We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
Did your doctor prescribe it to you for this? If not, STOP right now...'experimenting' with prescription medications, which are extremely addictive can NEVER have good outcomes.
They all have reported feeling better daily - this off label approach is a God Send! Now I will finish out the 12 weeks - they will do the viral load test again at that time and then 12 weeks post treatment test again to declare me officially SVR!!!
NO HORRIBLE INTERFERON OR RIBAVARIN THIS TIME FOR ME!!
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
After reviewing the medications I was already taking (to avoid any conflicts) she recommended Lamotrigine for my intense anxiety. I am VERY familiar with off-label drug uses, but I can find no information re: the use of this drug for my situation. It is a drug used for bi-polar disorder and seizures. I thought that Atavan would be the drug of choice, and after reading more about Lamotrigine, I have become actually quite shocked about this recommendation.
Has anyone been approved for Olysio and Sovaldi off label and on Medicare? I failed traditional interferon/ribavirin, have fibrosis stage 2, and waiting for approval.
Wikipedia is a good starting point, as it usually is linked to the other label sites. Look for lines within the label info that refer to liver or hepatic. If there is any knowledge that a drug can harm the liver it will be on the label. You can easily come across a line on some drug labels that warns about treating patients with "hepatic impairment" (means liver damage).
[1] Both prescription drugs and over-the-counter drugs (OTCs) can be used in off-label ways, although most study of off-label use centers on prescription drugs.
noo all though i did once and boy my bd almost chopped off my head i was sitting there wondering why he got mad he then showed my the label that pregnant ladys arent allowed to take it goshh the rest of the night i just felt bad about no reading the label now im a label reader to everything i drink and eat
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