temodar message board

Hi to everyone, I've been reading this message board for months now, but unable to post because my Apple computer won't let me, don't understand why and we've tried everything.so i'm in my adult community's clubhouse using their pc. Let me first say you are an amazing, compassionate group of ladies and I'm glad to be able to read the information you post to help each other. I'm stage 3C, BRCA 2 positive, OVCA which has metastasized to the lymph nodes.

We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.

She had a surgical resection near the end of November and is currently in her third week of Proton Therapy and chemo with Temodar. Her tumor was in the right temporal lobe and the remaining tumor they couldn't remove (about 10 percent they said) is on her right insula. Hoping to chat with other people in the same boat as her. What if any side effects did you incur on Proton therapy? Did everyone who had proton therapy to their brain have to be on a steroid? Did anyone NOT lose hair.

HI, I AM WITH OLIGODENDROGLIOMA,, NOW ON CHEMOTHERAPY-TEMODAR 350MG.

A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.

But remember there are time differences for all of us here, so often the person may not see your message for hours or even the next day. As for AR, I promise you he will answer your message if he has received it, if you're not sure, send another one.

Get out and go for a walk! Exercise! It really does help on the day of deliver plus you go back in shape like nothing.

I don't know...he's a neurologist but board certified in neuro/psychiatry and he was originally treating me for occipital neuralgia, and later for panic attacks, anxiety, and now depression. I'm sure he thinks I'm crazy....mentally disturbed or something. I have other issues as well but feel that maybe I should find a psychiatrist and leave him alone.

I'm sorry, I am somewhat new to figuring out this board and all of the features. I don't even know how to get to my own inbox, but somehow figured out how to message you :)) I wanted to let you know that I sent a message to you in response to another post.

s daughter was just diagnosed with mito I will get in touch with her and get some info for you.

I think I"m already helping you with this on another forum - either webmd or asha's message board would be my guess sinceyou didn't have any other posts here under this name.

It must not be easy managing a free message board this large and diverse. Imagine the staff and costs to run their servers, build and maintain the web framework, control spam as well as monitoring the discussion forums. Good to acknowledge that. What seems like a good discussion to some may be offensive to others. Many people that come on here may never post but just read some of the discussions and be turned off by what may seem like cat fighting.

can I? post a new message to the other Heart Rhythm medical questions board. Do I need to create a whole new profile? Use another email and password? Seems that way but hoping I am wrong and someone can give me a clue here:-) Thanks!

And second I am in full agreement that Chapel Hill Tubal Reversal Center is the leader in the field of tubal reversal. Have you tried the message board on the site? There are many women (and spouses) that post there all of the time. The board is very active and and the members are very friendly. If you have questions the staff is always on the message board to help answer anything that the members cannot. I wish you the very best of luck in your journey.

if anyone knows how to locate messages that dissappear before you press send my message contained very private things i am panicing there is things in my message that my family don't know help please?

Oh, and here is a message board for ALS. Maybe it will help you to hear other stories and see if they match yours. http://www.************.com/boards/forumdisplay.php?

We have a member here who understand more on this than most. Her name is Marpo1 and rarely appears on the board. Send a message to her - or Smilerdeb. Smilerdeb will contact her if you don't here anything and Marpo1 is wonderful, she will come on with some thoughts. Good Luck on this - It must be very scarey.

Ok, so i am sitting here minding my own business responding to my inbox messages when I get this message that had no name just a message... Apparently, this person thinks that since I am NOT PREGNANT, that I shouldn't be on this board and that I should stop posting... That I am just full of **** and don't know what I am talking about..... I cannot believe that!!!!

She is a doctor on this forum .She is on this board ,although She may and may not address this question. I hope She sees this and I hope you get an answer. Dr. Aharonov has not posted anything since March I believe.

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