rebif lifelines

I started rebif and solumedrol at the same time in July, but call your doctor.. Are call the MS lifelines??

Call MS Lifelines (the Rebif nurses) now. I think Rebif is contraindicated in pregnancy. If you don't have their number handy, find it on their website. Congratulations!! First baby?

t have that number, call your neurologist. The Rebif MS Lifelines number, if all else fails, is 1-877-447-3243.

Has anyone else gotten the new Rebidose injector? I just noticed there is no way to adjust the depth setting. I was at setting 1 on Rebif. I'm a nervous wreck about injecting tonight, because at 76#s, I have no fat.

Does anyone know if there are any statistics showing the effectiveness of Rebif if used only twice a week versus three times a week? My husband will be losing his job come the end of August, and along with that, our benefits. I figure if I start now going to only 2 times a week, between now and the end of August I can make my Rebif last for at least another month. I know this is not the best thing to do, but it appears to possibly be the only solution.

Well, I've been on the Rebif just over 3 months and I am suffering with hot & cold flashes. Do these go away? I'm not getting enough sleep at night. And my eyes have become extremely sensitive to light. But I don't know if that is connected to Rebif or just the MS. Anyone else?

I have been taking Rebif injections, since January 2010, and I have never missed a single one, until now. Up until January 1, 2012, I have received my Rebif injections, free of charge, due to the fact I had no health insurance. I became eligible for Medicare, on January 1, 2012, and so I have had to wait for MS Lifelines to decide whether I'm still eligible for their "free of charge" program.

Hello. I was on Copaxone for 2 years. While on it I experienced several flair ups, so it's time to try something else. We decided on Rebif. Can any Rebif users out there give me any input on your experiences or helpful hints. I'm pretty nervous about the side effects but I am going in with a positive attitude. Thanks for the help.

Am starting on rebif and I guess the doctor faxed the prescription to the MS life-lines program. it has been at least a week. I have reeived the welcome kit and a call that said to return the phone call however when i call I seem to be on hold every time for 30 plus minutes waiting and then noone has any info or "its too soon" My question is..how long did it take for people to get a call about starting therapy and actually get the meds delivered and get started.

My neurologist recommended Copaxone or Rebif. I have choosen Rebif mainly because apparently I have an active lesion in my neck and he said that Rebif has been shown to be quicker in "healing" the lesion. I have read about Rebif and and its side effects and starting to get really nervous. Any comments, pro or cons?

Hi Jen, We've not met. I'm Shelly and I'm on Rebif. You'll be contacted to receive your Rebif script, and a nurse covering your area will contact you to find a time to come visit (will also make sure you received the meds - which you'll keep in the fridge). He or she will teach you and whoever else you want to learn the injection techniques. The nurse will also talk to you about your MS, the meds and possible side affects, etc.

I just started Rebif 3 weeks ago and am working my way up to the full 44 mcg dose. since I started taking it, my symptoms have gotten worse. I am not totally sure if my relapse has ended, and the whole family had a bad cold over two of the 3 weeks I have been taking the Rebif so I attributed my symptoms to all of these issues.

Well I got a call from MS Lifelines yesterday morning about getting rebif. They said I would hear from the pharmacy in 5-7 days. They called yesterday afternoon,! I will be receiving my rebif on Tuesday. I feel like my heads spinning. I had my 1st appt with the PCP just 1 month ago. I've seen her twice, the neuro twice and had the VEP, LP and 2 MRIs in that month.

I'm a graduate student in bioethics, and I'm researching MS support services like MS Lifelines, Shared Solutions, etc. I'm interested in speaking with people who have had experiences with these services -- in particular the nurse hotlines and the peers/mentors/ambassadors. If you've had any experiences with these services and would be willing to discuss them with me, I'd be really grateful for your help. Thanks very much.

Hi, Laura. I've been on Rebif, 4 and 1/2 months. I started on Copaxone, but after 6 and 1/2 weeks, we found out that my "side effects", were actually a severe allergy to it, The Rebif auto-ject is easy to use, and has the finest needle. I don't even feel it go in. And that is saying something, because I am 5'2 and weigh 77#s. I take an Advil for Migraines 1/2 hour before I inject. (I didn't get them until I was on it for just over 3 months.

For help with the Rebif I'd call the LifeLines number. They advertise being available 24/7. The number is 1-877-447-3243. I would think you still need a doctor to prescribe your Rebif. Do you still have a doctor willing to treat your MS and general medical needs now that your coverage has been cancelled? There was a topic recently with info about financial assiatance for drugs. I'll see if I can find that one. Otherwise I'm not sure what your options are.

She thinks I have both rrms and secondary progressive because of 7 years without treatment, She will start me on rebif I am not happy with injections but if I can get some of my symptoms resolved it will be a good thing , I want to thank everyone here for the support and engorgement to go on even when I felt like giving up.

Let us know how you make out and what if anything you think Rebif may have to do with this. I start Rebif next week and am keeping fingers crossed that it doesn't disagree with me. Another thought --- have you tried calling the Rebif patient support program to tell them about the hives? Perhaps they have heard from other patients with the same problem? Good luck to you.

Are the shared solutions nurses not the type to come to your house to look at the spots personally? I know the MS lifelines (Rebif) nurses make themselves available to patients for that. If not, I'd call the Docs office to have them look at it just to be sure. Ask the Dr. how many patients he/she has on Copax? And, if this looks normal. It's just not something that can be described away - it should be looked at.

My neurologist suggested MS lifelines ( part of the company that manufactures Rebif) and they have been wonderful! They have a website, and an 800 number. They are providing me with the medication, and whatever assistance I need at no charge, for a year. (They also appreciaate referrals) Just google MSLifeLines for their site.

Rebif lifelines

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