I am sorry to hear about your reaction to solu-medrol. I too am a newly diagnosed ms friend. I recently was hospitalized for my ms and took the 3 day course as well. The only reaction I had was an increase in my blood glucose which caused me to have to have insulin shots. I have heard so many different side effects that I would say yours is not uncommon. Keep your chin up, and be glad for every sunrise you see.
Famliy Dr started a Decadron taper saying that it looks like MS but symptoms worsened. Neuro started IV Solu-Medrol 500mg x5 days and today was the last dose. Still numb arm. Just curious if any of you have experienced anything like this or how long it may take to get some relief from Solu-Medrol. Any information is very much so appreciated. Kinda freaking out here!!! Thanks!
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Hi twopack, You are absolutely correct about the steroids being of two different types, However, from what I have read, I understand that they are metabolized in a similar fashion. As for Solu-Medrol making joints feel better, this would be the case with reduced swelling, but it looks like I was retaining water pretty heavily, so this is probably where the stiffness and soreness came from.
Hello,
I seen a neuro doc at ms clinic on Tuesday and he want me to get the iv treatment all next week. I pretty nervous about this I didnt do so well on the pills. I but took 20 predizone pills for 5 days back in Jan and felt pretty crazy. I've been experiencing some new sx.
Other medications are used (like the Solu-Medrol) during attacks, and to help with symptoms (like Provigil for fatigue). There are other medications that are used when the CRAB drugs aren't working, but have risks and side effects (like Tysabri).
On this site, there's a lot of information about medication and treatment, relapses, and pseudo-relapses, etc. in the Health Pages (see upper right hand corner).
i had a 3-day solu-medrol infusion last week after a c-spine MRI revealed possible myelitis. i have had all the yucky side effects from the steroids which are subsiding--thank heavens--but instead of feeling better, it seems as though my other symptoms are getting worse--buzzing, achey joints, etc.
is this typical? is it the case where things will get worse before they get better?
My last ms relapse was nearly 2 months ago and I have a lot of questions. I had a 3 day solu-medrol treatment and it seemed to help for about a week. Now I seem just as bad as 2 months ago. I also had a anxiety situation about a week ago and was put on lexapro and (clonazepam temporarily). I feel so drugged and not myself I keep reading that these side effects will go away. But I am worried.
I had my first experience with Solu-Medrol infusion in early August. My relapse had just started and was worsening daily-right before I was due to start training for my new job!
The immediate side-effects were quite obvious and well documented. I'm having less success finding out about long-term side-effects-in particular, rapid weight gain. I noticed the bloating quite early in my treatment, especially in my face and abdomen.
Corticosteroids (of which methlyprednisolone is one a.k.a. Solu Medrol) work for some types of MS relapses because they help reduce the inflammation that causes our acute symptoms. But the catch is, the mechanism of inflammation reduction is the suppression of the immune system. Not as much of an issue if you're dealing with an autoimmune disease on it's own, a much different prospect if you're dealing with a current infection like streptococcus.
Does Solu-Medrol cause bone aching to be worse and what do you find can ease this awful symptom?
All of my MRI's have shown only tiny lesions that are in my subcortical white matter and my doctor has attributed those to my migraines that I suffered in my mid-twenties. I am now 38 years old. But my doc does beleive that I am presenting with "clinical MS".
I read elsewhere that most of my current issues are withdrawal from the Solu Medrol . I was wondering if anyone else has had this treatment and how long it took to feel" normal" ? My joints are killing me, I do not sleep, sear exhaustion is an understatement , headaches and to top it off stomach pains. I did talk to my doctor and the response was that I had to feel like this to get better .
I have since had my first exacerbation in the form of ON and just finished a 6 day course of oral Solu-Medrol at home. The course of Solu-Medrol was initially supposed to be for 3 days, but there was no improvement of my condition, so the Doc decided to prescribe 3 more days worth. When I asked the Doctor about beginning D.M.D.s again, she said that I would need to discuss it with my Neurologist. I did so, and my Neurologist booked me an appointment for the end of this month.
I was diagnosed in 2000 with MS, and for years I have been getting IV Solu-medrol treatments every other month, for three days. Is it possible this affects my menstrual cycle? Can Solu-medrol cause not building up the endometrium?
Don't worry, I have had all tests: blood, bone density, ultrasound, pregnancy, and I am very healthy: un-pregnant, taking birth control, and so on. I "only" have MS. My period doesn't happen and I am way too young for menopause.
I will have my first solu-medrol treatment at the end of this week. I have read the opinion of one person who has had this treatment before and they said that you should not drive or work. It was not clear if they were referring to just hours after the treatment or the entire five day course. I really need to work, and in order to work, I really need to be able to drive. Please tell me your experience with solu-medrol, especially if you continued to work during the treatment course.
What is your actual dx? How is the solu-medrol given to you? Did you have the same reaction the first time as this? What are the doctors saying to you about it? I am currently on my 3rd day dose and although jittery, I am doign okay. It is making symtoms go away.
I am sorry I cannot help you Sherry but I am sending you my warmest thoughts and prayers that yuu will get through this. Stay focused on getting better and take care of yourself please.
My sister (diagnosed with RRMS) had a relapse 3 weeks ago, so she went to the hospital, where she get solu medrol treatment. (3 days 1000 mg/day etc. etc.) Now she take 32 mg/day.
Her sympthoms are dissappeared, but after she left the hospital, she experienced some problems, like knee pain, spinal pain, she feel her legs overburdened, and she complained yesterday, when she washed her hands in hot water she feels some tinglings.
I have a friend that went numb from the waist down and although her testing was mostly negative, except a borderline VEP, the neuro told her that he though it was MS and was going to treat her as such. She was given high dose solu-medrol for 5 days and thought she was going to die. All of her symptoms worsened and her whole body started hurting.
I then have to sit for approximately 20 minutes and I can than walk normally again. Last week I went for an infusion of Solu-Medrol. I had one infusion for 3 days at 3 hrs. each. I feel pretty good afterwards and am not limping much at all anymore. My question is regarding side effects of Solu-Medrol. I realize that everyone is different but is there an average time frame for side effects? Today is the 3rd day AFTER the infusions were completed.
Four months after a Neuro sent me back to my PCP as neurologically stable (what ever that means), I have had additional tests and as a result, had Solu Medrol infusions and will start Tysabri in January. I feel really good, and hopeful.
I want to slap the cr*p out of my old Neuro and those who continue to tell sick people that nothing is wrong. I am grateful that my PCP sent me for another opinion, without encouragement I might not have had the confidence to try another doctor.
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