I am a 25 year old female. I was diagnosed with a primary brain tumor in June 2008 and underwent surgery to remove it. It was the size of an apple and diagnosed a grade 2 tumor. It grew back in September 2008 and that's when i began rigorous radiation and oral chemotherapy (Temozolomide). My recent MRI has showed the regrowth of the tumor to be "gone." The plan is to take the Temozolomide for 2 years along with Accutane (which helps the oral chemotherapy work better).
I had an uncle with the same form as your mom, the glioblastoma multiforme - he also found it late and passed quickly but glioblastoma is a different form. It is the words after it, if any, that make for prognosis - as well as stage, previous health, location of tumor and a host of other factors.
I have a cousin with a thalmic cancerous tumor, and he is doing ok so far.
Here's some websites I found that talk about it:
At this VA website, in the search rectangle at the top, type in "Agent Orange"
http://www.vva.org/
This is another VA website, on your computer keyboard hold down Control and F, a rectangle will come up at the top, type in "Agent Orange," and a bunch of articles about it will be highlighted on the page, and one post is by a vet who talks about glioblastoma
http://www.facebook.com/posted.php?
operative and post radiotherapy state of right temporal Glioblastoma. Pre and post contrast MR imaging of BRAIN was done using following protocol: Evidence of right sided craniotomy is noted. Irregular CSF signal intensity area is noted in all sequences in right temporal region with mild exvacuo dilatation of right lateral ventricle. Small nodular enhancing area with surrounding gyriform enhancement is noted in posterior aspect of right temporal lobe and there is adjacent dural enhancement.
I hope your husband gets the best treatment he can get and recovers. I would try any treatment possible. I wish I had done this when my mother was diagnosed with a grade 4 glioblastoma multiform tumor. There isn't much hope for someone with glioblastoma, however, I wish I had allowed her to be treated rather than opting for hospice care. There's a famous doctor at Duke University's Tisch brain tumor center named Dr. Allan Friedman.
operative and post radiotherapy state of right temporal Glioblastoma. Pre and post contrast MR imaging of BRAIN was done using following protocol: Evidence of right sided craniotomy is noted. Irregular CSF signal intensity area is noted in all sequences in right temporal region with mild exvacuo dilatation of right lateral ventricle. Small nodular enhancing area with surrounding gyriform enhancement is noted in posterior aspect of right temporal lobe and there is adjacent dural enhancement.
please send any info to larry eugene smith 2254 vine ave muskegon mi 49442, larry was in korea and vietnam and now he has glioblastoma multforme, we need help for him.
They are having the topotecan+bsi-201 trial at Yale in Connecticut and at Sloan Kettering in NYC. I don't know where you live and if these locations are convenient to you. There are a couple of other locations that are giving this particular trial now as well, but you'd have to check www.clinicaltrials.gov.
I understand your concern regarding this. The management plan for glioblastoma varies and factors such as the type, location, medical history and symptoms are important considerations. It is best that you discuss this with his attending physician for proper evaluation. Take care and do keep us posted.
The products in question are Temodar (temozolomide) for brain cancer and hepatitis C and cancer drugs PegIntron (pegylated interferon alfa-2b) and Intron A (interferon alfa-2b), according to Merck's just-published quarterly report. All three of the drugs were acquired when Merck bought Schering-Plough in 2009.
ll be able to have an appointment with the oncologist (which is a mandatory step before starting RT around here) not sooner than in the last week of April. And the time between this consultation and start of actual RT is usually around _a month_, and I'm talking non-covid times here. All this regretfully makes it look like grandpa will be able to start the actual RT 7-8 weeks after the surgery (~5 weeks after the biopsy report is in).
Is it a reason for concern?
my mum died of glioblastoma. I wish I had better news for you but I'm afraid it's a hard road. The survival rate for that is dismal at best. This kind of explains it. Scroll down to mortality/morbidity.
http://emedicine.medscape.
Yes. The gene has been indentified. You would contact a cancer center near you and they would have a genetic doctor working there, and they can do the testing (if insurance pays for it, the tests are quite costly). They can also arrange for counseling.
In my own experience I can tell you having a gene does not mean you will or will not get something. Hashimoto's runs in our family. I have it and my brother does not. My brother has the gene!
m very sorry. And my understanding is that glioblastoma is very aggressive brain cancer that can be primary or secondary. His is primary? This article has treatment options and if they can operate, they will and probably should if it is safe. https://www.mayoclinic.org/diseases-conditions/glioblastoma/cdc-20350148. Then radiation and chemo are what comes after. Tumor size and location are factors they take into account with with prognosis. What are the doctors saying?
My husband was recently diagosed with glioblastoma multiforme brain cancer. The neurosurgeon put him on Dilantin "for life." He isn't even going to check blood levels. My husband has not had any seizures. Does this seem appropriate?
The tumor is about the size of a golf ball and has grown through/into the carotid artery and into the optic nerve. My neurosurgeon is unable to do the surgery because it is too complex. However, he is looking for someone who can do it, but it is taking him a long time and I am having no communication with him. He hasn't called me back, and I have talked to him in over a week. Does anyone have any suggestions as to whom I should contact or ather steps that I should take?
my heart is breaking as a very good friend of mine was just diagnosed with stage 4, Glioblastoma tumour and has chose to not have the surgery or radiation being given 2 to 3 month.
m a 43 year old man with the cancer mutation lynch syndrome msh2 and a strong family history of colon cancer my 41 yo brother,cousins and uncles, pancreatic and my mother had Glioblastoma of the Brain at age 68.Recently I had a cytology and cystoscope which found tumors in my bladder.
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