my son developed trigeminal neuralgia after a dental procedure. he is presently on medication for it. he is 28 years old and what is research showing for future care.
As many as 90% patients have reduction in symptoms after a month of treatment. Some side effects of facial numbness have been associated. Gamma knife surgery for trigeminal neuralgia has been a safe and effective treatment and better than traditional surgery. Take care.
Hi,
It is difficult to treat such a persistent post herpetic neuralgia. If you have tried gamma ray knife surgery as well, then there is nothing much in the way of a treatment that can be done. You might have of course tried topical creams, antidepressants, anticonvulsants, steroids, local anesthetics, probably electrical nerve stimulation. If your doctor has not prescribed any of these, you may ask for them. There have been some cases where some amount relief is offered by meditation.
I have typical Trigeminal Neuralgia and had a Gamma Knife treatment 6 months ago. I was told to begin weaning off my medication (Trileptal). Since reducing the medication by 150 mg, I am once again experiencing TN pain triggered by chewing, talking, washing my face, etc. Is this normal when weaning off anti-seizure medications used for TN?
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
I suffer from trigeminal neuralgia and am currently taking BACLOFEN to help with the pain. I was treated with the Gamma Knife about a year ago without success. A friend also had TN and was treated with an alcohol shot to the face that had to be repeated about 4 weeks later. That was over 10 years ago and he has had NO pain since. I can find only passing references to the alcohol shot to the face. My question is where can I go to get this alcohol shot to the face?
I just found out that I do have Trigeminal Neuralgia. I have the same symptons you have and I have researched this many people have unneccesary procedures done on their teeth thinking its that. I would recommend before you undergo the root canal seeing a Neurologist and having them do a MRI they will be able to see if its the Trigeminal Neuralgia by this test. I hope this helps, I know how
frustrating this can be and also how painful it is. Please let me know what happens.
//www.fpa-support.org/ -- the Trigeminal Neuralgia Association. They sell a book on their site called "Striking Back" that has a lot of good information.
Best of luck!
I had Gamma-Knife Surgery 4 months ago for Trigeminal Neuralgia. After the surgery, I felt no different than before. However, recently, I began to feel a twinge in my lip like a oncoming cold sore. Two weeks later, I have almost complete numbness on the entire left side of my face. I am incredible greatful because my pain is gone, but I no longer feel anything. I feel as though I can't move my face even though the PA said it's all within the nerve not the muscle.
I'm going to tell my story so it will be kind of long, but has a great end ing..promise;-). In 2011, at age 29, I noticed a sharp pain when I brushed my teeth. At the time, like many others, I assumed it was dental related. I went to the dentist and they found nothing wrong. As the weeks went on, the pain started happening when I talked, brushed, washed my face, clenched my teeth, slept, smiled, if the wind blew hard, etc. It was the WORST pain of my life.
I am going twice a week to a Chiropractor to get relief from Trigeminal Neuralgia .He is an expert in in nerve pain treatment.I have Trigeminal Neuralgia since Nov ember 20001..I took Homeopathic treatment,Accupuncture treatment..Since one and half years I am taking Gabapentin,colonzepam,baclofom etc.Pain goes and come.some times it almost blind me due to severe pain.
Is there anyone who got cure by Chiropractor.
Hello.
For a few months my trigeminal nerve has been irritated. It's the first and second branch. I experience the electrical shock (more like a tickle) that I've experienced with Trigeminal Neuralgia but there's no pain. It seems to happen often when my head is tilted forward/down and that makes me wonder if it could be an issue with my cervical spine. I really don't have any unusual discomfort in my neck. I don't have headaches or sinus pressure or anything.
Gamma Knife is not new to TN. I had 2 rounds of Gamma Knife and 2 rounds of MVD. I still have TN and now I have Phantom pain from all of the treatments. The docs are going to try to restore the nerve and start all over again. Gamma knife runs about 150K per round. Insurance companies are hesitate to approve its use for TN now, since it only helps one-half of the TN patients. It is the least invasive of all treatments, the best of all worlds, ONLY if it works.
I know that occipital neuralgia ( eye TN ) has ruinded peoples lives . Go to you tube, type in trigeminal neuralgia, and you will seee videos of a man who suffered from this ..........let me know how thing's go for you . Good Luck, I know the pain .
I went to an endodontists who drilled into a tooth that felt to be most likely cause of the pain. He found infection and started a root canal but insisted that I had trigeminal neuralgia and would not finish the root canal until I took Tegretol. My internists and I did not think my symptoms consistent with trigeminal neuralgia. I went to another endodontists who finished the root canal I think finding another root of the tooth. He did not feel I had trigeminal neuralgia.
I have had TN (Trigeminal Neuralgia) now for about 17 years. Sharp stabbing pain at times right side of face, usually centered around upper right teeth/top of lip/bottom of nose area. Have had two Gamma Knife procedures done 10/05 and then 10/08 after pain had returned early '08. Pain has returned this spring and continues. Recent MRI shows no changes from before.
I, too, have suffered with trigeminal neuralgia, which has been controlled with Neurontin and also steroid injection blocks in head and neck.
I hope this has been of some help to you.....Take care.....
Has anyone had any experience with using Trignotab as an alternative treatment for Trigeminal Neuralgia? I am posting this for a friend who does not have access to a computer. She has suffered from this condition for years (30+), has undergone surgery with short term success, has been assessed for gamma knife treatment but is not a candidate. She is currently taking trileptol and baclofen, and is not sure if she can take the Trignotab with these medications.
Each of the surgical techniques employed has some degree of success (not 100%) and attempts to reduce pain signals generated by the trigeminal nerve, which transmits painful sensation from the face (hence the term trigeminal neuralgia). First, there is a procedure called glycerol rhizotomy, whereby the surgeon injects glycerol directly into the nerve under x-ray guidance.
hi again....I looked this up on MAYOCLINIC.COM its referred to as TRIGEMINAL NEURALGIA....it follows the branches of the trigeminal nerve...look at the site for more info.
Hi,
I am not sure if this is something to worry about, but I've noticed in the last few months I can't move my right small toe. I used to be able to. I have trigeminal neuralgia and had a gamma knife procedure to alleviate the pain (it has helped greatly). I am currently taking neurontin, tegretol, and triliptol (not sure of spelling) to help with TN pain.
Clinical differential diagnosis includes, but not limited to, neurovascular orofacial pain, atypical odontalgia, traumatic trigeminal neuralgia, as wellas prerigeminal neuralgia. Seeing an orofaical pain specialist is advised.
In 1974 similar pain started on the left side of face the surgeon diognised as trigeminal neuralgia in the 2nd branch. since than I am on tegretol and gabapentin, both this medicine do control attack, with the help of remmissions i have managed to avoid surgery, as this would lead to my entire face being numb for ever.
The pain has returned just last week, after 2 years remission. I started on tegretol 200mg 3 times a day and neurontin 300mg twice a day.
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