We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
tumor size 3.4 cm, node negative, Grade 3, Stage IIA, extensive angiovascular (lymphovascular) invasion, Ki-67 = 44%, P53 = 97%, ER/PR positive. (Approximately 4-6 months prior to diagnosis I knew I had the lump.) I received 6 cycles of TAC (taxotere, adriamycin, cytoxan) and then an aggressive 4-week radiation protocol. I received Tamoxifen for 10 months, then switched to Arimidex for 7 months and am now back on Tamoxifen (2 months).
her diagnosis with neuroendocrine cancer. My mother was also diagnosed in Dec. 07 with a high grade neuroendocrine, small cell cancer that started on her gall bladder. She had symptoms of a "gall bladder attack" with pain in her mid chest. She has had 3 rounds of Chemo with Cisplatin and Etoposide, the same combo used to treat small cell lung cancer. She has not responded well to this and the cancer has unfortunately spread into her spine and the tumor has re-appeared on her liver.
Hi,
Neuroendocrine tumors can cause diarrhea, flushing, headache.
I read that neuroendocrine tumor can be a cause of cervical cancer, but the age range for that was recorded as 21-87. Is it possible to get it at a younger age?
after my surgery (mastectomy) my pathology came back as small cell neuroendocrine carcinoma, primary to the breast, no evidence of ductal or glandular carcinoma. Triple Negative for ER, PR and HER2. Have you ever seen this? My oncologist has not and has told me its rare, my reports, etc. are being sent to a pathologist that has actually written articles on this particular cancer of the breast. My question is if you've seen this, what am I looking at for staging, etc.
Hes using the 5h1aa urine test to test to see if you have a neuroendocrine cancer of the adrenal gland. IF you do RUN don't walk to the nearest specialist. That won't be hard as there are only like 6 in the whole country! The other most important thing to do is get over to ****.ORG and join the carcinoid (neuroendocrine) forum as there are 100's of experts and one of the 6 aforementioned Specialists in this country, they will greatly extend your life and may be save it.
CT-guided biopsy reveals mixed composition tumor 90/10 CLL and Merkel cell, respectively. The doctor now characterizes the metastasis as a neuroendocrine tumor. It has been treated with radiation but response minimal shrinkage.
Question: I understood CLL to be a cancer of the blood. How could it have "morphed" into a midgut tumor?
It needs to be biopsied to determine how fast/slow growing it is. Find yourself a carcinoid/neuroendocrine specialist. Most docs don't know diddly about it. Do a Google search for carcinoid organizations and some of them have listings of good docs.
About a month ago, my mother had surgery to remove a high-grade neuroendocrine tumor from her brain. It was hypothesized that it spread there from her lung because a previous CT scan showed a 3cm tumor on her right lung. Pulmonologists performed a bronchoscopy to sample the tumor and send it for a biopsy. But they reported to her the next day that they were unable to find the tumor. They sampled a lymph node instead.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
I do not have insurance but will make a appt if needed. My father died from panceratic neuroendocrine cancer on dec 23rd of 2011. I am now very parinoid for myself. I read his medical papers and in the begining he had the same syptoms. Should I be worried.
Hello. I am a 24 year old male being treated for a Neuroendocrine Tumor with Octreotide injections. The last few months my hair has become coarse, Ive found myself slurring my words, hoarse voice, I am cold a lot (my friends joke I have corpse hands), and I've been feeling slightly emotional and depressed. I also have an unexplained iron deficiency with ferritin at 3.5.
Blood work showed a Free t4 level low at 0.57 and a TSH of 0.77. Also had a high LDL cholesterol of 109.
Elevated chromogranin A (CgA) levels can be seen with neuroendocrine tumors, such as carcinoid, gastrinoma, insulinoma, glucagonoma, VIPoma, and somatostatinoma. Elevated gastrin can be seen with various entities including Zollinger-Ellison Syndrome, caused by gastrinoma, which can be found in pancreas and/or duodenum.
ve been seeing for symptoms of a possible neuroendocrine tumor (diarrhea, flushing, elevated serotonin and uptake on the Octreoscan) insists that all of my symptoms can be explained by my almost undetectable TSH and slightly elevated T4 (T3 in high end of normal range) - he insists that even my elevated liver function tests can be due to the low TSH but this seems to be the exact opposite of what I read online.
In the course of getting an ultrasound (mild / incipient fatty liver suggested but even that has later been discounted), a pancreatic neuroendocrine tumor was discovered. This led to quite-successful surgery to address the tumor. In fact the discovery may have sidetracked the original problem.
But lately, trying to explore it further. It's worth mentioning that so far have done many specialized blood tests.
Highly unlikely, neuroendocrine tumors are very rare and usually presented in over 60 year olds. Why scare the OP with all the worse case scenarios? This is a 14 year old with a sudden onset of discomfort which could be anything from a pinched nerve or pulled muscle.
It is generally slow growing but being in the intestines can cause uncomfortable symptoms. Google for carcinoid and/or neuroendocrine cancer organizations. You need to find a specialist who is familiar with this kind of cancer. There are also several groups on FACEBOOK that share a lot of info. You might want to check them out.
While most gastrointestinal malignancies that metastasize to the liver will appear hypovascular on arterial and portal-venous phase imaging, certain cancers such as metastatic neuroendocrine tumors (including pancreatic neuroendocrine tumors, carcinoid, and gastrointestinal stromal tumors) tend to produce hypervascular metastases due to the greater recruitment of
arterial blood supply.
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