So far, he has diagnosed me with Fibromyalgia, Peripheral Neuropathy, Mild spinal stenosis, and idiopathic chronic pain syndrome. Every medication we have tried starts out helping and within weeks stops working. He says I am building up "tolerances" to the meds really fast and he cannot explain it. I am so very tired of the pain, numbness, burning, cramping, et al. Any ideas? Since October I have tried Lortab (3 strengths), gabapentin, Lyrica, Ultram, Relafen, Zonegran, and Trileptal.
I too took Tegretol and gained weight (35 lbs in 3 wks). I thought I would never lose it but after my body became used to the drug, this took about 6 months, I was able to lose the weight quit quickly with an easy walking plan. It only took about about a month. In the end it was the only medication that would stop 4 of my 11 seizures so in my opinion --the wait was worth it.
He is now able to start learning, and he came off of all medication except for 75 mg of zonegran. He was on 1400mg a day. It has made a huge difference. Hope this helps.
Dilantin was toxic to me in even small doses...it made me so sick. That was the first medication I ever tried and it didn't really help so my nuerologist kept increasing my dose despite what I was telling him. Then he put me on Tegretol which caused me to have major balance issues and night paralysis, every night, several times a night...very disturbing.
t think of them at this time)
I am now being treated with Zonegran, Depakote. The Zonegran was working for a little while but I have seemed to reach a plateau. I have not been migraine free at all since November, but there have been times where my migraines have been less painful. I work for a health insurance company and I am on the computer for 8 hours a day. I have been unalbe to work a full time scheule for the past 3 months due to my migraines.
They were not sure if it was meningitis or epilepsy but the doctors said it had to be considered and treated as epilepsy due to having multiple seizures. I was eventually placed on Zonegran(200mg) daily and only took the medicine for about 4 months. I stopped cold turkey after that and havent taken it since. Do you think i actually have epilepsy and can anything still happen after being off of it for 4 years now?
seizures still are not controlled and she goes through cyles of increased seizures and memory loss and headaches and seizures seem to be getting more frequent and the keppra is terrible...and now they want to try lamitra or zonegran...every mediceine is so disruptive to her and do not control the seizures..and each change of pattern of her seizures gets more violent and i just don't know anymore ...
after MRI,CT SCAN,EEG a neurologist told us it might be infantile spasm but she still not sure. because my son does not have some of the infantile spasm symptom as she said. she put him on medication ZONEGRAN THEN TOPAMAX THEN DEPAKOTE none of them helped. PLEASE tell me whatever you know about this. what should i do? I'm going crazy.
THANK YOU!!
I do not know who to go see about the aura, I had my eyes checked when the doctors were thought I had MS and I have 20-20 vision and no floaters. I presently see a neurologist who has me on zonegran 2oo mg and flexoril 3 times a day and Diflucan as needed and Maxalt. When the headaches get out of control she puts me on prednisone. I also see a physical therapist at her office weekly for the headaches. I have had trigger point injections ( did not help).
My son had his first seizure in Dec 07. He is 7 years old. He had a grand mal seizure in the morning while he was sleeping. He had another at the ER in which he would just turn blue and his oxygen would drop. They started him on Tripletal, but after about 4 days he wasn't doing good at all. He had another seizure where he would just lose bladder control and be out of it. We went back to the ER and they went from 100mg of Trileptal to 350mg in one dose.
we took eeg which reported an abnormal sleep eeg record S/o localisation related epilepsy from left fronto central region. since then he was under medication for epilepsy starting from a dose of 100mg of carbamezine tablet which was raised to 250 mg in due course of 2 yrs. epilepsy recurred 3 to four times during the course in b/w 6 months duration and each episode lasted only for 2minutes with a slight eye and facial deviations to right.
I am 31 year old healthy female. I work part time and have 2 small children. On Sept. 17 of 2012 around mid-morning when I began to have vision problems that included spots in my eyes and almost like a shadow fell over my left eye. I thought perhaps I was going to get a migraine since I had heard people describe them that way. The vision probs lasted about 45 minutes and when it went away a headache set in. It was what I would call a mild to moderate headache. Ever since I have a headache.
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