solumedrol once a month

I am currently being treated with 1 gm Solumedrol once/month. I had a three day course last spring and felt AWFUL afterwards. I did eventually feel a bit better overall, so maybe it was worth it. Even the one day dose makes me feel pretty lousy. My sx actually seem to get worse for a few days afterward! I'm not dx, but symptomatically fit the diagnostic criteria (we'll see what the 3T MRI has to say...

About two months ago, it got so bad, I had to buy a suppository laxative... It helps a lot, but it still is a pain. I also get diarrhea a couple of days later, but it's not as painful or as bad as the constipation. Outside of these times, I usually can go every day or every two days. I eat foods with lots of fiber, changing my diet, and I can never predict when this will happen.

Buy some cranberry extract pills or capsules. Wal-Mart carries them at a reasonable price (their brand). However, cranberries are not likely to end a UTI once it sets in firmly. They're more of a preventative. You need to see a doc about that infection, so go to a walk-in center if need be. I doubt if the steroids could *cause* this infection, but they certainly can leave you vulnerable to one, or any other kind of opportunistic infection, for that matter. Let us know how this goes.

m high risk so I get them once a month

I had the 500 MG IV Solu-Medrol once a month when I was first diagnosed with MS for several months. I have also got the 1000 MG 5 day protocol when I have blowouts along with different symptoms. This treatment has really helped me throughout with only mild skin irritation but is well tolerated. As for the metallic taste, they usually have some rootbeer barrel candies which really do help. If you like rootbeer flavor give them a try.

There is such a thing as a severe allergic reaction to solumedrol even though it is hard to imagine that the very drug used to control severe reaction would be the drug causing the reaction! I remember there was an Epi-pen (emergency epinephrine like is used by people allergic to bee stings) in the supplies delivered to my house when I was starting a round of in-home IVSM infusions.

I was off meds for a month after my the delivery of my daughter and was still so under control that my PCP decided not to refill my Rx. After 3 months of Copaxone my morning fasting sugar is still high anywhere from 120-150. They have always been in the 70's and during my pregnancy, my highest reading was 99. I feel like I'm treating the MS at the expense of something else.

At one point this was happening about 15 times per day. I took a round of Solumedrol (3 days) and began taking 300 mg of Lyrica per day. It now happens 4 or 5 times per week. My doctor prescribed another round of Solumedrol which is scheduled for next week (30 days from the first one). I am trying to decide whether I want to do the 2nd round of Solumedrol. It made me feel horrible and was a miserable 4 or 5 days.

My eyelid swells up for a whole day every month. It happens only once a month and graduallt it comes back to normal size. What is the cause for this illness ?

s 600-625 for a few weeks. when I took prednisone and solumedrol I came down with sore throat and a bad infection that didn't respond to antibiotics and lasted 1 month. I am still wheezing several months later. what could have caused this and what can I do to treat it? the doctor seems to say it is due to vocal chord problems. I noticed on 40-50mg of prednisone a day my FVC increased from 70 to 80. thanks so much!

About a month and a half ago I had a relapse and 3 days of iv solu-medrol. I felt great for about a week and a half than I had rebound symptoms. Almost as bad as when the relapse began. I than had some mini anxiety problems, but that also happened 5 years ago after solu-medrol. My legs are starting to get a little less tingly and my hands are a little better. But my neuro said it can take up to 6 months for full restoration in some patients. So hang in there it can still get better.

Start with 4 days a week each month for a few months then 3 days a week for another couple then cut down to 2 days twice a month for a few and then (where I am now) 2 days a week a month. Gradually we will try to cut it down to once every 3 months depending on how I do. She says it reboots the over active immune system and calms things down. I have found it to be pretty easy to tolerate. About a day recovery for each day of the treatment.

When I saw my MS specilaist for my once a year visit, he recommended that I take 2 days of solumedrol each monthe while I am off the betaseron trying to conceive dear child #3. Well I have proof as of today that we failed this month. This us much more of a letdown than I expected. I as sure it is because I don't want to take the steroids again. I feel bad for days and days after, and I am starting to hadt what it makes me look like. Should I to the iv's or not?

I know that feeling... Hello, this is supposed to help me, so why am I feeling worse? For me, I did not benefit from steroids at all. I've only had them once, a 5-day course, and they made me worse. I don't know if it was withdrawal or side effects, or whatever, but it was bad. As to how long for the negative effects to go away, it took about a week for me. I hope yours goes away much sooner!

Nancy, I have never heard of using steroids to prevent a relapse. I thought they were used to help lessen the symptoms of a flair. I used them monthly for over a year with Rebif. I also was not given a taper dose. I began with three infusions every four weeks then went to three infusions every four weeks. Nothing slowed my symptoms down. I did use five days of Actar Gel but it didn't work for me. I guess my body just began rejecting the steroids. Long story short I began Tysabri.

These are the same problems I have with Solumedrol. Diabetics have a hard time with Solumedrol and it seems that insulin or diabetic pills, cannot work hard enough to get high blood sugar levels down. Here where we live in Virginia, they will not do a treatment, if your blood sugar level is about 200. This is a good drug, but very hard on someone that is prone to high blood pressure and high blood sugar.

Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

I dont have disability insurance for short term at work and to apply for ssdi you can tbe working (or at least making more than a certain threshold), which i believe is 900 a month gross. I am not in a position financially to leave my job and wait the 6 months to maybe be apprved for ssdi and then there is the insurance issue. :( Maybe someone could try to get a chat room going. Or a facebook group?

Hi Everyone, Like a copper penny, I keep turning up. I haven't been on in a while because I had an exacerbation from the flu shot. Then, Dec. 5 I started IV soluMedrol at home. Nurse came every day and infused me for 3 days, then a nurse followed up with my sugars, etc. for another 4 days. It was great..only way to do it. Ah, but then it gets even better. On Christmas Eve, my family came over and my grandson either had a cold or the flu..By the next night I was sick..

I am posting again about the MS experience with my son. Up to a month ago he was perfectly healthy and athletic 32 years old man. Then he started limping for no apparent reason and 3 days later he was not able to walk. His family physician sent him to ER and in two days he was diagnosed with MS. In a week he was up again and back to work. Now, after the initial shock, I look back at the events with a lot of fear.

1 gram of Solumedrol a day for 5 days. Woo Hoo! it makes me feel awful but I have had it once before and it seemed to stop the progression of my relapse. The relapse I had last time was not this bad. I am losing the ability to walk this time and I am not excited about how long this will go before it starts to improve again. My doc is obviously gung ho about the steroids and this time I think he may be right. I don't want to let this relapse run its course.

my first time on Solumedrol and slept all day and all night. Once home, did the same thing for 2 weeks. Occasional nausea abut 3-4 times a week, using dissolvable Zofran which works almost instantly and is great. At April appt, doc said I was right where he expected, (labs I guess) and am due to see him again in September, he said I would feel much better by then. Next Lemtrada will be in February 2017 for 3 days and NO Solumedrol, am going back to Decadron.

Hi Thanks very much, I realize that MS cannot be cured, and once the damage is done is it there to stay, What do they do when the Symptoms just do not go away, I know before Christmas, they had me on Solumedrol for 5 days, and yes it did clear up quite a lot of the symptoms, just unfortunately not for that long Is this just something we learn to live with, I am still so new to this, it is still very confusing, and i still have lots to learn, Thanks Tyler

Solumedrol once a month

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