Tysabri and pregnancy

Common Questions and Answers about Tysabri and pregnancy

tysabri

Avatar m tn of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?
Avatar f tn side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.
Avatar m tn I have MS and Neuropathy. I am currently on Tysabri. Previously I was on Betaseron and IVIG. When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.
1475492 tn?1332884167 You would not be on two DMDs at the same time, especially not with Tysabri. Previous DMD use has to be stopped and there is a washout period of at least 30 days before you can begin Tysabri. If the neurologist doesn't require a washout period, get out of there and go to someone who knows what they are doing. If you choose to go off of Tysabri, there is going to be another washout period. The recommended length for Tysabri to gilenya, is about 4 months.
198419 tn?1360242356 s while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!
Avatar f tn Found out yesterday that I have to take 50,000 units of vitamin d to bring that number up. And I'm starting Tysabri. Really don't know what to expect. I would appreciate, anyone who has been on Tysabri, let me know what to expect while on it????
1458012 tn?1285582530 Due to 3 new lesions since the start of my Copaxone in September 09 and a failed 6 month attempt at Rebif my neurologist wants me to consider Tysabri. Yes PML is a concern but a very small one....my concerns with Tysabri are the other side effects like joint pain, increased depression, and weakened immune system. I work in healthcare in an outpatient lab and draw blood from ill people daily. Last year a co worker contracted H1N1 quite possibly from another patient.
Avatar m tn Hi DH - Welcome to our group. I am currently getting Rituxan (rituxmab) and before this I was on Tysabri. They are the only two DMDs I've been on. I have had good experience with both meds. Tysabri lasted about 20 infusions before it stopped working. The Rituxan seems to be doing the job now. I started Rituxan in November of last year and finished my second round yesterday. I had no adverse reaction of any kind to either med.
Avatar m tn In the time I have been taking Tysabri, they have obtained much more data, as more and more people began taking Tysabri and staying on it longer. The JC virus test has been very helpful, allowing people who are negative to go on Tysabri with much less worry of PML, as well as giving people who test positive a better idea of the risks and allowing them to make more informed choices and decisions. At this time, they have identified 3 main risk factors for PML while on Tysabri: 1.
Avatar f tn I am positive for the antibodies for the Tysabri and my first episode was not bad. He was the first doctor for the ms and made me believe that I was going to get a lot worse if I didn't do the Tysabri. I'm sure the drug company pays him a lot. As far as fudging just a little on my speed test the new doctor thought it would help me, which it has. It is not for drop foot and I don't have that! You welcomed me to this site and encouraged me to share.
198419 tn?1360242356 //www.medhelp.org/posts/Multiple-Sclerosis/Gilenya-Users-Past-and-Present/show/1469412 http://www.medhelp.org/posts/Multiple-Sclerosis/Copaxone-users---past-and-present/show/643683 http://www.medhelp.org/posts/Multiple-Sclerosis/Tysabri-Users---Past-and-Present/show/1569374 http://www.medhelp.org/posts/Multiple-Sclerosis/Aubagio-Users-Past-and-Present/show/1946899 http://www.medhelp.org/posts/Multiple-Sclerosis/Our-Tysabri-Users---Past-and-Present/show/658918 http://www.medhelp.
1394601 tn?1328032308 I have been on Tysabri since February and also seem to crash the 4th week. It did get a bit easier as time went on and I felt such a difference on Tysabri for the better! The problem for me is that I seem to be very sensitive to the treatment and have had some fairly severe reactions during the infusion. There are times where I have only received 1/2 of the bag. I am premedicating very heavily now with Benydryl, etc and it seems to help.
559187 tn?1330782856 I'm not sure how they are going to work that one out. They certainly won't admit it I am guessing. I know when I was searching for "gap" insurance, the big thing with them was kidney dialysis. However if you are on meds already, not sure how they can change it. As long as you have no coverage gaps, and I don't remember where, but for example, there are studies that Tysabri is now being used (along with another drug but can't rememer that name) for progressive MS.
Avatar n tn I was on Copaxone and rebif prior and had flares. 2 years on Tysabri And no real side effects, just the wearing out a few days before next infusion. My neuro loves the "juice" so I imagine he will keep me on. I used to be a NP now on disability and I can't totally understand my MRI results. Just frustrating. I am only getting tested once a year for JCV. I have been taking my health a lot more seriously and just lost 50 pounds.
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
Avatar m tn Guess what chemo worked in my case. He is thinking Tysabri to be more aggressive. I have PPMS and I would do Tysabri if I did not have Cancer.
Avatar f tn Lulu is right on the money with her comments and of course, I started down the Tysabri with JC+, and have completed 25 infusions and am between 1.0 and 1.5 (have to look the number up). As long as you are negative and its helping; hold your ground, but nicely ask your neuro what his rationale is for asking you to stop at the 24 infusion marker?
Avatar f tn I'm JC+ and on Tysabri. The success rate of no new flares is up to about 92% and is encouraging. It's only every 28 days. The only people authorized to administer it have undergone training and are TOUCH centers. There are also hospitals trained in it. My neuro is one but my summer TOUCH center is a hospital and is in their outpatient section. I don't think I would trade procedures, even being JC+. Every drug has a risk and PML is the only one associated.