solumedrol neuro

Hey All- I was just diagnosed with ms. My neuro is a general neuro and basically told me to research the Dmds available and to let him know what I would like to try. Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

I had a 4 day Solumedrol drip and then step down pack in February and it made me worse. All my muscles tightened up and I have more pain than I did before. Call it a major fibromyalgia attack. Even now in May, I am still as stiff and woozy as i was after the glucocorticoid therapy. Sigh. Did nothing for me that I can tell. I did sweat a lot during the treatment so maybe i lost a few toxins?

Good neuro you have there to not chalk all up to MS. When did you start the Copax? All these DMDs do take time to make a difference. Hope this leaves you quickly. What are you experiencing w/this flare?

Hi - I took a 3 day course of Solumedrol 2 weeks ago. For the first few days my pain, tingling, numbless and burning went away. They are now back and more severe than prior to the Solumedrol regime. Is this normal? I actually believe I was on the verge of a flare up prior to starting the Solumedrol and believe I am now in a full blown flare up. I am seeing my Neuro tomorrow and I'm wondering if he will suggest another round of the drug.

I had my first course of solumedrol Friday-Tuesday. Last night (Thursday night) I began needing to urinate every 30-60 minutes. Not like tons and tons. But also not my bladder fooling me. And it continues today! I can't get a hold of my @$&#%& neurologist. So of course my question is whether this happens with steroids. Anybody?

I am scheduled Monday to do an IV for three days of Solumedrol. Has anyone else done that and if so, what is your opinion. I am alittle nervous about it.

I had sudden double vision and trouble walking. I saw the neuro the next day (Friday) and he got me on solumedrol the following Monday. I was on for 5 days in a row. By the end of the third day the double vision was gone and by the end of the fourth day I could read again! I still, two months later, have a little residual nystagmus in my right eye and I need the cane when out and about, but not around the house. Fatigue is keeping me off work right now.

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

just last week I started having ridiculous trouble with my right legs/hips/knees and am walking with am limp and wanting to drag that leg..am STARTING DAY 3 of solumedrol and feeling slightly improved but the pain/difficulty walking has moved from hip to knee to ankle on the right side. my question is..will this go away or will it remain? does it sound like spacticity? Do I need to see an orthopedist? PT? meds? talk with the neuro?? any advice??

I was also on monthly Solumedrol treatments until last November. I just know my neuro is going to have me go back in for infusions and I'm bummed about that.

My Neuro will only use Solumedrol if there is trouble walking (i.e. needing a cane) or I am having Optic Neuritis with the flare. She "saves" it for really severe relapses. She says that steriods are hard on the body, particularly the bones, so she reserves it for the most severe relapses. Last time I was on them, I started feeling better about 10-14 day after the last IV dose.

Hello everyone! Sorry it's been a few days, but I can barely remember what has happened.....I just wanted to make the wonderful announcement that I was finally able to have a shower today!! YAHOO!! ***CLAP CLAP CLAP*** I vow, before all you wonderful people, that I will never EVER again take for granted the "small" things in life that people do every single day without a second thought....(ie: showers, walking, brushing my teeth, going to bathroom, etc...

I miss my computer and especially all of you. I went to see a new Neuro on Tuesday and WOW what a difference. My first neuro was like "Oh you obviously have MS we will call you to set up your Rebif...see you next time" I was not impressed. So I asked my GP for a 2nd opinion. The new neuro was amazing. He actually sat down with me and showed me my MRI. He did all the physical tests I have read about.

s so rare that my Neuro is in denial that its the Copaxone; however, this has been the largest change in my lifestyle in the past 3 months. I don't want to change medications; I don't want flu like symptoms nor depression. Has anyone else had this problem and if so, what was your resolve? Many thanks in advance.

i have mild symptoms - a bit of fuzzy memory, some word recall issues, i stare a lot, i yawn a lot, i have a few small white matter spots on my brain, one could be considered an MS lesion, and i seem to be dropping things here and there. my MS neuro also said that my right arm/hand is a bit weaker than my left. i have not been officially diagnosed. his office just called and wants me to take 1 IV treatment of solumedrol - equivalent to 1 gram of the medication.

ok. Here is my question for the week. I called my neuro to discuss eye pain and other symptoms I have been experiencing for about a week or more. The eye pain is what really has me concerned. I asked what he thought about a round of solu medrol. I have never had it before. He said that he did not think that it would be appropriate and added that most of the symptoms I am complaining about, I have had for a long time.

Probably my best appointment to date with my MS Neuro at Vanderbilt today. My walking has not deteriorated much in the last two years (slowed down slightly). Put me on two new medicines to see if I will tolerate them. He also want to try an course of IV Steroids to see if that will help me due to my NEW numb (r) face and other new symptoms. Have to wait on that until I get tested for Rheumatoid Arthritis first as they steroids would mess that test up.

.......neuropathy that was related to my MS. My response was my neuro says I don’t have MS. My MRI is negative and so is my spinal tap. He didn’t think so especially after his exam where he found damage in my right foot (weakness in my right toe). He referred me to an MS clinic. The first thing the MS doc told me was that she wasn’t ruling out MS, but it didn’t seem likely. I told her I thought I was nuts and that I should be committed. She told me I was not nuts.

Has anyone done intermittent steroids? My neuro wants me to consider doing a high dose of Solumedrol one day each month for my secondary-progressive multiple sclerosis. I have done the weeklong blasts of Solumedrol once and had no overt side effects except edginess and that horrible metallic taste in my mouth from the steroids. Just wanted to see what others thought about the experience.

s office and was told that the Solumedrol is in your system for about 10 days but my symptoms would be noted and related to t he neuro...never heard back from them of course. The pain in my head has returned intermittently but usually only lasts a day at a time...the final IV infusion did nothing to rectify the pain...it was just time as usual.

I just read some stuff Quix posted in 2008 about having solumedrol at home...scary. Today I went to the neuro and he said I am getting worse. I knew I had 2 new lesions, but some other things have been happening. He gave me an order to have home health come and do it, but unless they administer it and stay with me each of the 3 days, I think I'd rather be more comfortable at the hospital as out patient as I usually do. Tomorrow I also get to go get a foot brace for drop foot..how fun.

This concern has been posted awhile back, but wanted to reintroduce it. I had a solumedrol treatment about 4 weeks ago. About 2 weeks later i got chills and my hands started to itch uncontrollably followed later by hives in random places (no pattern to where they were) but mainly arms, stomach, and scalp. Called my neurologist, heard back from his nurse who said there was no way it was related to solumedrol.

She decided to start me on 1 g of solumedrol once a month. She said she thinks that is as effective as the DMDs, but since solumedrol is so cheap, no one will ever study it (seems all the more reason to study it, to me!) I had my first dose today and the poor nurse blew through two of my veins before agreeing to do it on the inside of my elbow, which is almost the only place anyone ever gets a vein on me.

I just finished a course of 5 days of IV solumedrol for my MS. I am very concerned about the severe depression I am experiencing. Any information?

A mild episode of optic neuritis and later double vision is what got me my first MRI and Solumedrol IV. (and FINALLY dx of MS) My neuro explained that even microscopic involvement of the optic nerve can cause pain and vision problems. My vision returned to normal. I would not hesitate for a second to take steroid treatments for vision involvement. My understanding is that this treatment temporarily dampens the immune system, thus greatly slows the inflammation that does damage.

Solumedrol neuro

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