We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
ve now been through radiation and temodar, consults with Dr. Prados at UCSF. The tumor was still growing at last month's MRI. Now I'm on IV chemo, Avastin and cpt 11. Next MRI is in a week and we''ll see.
I'm so scared. I'm married, no kids, love my husband and can't bear having to say goodbye to him and all my beloved friends.
I don't know how to run my house any more.
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
The doctors at the reputable renowned hospital in Chicago claimed to have never seen a tumor this large in an adult. He received radiation and chemo for six weeks and remained on temodar for almost 18 months. The last ten percent of his tumor (near the brainstem but according to images not infiltrating into) did shrink a bit during treatment and has remained “dormant”. This all sounds amazing but he seems to be getting worse.
Why the medical forum by doctor HHH and Hook is not accepting any new questions? Anybody knows?
Ever since I had my baby this forum means nothing to me anymore.. Is there a new Mom forum I can go to?.. It's like the pregnancy is the previews but the actual Mom process is the main event... I knew that, but it takes on a while new meaning after the baby's here.. Now I just want to talk to other Mom's about it.. Is there any where for me to go??
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