Tysabri side effects skin
Common Questions and Answers about Tysabri side effects skin
tysabri
Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.
Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse.
Is this a relapse? Side effects? Something I'm stuck with now?
Any thoughts would be helpful!
Looking forward to reading more!
Hi All,
I have a question that is mostly about Copaxone. I have been on it for 7 weeks. I am feeling better overall, but have a localized reaction EVERYTIME I take a shot. Initially and for a couple of hours I have severe pain, as if I am injecting acid into my skin. Then, I develop a reddend area about 6-8" x 4-6", with a painful lump that is always about the size of a lemon. It takes 5 or 6 days for the are to completely fade and then there is often brusing.
the new drug is called Lemtrada but it does have serious "possible" side effects involving the thyroid, skin and breast cancer.
There are some hot debates on it, my neuro says you take it for 5 days the first year (in a row) and then the 2nd year you take 3 infusions and then you don't have to take any more. The possible side effects are bothering me, but then PML was quite the threat also!
I'd read up on it before you consider it.
ve only been on it for a little over 3 weeks, but I can tell you that so far it is something that I truly feel I have added to my routine without any unmanageable side effects. I take my shot at night, and any visible effects of the injection are gone by the time I wake up the next morning. The autoject device makes it very easy.
I have no experience with Tysabri, so I can't comment on it.
Whichever DMD you decide to go with, I hope you'll stick around to let us know how you do.
Hi AG - Welcome to the group.
I received 20 Tysabri infusions. I didn't have any side effects at all. Unfortunately it stopped working so I switched to RItuxan.
I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.
I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.
m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.
I am back, a little more then a year after my post. I had another MS attack around July '09 and I have since switched to Tysabri. With tysabri, all of my symptoms, (tingling, numbness, and pain) are all but gone. For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.
If you would forget to take pills, for example, you need to be on an injectible. Consider the common side effects and which ones you can most readily live with. You may not even suffer the side effects, but you need to be prepared for them.
I’m sorry you hadn’t had a response for 20 hours … ask questions anytime!
Sarah what is going on with the tysabri side effects? I forgot if you mentioned how many infusions you have had already I go for my 2nd in 2 weeks and I hope it goes like the first one with no problems . I hope you feel better soon and i wonder what the neuro will say and what treatment he will try if he doesnt want you on tysabri anymore.
No two people have the same experience. Our bodies are all different. All you can do is give it a try. Have the side effects in mind but know that you will probably not get most of them. By law they have to list them. Some people do not like infusions. I like infusions. I had a situation for cancer when I could take pills instead of infusions. I had to take 16 large pills a day. I was so glad to get back on infusions.
It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely.
So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.
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