I have these symptoms and a diagnosis of RRMS. Bilateral trigeminal neuralgia is almost exclusive to MS. I have it as well to match my brainstem lesions.
As noted on one of my recent posts, dysautonomia can occur in MS with brainstem lesions so it may be tough to parse out the different symptoms to different diagnoses.
The bilateral trigeminal neuralgia points to MS. The rest of the symptoms I can't be so definite about. But I have done much research on the trigeminal neuralgia.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
Trigeminal neuralgia symptoms can be scary, causing anxiety, rising your heart rate. Follow up with your doctor for what you describe to make sure that there are not other conditions involved, I agree that your described conditions do not seem commonly related to the diagnosis alone.
Hello,
From your symptoms the possibilities of trigeminal neuralgia and temporal arteritis need to be ruled out. Trigeminal neuralgia is painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
Hello,
In your case, I think that it can be trigeminal neuralgia. Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
I have trigeminal & geniculate neuralgia & had microvascular decompression surgery 10/09 w/ a neurosurgeon & ENT MD. My surgery was abnormal, they were unable to decompress the 7th nerve due to massive amounts of extra &abnormal blood vessels wrapped around it. The 5th nerve wss decompressed &it controlled/allievated my trigeminal symptoms for 6 mo. I recommend finding an experienced surgeon & get MVD, this diagnosis is so painful even only 6 mo of remission was worth it.
I‘ve been having very recent neurological symptoms and no diagnosis has been given yet despite several tests and dr appointments. Trigeminal neuralgia is a diagnosis being considered by my doctor but my head pain is mild and not excruciating like it's typically described. I also have slight limb weakness on my left side that began shortly after the temporal and head pain which from what I understand wouldn't be due to trigeminal neuralgia.
I have been suffering for 2-1/2 years with oral facial pain. It began on the left and is now bilateral. I get severe, constant pain in the upper gums, teeth, cheeks, temples, jaws, neck. At times there are sharp twinges, but mostly it is a deep, constant ache. I have had close to pain-free moments, but just when i think I'm cured, it flares up. I have had 2 diagnosis. TMJ with osteoarthritis of the jaw joints and cervical spine. The other diagnosis is from a neurologist.
Hello.
For a few months my trigeminal nerve has been irritated. It's the first and second branch. I experience the electrical shock (more like a tickle) that I've experienced with Trigeminal Neuralgia but there's no pain. It seems to happen often when my head is tilted forward/down and that makes me wonder if it could be an issue with my cervical spine. I really don't have any unusual discomfort in my neck. I don't have headaches or sinus pressure or anything.
Hi, About a year ago, I suddenly developed shooting pains in the front of my face, above my upper front teeth. I went to the dentist, who x-rayed me, and said I had an abscess, above my left upper 1 tooth. He did root canal treatment, but could not find anything, the pain did not go away, and after several root canals, he referred me to a consultant for an apicectomy. When the operation was done, as he drilled through the bone, he said there was lots of pus to drain away.
Then large lumps under arm began, antibiotics did not work and had allergic reaction. Regular doc referred me to a neurologist who diagnosed trigeminal neuralgia and prescribed anti-seizure and anti-depressant. Had MRI and EEG. Tests showed nothing. So now I am not sure what to do, I am 23 and can't live the rest of my life like this. The pain wakes me up at night and I have very bad head aches. What is the next step to take? Any similar stories?
My symptoms are not similar to everyone elses, but could it be trigeminal neuralgia? My pain in not actually in eye, just right on corner between eye and nose?
In general, trigeminal neuralgia is a clinical diagnosis consisting of shooting pain that lasts seconds to minutes. It usually occurs on one side of the face and can be triggered with stimuli such as a breeze, cold drinks, talking, facial expressions, and brushing teeth. It is uncommon to see an associated purple rash. Perhaps visiting her neurologist again may be a good next step.
I went to see my PCP and he thinks it is Trigeminal Neuralgia and wants to do an MRI. Are my symptoms consistant with TN? Does TN start with low grade pain and numbness and then increase in pain over time? How long does it take for the pain to intensify? The numbness is constant and low grade pain is triggered by lifting my left eybrow?
Please help me understand the progression of this condition.
Thanks!
has suggested a diagnosis of Trigeminal Neuralgia. I am on a wide host of medications but not getting relief. I have had MRI, CT scan, etc... What do you suppose I do next. Does this sound like a likely diagnosis?
Hi, Thank you for your question. Trigeminal neuralgia may be presented with typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
Does Trigeminal Neuralgia worsen with age. I've tried Tegretol but the pain has some back agaiin after about a year and is very, very intense. It is like a needle made of glass penetrating the right side of my nose and going into my head. What is the best treatment for this and can it be cured completely.
This discussion is related to <a href='/posts/show/894401'>Trigeminal neuralgia more help</a>.
Hi, Thank you for your question Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid. Drug of choice for trigeminal neuralgia is carbamazepine but as the dose may vary according to severity therefore I would advice an oral medicine specialist consultation or at least a physician to confirm this diagnosis and get you treated accordingly. Take care.
Hi, Thank you for your question. This may be Trigeminal neuralgia as you have typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
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