We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
The doctors at the reputable renowned hospital in Chicago claimed to have never seen a tumor this large in an adult. He received radiation and chemo for six weeks and remained on temodar for almost 18 months. The last ten percent of his tumor (near the brainstem but according to images not infiltrating into) did shrink a bit during treatment and has remained “dormant”. This all sounds amazing but he seems to be getting worse.
please let me know if the dosage i am taking i.e. 1/4 of 20 fluoxetine and 5mg olanzapine combo and 3/4 lorazepam is high or low.
83, The doctor has now increase my weekend dosage to 100mcg but I still feel this is not enough. I feel 125mcag along with 100mcg every other day would be more suitable for me. Please advise as I'm concern about about my baby.
76)
I was feeling a little bit hyper on this dosage. I was nervous, not sleeping , etc. I think that I seem to do better when my TSH is a little higher. I already had 100 mg of Synthroid, so I started taking the 100's, with the knowledge of my doctor, but by day 3, I was crying, emotional, and not feeling good at all. What does this mean? Was the 100 already not enough or should I try maybe alternating the 112 and 100, or does this mean that I need to stay on the 112?
If the doctor prescribed that dosage, then I would trust him/her. Zoloft is typically prescribed from 50-200mg, so your son is taking a 'normal' dosage in my opinion. I was on Zoloft a couple of years ago and had no major problems coming off of it. Just ensure when it is time to come off the medication work with your doctor and taper down slowly.
Thyroid disease and what medication/dosage that works to alleviate symptoms is just as individual as you are.
Barb's right when she said the healing takes time. I think you are doing the right thing, going up slowly and keeping track of how you feel, but try to relax a little, even though I know that's hard to do when you don't feel well. I wish I'd found this forum years ago, it's been very helpful.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
Hi, I'm newly diagnosed hypothyroid. I've been taking 25mg levothyroxine for nearly 8 weeks now but I just feel worse and worse. It's really affecting my day to day life much more than before - I'm a student nurse and am struggling to make it through my shifts on a daily basis. Thinking my dosage is wrong - how long does it take for everything to become stabilised again? Not sure how I'm gunna carry on my nurse training at the moment :-( any comments appreciated.
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