tysabri side effects 2010

Worth nothing is that the flu-like side effects of Avonex often are less troubling after the first few weeks or months, but I've never seen anyone suggest that the mood-related side effects dissipate.

Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.

Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!

Did you have a discussion of all the DMDs and their side effects? MY understanding was that tysabri is used when the injectables are not doing their job. Just a thought - and best of luck to you. I hope you are feeling well.

Some would work for awhile and then stop and some the side effects were horrendous. You do not have to suffer. My first Neurologists did nothing about symptoms they were more interested in progression. It was another Doctor who led me to the pain specialist. I hope you get some relief. I got my life back and I ride horses and train service dogs and do a lot of walking. all this was too hard a few years ago.

Hi AG - Welcome to the group. I received 20 Tysabri infusions. I didn't have any side effects at all. Unfortunately it stopped working so I switched to RItuxan.

I recently was DX in May 2010 with RRMS and I was given Avonex for treatment; which I stopped using in Dec because I just had panic attacks each time I gave myself the shots even though they don't hurt and I was okay with the side effects. I just grew a fear of the needles after a while until I couldn't do them. I see they now have a pill approved and wanted to know if anyone is using it yet? Can I request this treatment? How much is the cost after insurance so far?

So today my Celexa dose was upped from half a pill to 1 whole pill and the side effects are coming back like when I first started... Sweaty, can't sleep, headache, stiff neck, clenching teeth... Etc. I don't know what to do. I tried taking stuff for it, including an Oxy but still no change. What can I take to make these side effects not so bad? I don't see the dr till Thursday, so I can't ask her... If anyone has any suggestions?

I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.

m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.

s a side effect of the Tysabri could be possible, there are other MSers talking about hives as well as other side effects, below are some i found on a google search... http://multiplesclerosis.net/?s=Tysabri+&submit=Go www.tysabri.com/about/side-effects http://www.nationalmssociety.org/Treating-MS/Medications/Tysabri-%C2%AE Hopefully someone who's on Tysabri will chine in... Cheers.....

Glad to hear that things are going so well for you with the Tysabri, and that you are even noticing improvements! It hasn't always been an easy ride for me, but overall, Tysabri has definitely been a good thing. It certainly slowed down the parade of symptoms I was having before I started it. I go for #45 in a couple of weeks. I can't remember - were you negative for the JC virus?

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

If you would forget to take pills, for example, you need to be on an injectible. Consider the common side effects and which ones you can most readily live with. You may not even suffer the side effects, but you need to be prepared for them. I’m sorry you hadn’t had a response for 20 hours … ask questions anytime!

( I am not thrilled w Tysabri at this point. Was doing really well on it, from Jan 2010 until the summer when I lost my voice for 3 months. Tysabri was D/C then per Neuro. In case that was a side effect. I went back on Tysabri in Dec. My voice is still an issue. Neuro doesn't know still if side effect, and is leaving it up to me if I want to stay on. She would like me to stay on it, as there is no other alternative for me at the moment.

Hi Candy! I've been on Tysabri for almost 2 years now and I am really happy with it. I was afraid of the possible side effects too, but so far I haven't had any. I make sure I get tested for JCV regularly and feel like it really helps me. I haven't had a serious relapse since I've been on it and I've been through enough stressful situations that it could have easily brought one on.

Sarah what is going on with the tysabri side effects? I forgot if you mentioned how many infusions you have had already I go for my 2nd in 2 weeks and I hope it goes like the first one with no problems . I hope you feel better soon and i wonder what the neuro will say and what treatment he will try if he doesnt want you on tysabri anymore.

No two people have the same experience. Our bodies are all different. All you can do is give it a try. Have the side effects in mind but know that you will probably not get most of them. By law they have to list them. Some people do not like infusions. I like infusions. I had a situation for cancer when I could take pills instead of infusions. I had to take 16 large pills a day. I was so glad to get back on infusions.

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

Do the new drugs come with their own side effects besides the ones that soc come with? Not sure if I asked that right, I'm still waiting for everything to come together but if the new meds come with even worse side effects than one might already get maybe that's another reason to treat now.

Tysabri side effects 2010

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