solumedrol rebif

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

Sheesh, this is 2nd exacerbation within 6 months...more solumedrol in 2 weeks.

Hi all! I have been gone a while....working WWWAAAYYYY TTTOOO MUCH! I miss my computer and especially all of you. I went to see a new Neuro on Tuesday and WOW what a difference. My first neuro was like "Oh you obviously have MS we will call you to set up your Rebif...see you next time" I was not impressed. So I asked my GP for a 2nd opinion. The new neuro was amazing. He actually sat down with me and showed me my MRI. He did all the physical tests I have read about.

The doctor still has not said what type of MS he has but since being dx in Feb 2008 he has had 4 flare ups and is currently taking Rebif 3x week and solumedrol for 3 days every month. Can anyone help with the info from the MRI?

Are you taking any DMDs or other meds? I had hair loss approx 3 months after my 5 days of IV solumedrol, but also started rebif & was having thyroid issues, so hard to pinpoint cause. Hair loss lasted a couple of months, then began to gow back. In addition to my other vitamins, I'm now taking Biotin ( a B vitamin) & small dose of zinc -- they can help with the hair thing.

I have been on both Rebif and Copaxone. I was on Rebif for about 5 years, and I have been on Copaxone for two. I didn't have any problems with the Rebif except for the high liver functions. That is why I am on Copaxone. I think there is no difference in the injection pain. They both were very minimal. My worst pain was in my arms for some reason. The daily injections aren't bad, especially since you don't get sick.

I have thinning hair on Rebif -- started around 8 weeks after treatment started. It gets a little better for a while, then the hair loss revs up again. I even bought a very good wig, but have never used it (too hot!). I've never had "great" hair, but these days my ponytail is the diameter of a pencil, and doesn't seem to ever get back to it's pre-Rebif state. My neuro suggested taking Biotin & zinc supplements, which I do, but not sure it's made any difference.

She worked abroad, but she experience to have flare, so came back, and met her neuro. He suggest to take solumedrol, which may help to recover. After the third day, she experienced her balance is better ('nose and index finger test') and her double vision is a little better. She said, she dont tell me, about her 'swallowing experiences' maybe now it is better. What you experienced? - side effect of solu medrol?

As far as I know, there is NOTHING that will stop a flair-up, only things to hopefully slow it down or help prevent the flair-up from starting and that is the disease modifying drugs, like Betaseron, Copaxone, Rebif, Avonex and the other one that I can never spell.... Wouldn't it be great if scientists finally found something that would knock a flair-up out in it's tracks? The only thing I know of right now, which is not an option at my age, is pregnancy....

I used them monthly for over a year with Rebif. I also was not given a taper dose. I began with three infusions every four weeks then went to three infusions every four weeks. Nothing slowed my symptoms down. I did use five days of Actar Gel but it didn't work for me. I guess my body just began rejecting the steroids. Long story short I began Tysabri. I had my first dose. I ended up in the hospital for thirty days. I was given IVSM again.

As you may know, I was diagnosed with MS in April and have been on Rebif. I have had 2 relapses while on it. The first one was just a week of muscle spasms. I am currently in the 2nd one now and it has been active since 8/11/10. I have 3 days of I.V Solumedrol the 1st of sept and have felt no relief. With this one I have been having some new things going on that do not seem to fit with MS, at least not anything I can find. So this is what I'm hoping you can help me with.

Shell, Always a difficult one aren't you girl? LOL I was confused like you because I would compare my flares with the biggest one I ever had and nothing has ever been that big. That was when the phones were ringing off the hook and all of the doctors that had dismissed me wanted me in the hospital that day! The thing is that my flares are more ON and loss of balance these days. Maybe the DMD's are "holding" me?

Yes I did the solumedrol type. My medicaid wouldn't cover the IV thing so I drank it in a shave for 4 days, then took about 10 pills for a couple days then down to just 3 pills w/i the week. I'm scared that if I don't hurry and start the Rebif , the symptoms will get really bad again. The pred. totally cleared my vision, Leg not goin out on me anymore, The only thing that is the same is my cognitive I forgot how to make a grillcheese for my 3yr old and my 5 yr old.

Well, I've now taken seven doses, and nothing has happened so far. I didn't expect it to, since the doctor told me it would be 2 to 3 weeks before it really kicks in. I'm not on Rebif or Solumedrol, but do use plenty of other meds for a variety of issues, and have experienced no problems at all. Will it help with spasticity and/or post-steroid crash?

I will start Avonex, as soon as I can get an appt with an injection nurse. I had an allergic reaction to Rebif, but my neuro feels that it was likely a reaction to something specific to Rebif- not interferon. I am also now taking Baclofen. It is helping. I still feel the "hug", and spasms in other places- but it doesn't seem to get quite as severe. I would like to still take my zanaflex, but don't think he refilled it. I think the baclofen is replacing zanaflex.

I am just coming off some massive steriods for my recent MS attack (I use rebif on a regular basis) - would the steriods be causing me to have pain under my shoulder blades and in my upper chest area? I know the steriods can cause g.i. problems and I'm taking prescription meds for that as well, but I keep having this chest pain. Thanks - if anyone is out there who has experienced this...

Mine started in September of 2005 and hasn't stopped. lol I know it's nothing to joke about but has your doctor considered that you may have progressive MS? I supposedly have PPMS. Every time I have a little flare up something else becomes more disabled. I know that doesn't make sense but I'm not sure how else to describe it. I do have days when I can use my walker but most days it's the chair.

If so, if your fearful of the Tysabri you can always go to Rebif, which is 44mg, or Betaseron 1ml vs. the 30mgs you are on w/the Avonex. And, there is always the daily Copax, which I'm sure you know has shown to work for some too - though by different mechanism than the interferons. If you stay w/interferons, least your body is already 5 months into them and it would just be an increase and sub-q. Did they treat your ON Jason?

I have been on Rebif since 2001. The combination Rebif and steroids seem to stabilize my MS. I am secondary progressive, so every few years something new shows up that doesn't go away. The result is bad coordination in eyes and hands. I still work full time and feel good, no pain at all.

Yesterday out of the blue, I developed a hoarse, raspy voice. I didn't know I had it till I answered the phone and couldn't believe the sound coming out of me. It was the MS nurse calling, and I think she thought I was crying. Because it took me off guard I didn't think to ask her opinion about it, just told her I was fine. Anyway it's the same today. No pain, no trouble breathing or swallowing. I don't have a cold or anything. Just this weird, Demi Moore voice.

m starting to feel better. I went from being diagnosed to getting the solumedrol and then to avonex a couple of days after finished the taper. I just want to see if I feel better and if I do maybe talk to my doctor about trying something different.

Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

I know steroids can make you susceptible to infections, but has anyone developed a UTI on solumedrol? I had the unmistakable first inklings of one a bit ago. I rushed out for cranberry juice and a blueberry smoothie (blueberries are supposed to have the same effect as cranberries, and it's a good excuse for a fruit smoothie!!) and I'm hoping I can keep it at bay this way, but I guess I'll know in a few hours. These things tend to come on fast for me.

Solumedrol rebif

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