Nothing works. The xanax mentioned earlier is a great band aid for when panic sets in. My cocktail was a xanax and 2 motrin, that always levelled my playing field. I have always believed that my anxiety is from my symptoms not anxiety causing the symptoms.
Avatar n tn I do not know if I should feel comforted or concerned by the fact that so many people posting here have similar symptoms. The fact that, despite extensive testing, there does not appear to be any consistent cause or diagnosis is of great concern. I live in a major metropolitan area and therefore have not had a vehicle for the past ten years. If I need a car, I borrow one or rent one.
Avatar n tn My hands and feet are almost always cold (in fact, they are right now), and I fall in and out of relatively mild depression. I have been told that carrying the thalassemia trait has no obvious symptoms, but I've been poking around forums a little bit, and the symtoms I experience seem to be fairly common. I'm still looking for ways to lessen the intensity of these symptoms, but for me I've found that maintaining physical activity helps, as well as not oversleeping, or overeating.
Avatar n tn There is a good article in Women's Health this month in regards to Chronic pain and the fact that sometimes the nerve does not "shut off" long after the injury has healed. At least this would account for the fact that nothing shows on MRI's, X-Rays, CAT scans, Bone Scans etc., etc.. The hope was that the nerve blocks that I had would work "like shutting down and restarting your computer". One worked for 4 days, the next one 2 (they won't repeat them).