He has been able to walk around, but would get tired quick. After being put on the Revlimid, he also suffered from fatigue and he started to walk less and less.
He also started to lose weight.
After the change in doctor's, he initially started to improve; and he walked for a couple of days without a walker before falling and moving back to the walker.
Eventually, the Velcade started to make matters worse for him.
If the tumor was in the adrenal, then the level would be high (it would not need the ACTH to give off cortisol), and to be low just means the dex is working like it should. So a low test just has to be taken as part of the puzzle - just one of the tests - not just a single test on its own. Sadly I know a LOT of docs that run just that test and tell people that they are ok!
It is low due to the dex... my best guess.
5 for a few months, they tested by cortisol with a blood draw, and it was below 0.5. Well, then I went ahead and took the correct dose of .5 (one pill), and after six weeks they tested me again, and I'M STILL at the same low reading. Therefore, seems like this dex is SUPRESSING my cortisol, which is the exact opposite of what I need. Ye gads.
Thanks for anything anyone can tell me that will help on this dex issue.
The dex test is ... well, I know hundreds of people that have taken it. BTW the result you would want is only 1.8! The range is not printed at the lab. I know in my case and in many others, I suppressed and I had pituitary source and that is consistent with what the test means. However the doctor may take the suppression as a test of exclusion or as adrenal source. Cushing's cannot be diagnosed with one test or one set nor can the source be found easily so you really need to see an expert.
s advice and get the Dex out of your system - stop taxing Dex for 2 weeks - before testing for cortisol. And test it at 8am and 5pm the same day. Whatever the tests show will give you more information so that you can have further investigations along the right lines. While you're testing for cortisol check your other hormones as well.
Hello. I have recently been prescribed zoloft and dextroamfetamine (vyvanse). My dose has just been raised to 150 zoloft and 50 vyvanse. I am feeling dizzy, I'm sweating like crazy lying down in a cold room, and I've thrown up a few times since I took the increased dosages earlier today. Occasionally it feels like my heart has butterfly wings too. Am I just having panic attacks? I heard the dex can increase anxiety... I don't have insurance here...
79), B12=334, Monocytes low, eosinophils low, ANA negative, Rheumatoid negative, all other CBC and chem profiles are normal... including ferritin 33.4, folic acid 12.77 and iron binding cap 316.3. My most devestating symptom is the brain fog and fatigue. I have also had a cortisol test 26.2 high and then an overnight dedadron suppression test where cortisol level suppressed to point 9 (.9) low....which was good according to my MD.
I am 28 years old and have been experiencing anovulation. After extensive testing I was diagnosed with 21-hydroxylase deficiency. I have chronically high progesterone (ranging from 3-40). I was started on dexamethasone and have had success with reducing progesterone. The problem is now I am in adrenal suppression with morning cortisol >.1. I have been lowering my dose of dex but have not seen much improvement in improvement in cortisol levels.
Has anyone had similar problems?
This time, we took the test the right way, with no caffeine, no steroids (had to work off them and stay off them for two weeks to get the test done, and that was tough.) This time, my 24-urine cortisol was low-it was 3, with him saying 5 was low-normal, and that it could account for pain and fatigue, because the body wasn’t healing well, but he mostly blew it off and said it wasn't 'low enough' to cause problems.
When I try and take my dog (Dex) for a walk, within a few minutes he begins making a coughing noise. The first few gags/coughs are usually not 'productive', but then he will start spitting/coughing up clear spit more often than not. Generally this is the worst at the beginning of the walk, and generally settles down about 20 minutes in.
First positives were a 24 hr UFC 164 (3 weeks post abdominal surgery)((range 10 to 80)), and serum cortisol of 4 post 11pm low dose Dex suppression (range 5-25).
I have also completed two 11pm salivary swabs, no results yet, and I've also done another dex suppression, this time it was .5mg every 6 hours for 48hrs followed by 24 hr urine catch, no results yet.
I am beginning to think the ACTH test is useless unless it was taken with a serum cortisol.
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