solumedrol nih

Not sure if this is the same study, but I was also told it was funded by NIH. I had a MRI the day before surgery and will have another at my 12 week post-op appt. I was happy to participate, it is promising that more research is being done and CM is being taken seriously.

Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

I know steroids can make you susceptible to infections, but has anyone developed a UTI on solumedrol? I had the unmistakable first inklings of one a bit ago. I rushed out for cranberry juice and a blueberry smoothie (blueberries are supposed to have the same effect as cranberries, and it's a good excuse for a fruit smoothie!!) and I'm hoping I can keep it at bay this way, but I guess I'll know in a few hours. These things tend to come on fast for me.

I am scheduled Monday to do an IV for three days of Solumedrol. Has anyone else done that and if so, what is your opinion. I am alittle nervous about it.

ve had a horrible experience with Solumedrol as well.....Back in March I had extreme leg and groin numbness and went on IV Solumedrol for 3 days....I had a nasty reaction to it, but it DID take away the numbness and vision problems almost immediately....Well, within 48 hours anyway..... In May the left side of my head and face went numb and because I was visiting the MS Clinic at that time, I declined the Solumedrol treatment.....That numbness didn't go away for 20 days.....

At one point this was happening about 15 times per day. I took a round of Solumedrol (3 days) and began taking 300 mg of Lyrica per day. It now happens 4 or 5 times per week. My doctor prescribed another round of Solumedrol which is scheduled for next week (30 days from the first one). I am trying to decide whether I want to do the 2nd round of Solumedrol. It made me feel horrible and was a miserable 4 or 5 days.

I had a 4 day Solumedrol drip and then step down pack in February and it made me worse. All my muscles tightened up and I have more pain than I did before. Call it a major fibromyalgia attack. Even now in May, I am still as stiff and woozy as i was after the glucocorticoid therapy. Sigh. Did nothing for me that I can tell. I did sweat a lot during the treatment so maybe i lost a few toxins?

t help, so I had the 3 day mega dose IV solumedrol. I did not do the tapering off pills, because I was having a reaction to the medicine. Since the end of February my ankles are swollen everyday, all day. I asked my neurologist, and she said it is a side effect of the solumedrol. Any one else experience this.....swollen ankles for so long? When will they return to normal? Help please. Thank you.

I am currently being treated with 1 gm Solumedrol once/month. I had a three day course last spring and felt AWFUL afterwards. I did eventually feel a bit better overall, so maybe it was worth it. Even the one day dose makes me feel pretty lousy. My sx actually seem to get worse for a few days afterward! I'm not dx, but symptomatically fit the diagnostic criteria (we'll see what the 3T MRI has to say...

I have Kaiser insurance and they only use NIH. I may have to appeal to use John Hopkins Pituitary Center if NIH fails to meet my requirements for expertise. My biggest fear is that it's a research/teaching hospital and a resident in training will be assisting in the operation. Has any one had pituitary tumor removal from NIH and can shed some light on their experience?

What she did prescribe was 1 gm/month of Solumedrol. The nurse was supposed to come to the house today to do another infusion, but they never delivered the medicine. I dug out the paperwork to find her phone number so she didn't have a wasted trip, and found the billing paperwork. It said, "Primary diagnosis: MS" and "34 y.o female with history of MS.

Imagine what progress could be made if everyone on March 17 drank just one less beer and donated that money to NIH or to NMSS for research. This also tells us how underfunded the NIH is for MS research. I've shared this thought over on my Facebook page and encourage all of you to share it as well, it helps to illustrate how our priorities need to shift. http://msactivist.blogspot.com/2012/03/federal-fridays_09.

These are the same problems I have with Solumedrol. Diabetics have a hard time with Solumedrol and it seems that insulin or diabetic pills, cannot work hard enough to get high blood sugar levels down. Here where we live in Virginia, they will not do a treatment, if your blood sugar level is about 200. This is a good drug, but very hard on someone that is prone to high blood pressure and high blood sugar.

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

I had my first course of solumedrol Friday-Tuesday. Last night (Thursday night) I began needing to urinate every 30-60 minutes. Not like tons and tons. But also not my bladder fooling me. And it continues today! I can't get a hold of my @$&#%& neurologist. So of course my question is whether this happens with steroids. Anybody?

t used it for MS patients for quite a while because most or all tolerate the solumedrol fairly well. Wish me luck. If insurance accepts it I will start the end of this month. I'd love any feed back you guys may have on it...don't know what to expect.

This concern has been posted awhile back, but wanted to reintroduce it. I had a solumedrol treatment about 4 weeks ago. About 2 weeks later i got chills and my hands started to itch uncontrollably followed later by hives in random places (no pattern to where they were) but mainly arms, stomach, and scalp. Called my neurologist, heard back from his nurse who said there was no way it was related to solumedrol.

coming with hat in hand is how in te world do ones manage the bizarre psychotic type side effects from the IV solumedrol? I just finished yet another five course today and frankly I had hugs melt down scared my caegiver.. and fnally made th eprimary car e doc understand thath 72 hours of mania, depression, wailing, and all that jazz was no acceptable. This is the first time I have dome them in a home setting versus in patient..could that be afcator? or am I just a little nutty...

I was recommended to participate in clinical trials for PPMS by my neurologist at NIH. After getting the entire work-up again, the NIH team could not give me a PPMS dx because there were no lesions in my spine. So what should I do next? This discussion is related to <a href='/posts/show/798903'>MS or Post Viral?</a>.

I just finished a course of 5 days of IV solumedrol for my MS. I am very concerned about the severe depression I am experiencing. Any information?

The New York Times has an interesting article on the Undiagnosed Diseases Program at NIH where they are taking a team approach to trying to diagnose or identify what's going on with people who have complicated problems that have eluded diagnosis. They are also doing a lot of genetic investigation to see if they can pick up any patterns that way. http://www.nytimes.com/2009/02/22/magazine/22Diseases-t.html A couple of interesting tidbits.

i have a PICC line as I have been going through a 2 mnth relapse with my MS and I finally gave in and went to the hospital....of course it is solumedrol pumping through it but its way different than when I had an IV port last year...question though; I feel so dizzy and have feelings l want to pass out at times even though I don't pass out. is it because of the PICC with solumedrol that is giving me a different experience?

Sheesh, this is 2nd exacerbation within 6 months...more solumedrol in 2 weeks.

Had my first dose of IV soluMedrol this a.m. and my tummy is hurting. Anyone else have this problem from it, or is it a fluke. I'll make sure I get some yogurt before my next one and keep pepto handy..

Common Questions and Answers about Solumedrol nih

solumedrol