I may have trigeminal neuralgia in the mandibular branch. Severe pain in the lower gum area but it is on both sides which has my PC doctor, my neurolgist, my pain management dr, my neurosurgeon and my accupuncturist all baffled. Meanwhile, I am on Lyrica, which is becoming ineffective, Vicodin, which does not help much, and Ambien to knock me out at night to get some sleep. Is anyone out there who has experienced such a problem that can head me in the right direction? I am losing hope.
Hi,
Sorry to read about your pains. There's something you may want to look into called 'trigeminal neuralgia'. It is a neuropathic disorder characterized by episodes of intense pain in the face. Originating in one or both of the trigeminal nerves, this pain may be felt in any or all of the following: the ear, eye, lips, nose, scalp, forehead, left index finger, teeth, or jaw on one side and alongside of the face.
A neurologist diagnosed me with the trigeminal neuralgia. I was diagnosed based on my symptoms.
You should ask your PCP for a referral to a neurologist or a facial pain specialist. There is pre-Trigeminal neuralgia which manifests as a toothache. Many people have unnecessary dental work done thinking the pain is caused by their teeth, when in reality it's the nerve.
Hot or cold compresses can give temporary relief. I've also used Oragel rubbed on the teeth and gums to numb the pain temporarily.
Let us know how you're doing.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g.
Hi,
The common causes of shooting pains on right side of head are trigeminal neuralgia, temporal arteritis, tension headaches etc.In trigeminal neuralgia there are successive bouts of face pain. This pain occurs when a blood vessel compresses the trigeminal nerve as it leaves the brain stem. Temporal arteritis is caused due to inflammation of medium and large sized arteries bringing blood to the head.
I have been going to the doctor for several years for sinusitis, then I began to have facial pain. After several different doctors, I was told that I had trigeminal neuralgia as well as a deviated septum. I eventually had laser surgery for the trigeminal neuralgia, but the a facial pain continues. The nerve pain has subsided, but I continue to have facial pain on my left side. The pain seems to get worse if I lean my head to that side.
Hello unnerved,
Trigeminal nerve which is responsible for sensations of the face. The cause trigeminal neuralgia is probably a blood vessel pressing on the trigeminal nerve. Tumors and multiple sclerosis can also cause it, but in some cases the cause is unknown. The pain is sudden, severe, electric shock-like, stabbing that is typically felt on one side of the jaw or cheek.
Trigeminal neuralgia (TN) rarely occurs with sinusitis but it has been described. The persistent congestion and your severe headache suggest that, despite the "clear" sinus x-rays you may have sinusitis or an infection of the sinus that has extended beyond the sinus walls.
That you are still ill suggests a possible infectious complication. You would do well to consult with an ENT specialist and have a CT scan of your sinuses and the adjacent areas.
Good luck.
Hi, Thank you for your question. Trigeminal neuralgia may be presented with typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
she is 29 and has been diagnosed with trigeminal neuralgia. could her tn be from the meningitis? maybe a sid effect?? she is on very strong medication and can not have the dosage increased anymore. she suffers alot with extreme pain. thank you, i need to find out as much as i can about this disease.
Does Trigeminal Neuralgia worsen with age. I've tried Tegretol but the pain has some back agaiin after about a year and is very, very intense. It is like a needle made of glass penetrating the right side of my nose and going into my head. What is the best treatment for this and can it be cured completely.
This discussion is related to <a href='/posts/show/894401'>Trigeminal neuralgia more help</a>.
One of the causes of Trigeminal Neuralgia could be tumors. The Trigeminal nerve and its branches touches many parts of the face including the sinuses. (Google Gray's Anatomy (bartleby.com) for good diagrams of where the Trigeminal Nerve is).
I personally have not heard that TN loosens teeth -- although pain in the teeth and gums (because of all the areas the nerve touches) is common.
Hello,
In your case, I think that it can be trigeminal neuralgia. Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
t say for certainty what was the issue is the neurologist says trigeminal neuralgia and the ENT says TMJ. The pain is horrible and is daily. Where my mouth hurts there isn't even a tooth there! So far I have been on tegretol, Neurontin, 800mg ib profufen, Tylenol, vicodin, Tylenol 3, and Norco's and acyclovir (in case it was shingles) not all at the same time. NOTHING works. Well, the ib proufen works but it only lasts maybe 2 hours and I can only take it every 12 hours.
I was diagnosed with trigeminal neuralgia a year ago but have also been suffering with fatigue. I can't do much before I need a sleep.. it's affecting my job my family and my mental health. I feel like giving up. Can trigeminal neuralgia cause me to feel like I'm 90?
I have had trigeminal neuralgia for almost 5 years. I have had MVD, Gamma Knife, Nerve Blocks and 4 days ago I had Balloon Compression. I have taken just about every medicine you can think of and am on ALOT of medicines. In addition I have migraines with cluster variance (this is what my neurologist diagnosed it as) whatever they are they are horrrible. I have high blood pressure, fibromyalgia, Crohn's disease, TMJ, Interstitial Cystitis, Reflux.
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