We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
what is the appropriate time for recovery after brain surgery for an ependymoma?
How did you turn out, I am the one that posted about the Ependymoma Tumor that was discovered in a wreck on 6-13-07, Subependymoma 1.9CM's Right Lateral Ventricle, Surgery 7-1-07@ Duke Hospital by Dr. Friedman, Neurosurgeon. Your bright spot reminds me of my MRI and the Ependymoma Tumor, my was a bright white spot like yours. I hope you are doing ok, no one answered my post that I put here back in January.
Best Regards,
If you need to respond to discuss I will check back.
my 31 year-old ex-fiance was diagnosed with an spinal ependymoma at the age of 25. He had negative follow-up MRIs for two years post resection of the 4.5 cm lesion. (The surgery consisted of T12 to L2 laminectomies and opening of the dural sac surrounding the cord. The tumor was identified and resected from off of the nerve roots very carefully and then the tumor was able to be removed.) He eventually discontinued the follow-up MRIs due to problems with his insurance covering them.
My husband had a sub ependymoma tumor removed from the center of his brain. It is very rare for a man of 29 to have this type of tumor. His surgery was in January, he has had extreme vertigo 24 hours a day since his surgery. His neurosurgeon cant figure out the problem, we were sent to see a ENT but it isn't an inner ear problem. He is limited to his chair because he is so dizzy we really need some advise, we will be meeting with a neurologist soon. PLEASE HELP!
Hi
Welcome to the MedHelp forum!
One possibility is that you are suffering from ‘benign intracranial hypertension’(BIH). This happens due to impaired CSF absorption. A generalized throbbing headache worst felt in the morning and last thing at night. This headache is generally relieved on standing (consistent with raised intracranial pressure). It is aggravated by straining, coughing, sneezing or a change in position. You need a prompt evaluation by a neurologist.
Other considerations include a PNET, ganglioglioma, ependymoma, or primary pineal tumor. There is associated abnormal increased T2 and FLAIR signal extending into the posterior thalami and down along the Brainstem into the deep posterior pontine white matter. Findings are worrisome for edema or gliosis related to tumor.
No other lesions are present worrisome for tumor. No deep periventricular white matter lesions worrisome for demyelinating disease.
ANATOMY: no congenital anomalies.
With the original MRI in hand, we consulted a neurosurgeon and neuro-radiologist here in the US, with the help of a mutual contact, and their reading of it was it was not a cavernoma, but a Ependymoma, in the wall of the ventricle, located near the Pons in the brain and Cereballa aqueduct, thus causing the blockage. It was suggested that along with a shunt procedure, a followup surgery to remove the tumor should be done. They also suggested MRI of the spine to rule out tumors there.
Although there can be many causes for falls, your age and symptoms could indicate a syringa (blockage) in the spinal column caused by a small cyst or ependymoma. Best to check it out!
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
They found a 25mm by 30mm tumor in the posterior fosser with a differential diagnosis of acoustic neuroma, ependymoma or meningioma. They also said it was very slow growing and most likely benign. Ever since I have had more and more questions and have been searching the internet when I came across this forum. It looks pretty good, I did a bit of a search but did not find anything that would answer my questions.
I recently had my 2nd spinal surgery - the first was to remove an Ependymoma which was done succesfully, but not fully removes - the latter to drain a cyst in the same area (lumbar). I just had an MRI and was told I have a spinal fluid leak in the lumbar area. My neurosuergeon wants to repair ASAP. What are the risks of the leak? He showed me the "pillow' where the fluid was leaking to and this afternoon I noticed it disappeared. Where did it go?
Other considerations include a PNET, ganglioglioma, ependymoma, or primary pineal tumor. There is associated abnormal increased T2 and FLAIR signal extending into the posterior thalami and down along the Brainstem into the deep posterior pontine white matter. Findings are worrisome for edema or gliosis related to tumor.
No other lesions are present worrisome for tumor. No deep periventricular white matter lesions worrisome for demyelinating disease.
ANATOMY: no congenital anomalies.
Other considerations include a PNET, ganglioglioma, ependymoma, or primary pineal tumor. There is associated abnormal increased T2 and FLAIR signal extending into the posterior thalami and down along the Brainstem into the deep posterior pontine white matter. Findings are worrisome for edema or gliosis related to tumor.
No other lesions are present worrisome for tumor. No deep periventricular white matter lesions worrisome for demyelinating disease.
ANATOMY: no congenital anomalies.
ve now been through radiation and temodar, consults with Dr. Prados at UCSF. The tumor was still growing at last month's MRI. Now I'm on IV chemo, Avastin and cpt 11. Next MRI is in a week and we''ll see.
I'm so scared. I'm married, no kids, love my husband and can't bear having to say goodbye to him and all my beloved friends.
I don't know how to run my house any more.
The doctors at the reputable renowned hospital in Chicago claimed to have never seen a tumor this large in an adult. He received radiation and chemo for six weeks and remained on temodar for almost 18 months. The last ten percent of his tumor (near the brainstem but according to images not infiltrating into) did shrink a bit during treatment and has remained “dormant”. This all sounds amazing but he seems to be getting worse.
Schering-Plough CEO Fred Hassan said in an interview that those drugs include Nasonex, Pegintron for hepatitis, cancer drug Temodar, the Nuvaring contraceptive and the two cholesterol drugs, all of which have patent protection until 2014 or later.
Doesn't appear Pegintron will be any cheaper for a long time.
Benign or malignant tumors may cause blockage of CSF flow. Ependymoma, subependymal giant cell astrocytoma, choroid plexus papilloma, craniopharyngioma, pituitary adenoma, hypothalamic or optic nerve glioma, hamartoma, and metastatic tumors are most commonly associated with hydrocephalus
Subarachnoid hemorrhage accounts for one-third of the cases of hydrocephalus in adults.
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