What is the average lifespan, prognosis for systemic amyloidosis??
This is something I'm not very familiar with. MDS is what? I have not heard of it so please forgive my ignorance.
Hopefully bumping this up will allow someone else to see this who may be able to answer.
I'll see what info I can find for you.
I can't really comment on the treatment of your MDS. In MDS, the bone marrow does not make enough normal blood cells for the body, and this could be due to a number of possible reasons.
Usually in MDS the cause of the changes to the bone marrow is unknown. In a small number of cases, MDS is thought to be linked to exposure to some chemicals, such as certain solvents, or to radiation. MDS can also be caused by treatment with chemotherapy or radiation therapy for other diseases.
for example, I was treated first for babesiosis for several months, then was treated for Lyme, using different meds for additional months. Killing them all at once could be too much for the body to comfortably endure, and/or the meds might clash; I'm not sure what the reasoning was for my situation. I never felt worse on meds than before treatment, and gradually got better and better.
MDs who believe Lyme is hard to catch and easy to treat, vs MDs who believe Lyme needs to be treated aggressively.
The trick is finding one of the more progressive thinkers, which are often referred to as LLMDs: 'Lyme Literate MDs'. It's not a professional accreditation, just a nickname for MDs who take a broad view of Lyme diagnosis and treatment, and also know about other diseases that the same ticks sometimes bring ('co-infections.
s dance with Lyme is different, which is why it is so important to have an experienced and knowledgeable MD to work with for diagnosis and treatment. The older views of Lyme diagnosis and treatment are terribly out of date, but some MDs keep on using them, thinking they have all the answers already. It is that split in the medical community that, in my experience and reading, is as big a problem as Lyme itself.
t see Lyme as a truly serious illness may try to cause trouble for MDs who *do* take Lyme very seriously, and the result could be problems for the Lyme docs with the state medical boards. (The medical boards tend to hold to the old belief that Lyme is no big deal.)
Over time, the medical profession will work itself out, but for now, please do NOT post names of any MDs here, in order to protect them.
The docs are being less than helpful so I've taken it upon myself to get tested for Lyme – and also get my thyroid checked out (normal TSH levels but my symptoms could also be explained by hyperthyroidism and haven't had T3/T4 levels checked).
I had something come up on my foot a couple of weeks after I got back from France (after the symptoms started), but I just assumed it was a spider bite.
My question is: I've read that Lyme can be really tricky to diagnose and treat.
And on top of it all, since the IDSA is the premier group in US dealing with infectious disease, other MDs also look to the IDSA standards of treatment as the final word. So even MDs beyond ID, rheumatology, and neurology tend to line up behind the IDSA. It is a rare, independent-minded MD who can look at the evidence and think more creatively and see that their patients continue to suffer from something other than some vague 'post-Lyme syndrome.
I do not have a thyriod issue, but do have MS. I believe Lyme disease induced/triggered Multiple Sclerosis in me. Not to say that every case is caused by Lyme.
I think Lyme bacteria can be causative in alot of issues.
I think we need to try something that pertains to BRACA , a treatment that takes this reason for OUR cancer into consideration. WE live in the bowels of Alaska, its a hundred mile round trip just to see my regular onc. Please, if anyone can connect us with someone doing clinical trials around genetic reasons email us.
Making a diagnosis of glaucoma at the very earliest stage and determining who needs treatment at the very earliest stage is difficult and even highly qualified Eye MDs will differ on whom needs treatment and who needs observation. Overall the tendency (like treating blood pressure and cholesterol) is to treat at an earlier stage.
it is the home site of the International Lyme and Associated Diseases Society [ILADS], the organization for MDs and other healthcare providers who take Lyme seriously. It's a lot to digest, but when you feel up to it, go there and read in particular Dr Burrascano's treatment guidelines. It's a lot to absorb, but if you're like me, the more I know, the less anxious I am about the whole situation.
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