He does take prevacid and ursodiol for GERD, and is on TOBI, Cipro (for pseudamonas) and the usual Pulmozyme, enzymes, etc, etc, etc.
How are these related? How can we prevent pleurisy? Will it reappear later as we fight CF? Will having had it affect his long term prognosis?
s when necessary. Nebulized mucolytics (meds that break down mucous) such as Pulmozyme and mucomyst are helpful. Chest physiotherapy is also important to help loosen the mucous in the lungs as well.
Asthma is separate, it is bronchoconstriction, with inflammation that is reversible with medication that opens up airways such as albuterol.
Call your local pharmacist. We at MedHelp are not allowed to give out dosing instructions. Your pharmacist will be able to tell you exactly how to dose the medications. If your regular pharmacy is closed on Sunday, call any pharmacist availabe at your local grocery store or drug store such as Walgreens, CVS, or RiteAid.
I also neb mucolytics, meds that break down the mucous so that I can pass it easier. I take pulmozyme for this, but also take hypertonic saline (also nebbed) and in the distant past, Mucomyst.
I was diagnosed with secondary autoimmune adrenal insufficiency in December. I feel lousy most of the time, have chronic abdominal pain and abnormal stools, and feel best flat on my back...which doesn't work well for someone who works 12 hour shifts in a busy ER while selling one house, building another, and has 2 teens and a disabled husband, lol. Here's my question. If a person has say diabetes, their meds are based on their blood sugars.
If you are on triple therapy for genotype 1 and undetectable then your doc is following AASLD protocol for anemia management
Anemia developed among recipients of both PIs. Hemoglobin decreases below 10 g/dL (grade 2 toxicity) occurred in 49% of patients who received a BOC regimen compared to 29% of those who received the SOC
regimen, whereas 9% had a hemoglobin decline of <8.5 g/dL (grade 3 toxicity).
ve been found to have extremely low cortisol and have been following the dosing chart on *************************. Basically every 3 or 4 days you increase by 2.5mg if you haven't seen it.
Initially I was feeling slightly better on one dose of 2.5mg each morning then a day or two after being on two doses of 2.5mg I started to feel very spaced out, dizzy, exhausted and confused.
I read somewhere that ideally you should raise your dose every 2 weeks or so.
Would you agree with this?
It is pretty effective I believe. What nebs does your doc have you on? I am on pulmozyme (breaks down the DNA of the mucous, thinning it), hypertonic saline...also breaks it down, TOBI for my pseudomonas (if you culture pseudo, this might be a good drug for you, it is a nebulized form of tobramycin, I rotate 28 days on and 28 days off..it does a fairly good job at keeping my pseudo at bay) as well as pulmicort and Xopenex. Lots of nebs....
Usual questions concerning dosing down. I was at 50mg - down to 28 this week. Been going down 5 mg a week. From what I read that is fast but our clinic is over $400 a month and I can't afford it any longer. So far I've been fine, no problems at all. Some anxiety here and there, but that's normal for me. I am just looking for some withdraw stories for people who dosed down to 1mg from a clinic.
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