Its kind of the same feeling i had after my transplant when i was on hi doses of prograf. Any ideas ? Can i try lowering my prograf to try and alievaite this cognitive impairment by adding maybe some cellcept? I have never been on anything but prograf alone except prednisone 6 mo tx .My mouth stays extreamly dry tounge seams to be affixed to my roof of mouth with a tight jaw week muscels and eyesight since contrast. nobody seems to be able to offer any direction.
I'm 61 years young and had a full liver transplant 2 1/2 months ago. Prograf levels go from 7 to 13.6 back to 6.5 Could it be the new lab that is screwing up. I take all 52 pills on time dailywith a wonderful hubby making sure.
I have taken prograf and cellcept for 12 yrs. A month ago I went nito renal failure.The kidney Dr. said it was from the prograf that this happened. The liver Dr.disagrees and is putting me back on prograf lower dose. I have been taking prednisone in the mean time . Kind of worried this will happen again. Anyone else have this problem in the past and what was done about it .
Thanks , any input would be welcome !
My current dose is Prograf 3 mg AM/ Prograf 3 mg PM and Rapamune 4 mg AM. The intent is to convert me to 100% Rapamune because of the nephro-toxicity of the Prograf and my young age and because of the anti-cancer properties of Rapamune. Data, while horribly limited, has shown Rapamune's anti-cancer properties have had success against vascular tumors such as mine so EHE, in this case chronic, is part of the cancers Rapamune affects (some cancers it has no effect).
Thanks alot ladies I did take a test and I'm not, I am definitely using confirms and working in getting birth control me and my husband don't want anymore babies right now..
I went into rejection twice in the hospital and because of this my transplant team saw it best to put me on 5mg of prograf twice a day as well as 4 mg of rapimune, which by the way was off label and i had to sign a release form for. Just within the past 2 months they lowerd my dosage of rapimune to 2mg but kept the prograf the same. My question to you is exactly how suppressed is my immune system?
Yes exactly what she said.
Ok I plan on breast feeding and am taking my pump to the hospital to pump while I'm there to help with labor but also so my boyfriend can feed him too has anyone breast and bottle fed successfully I plan on going back to work as soon as my paid maternity leave is up as well soi won't be able to strictly breast feed I'll be pumping and bottle feeding then but I want my boyfriend to have that bonding time with our son before then
I would recommend strictly breast feeding, it's the best thing for your baby. I was only able to breast feed my daughter for 3 months before I dried up, if I hadn't I would still be breast feeding and she's 8 months now.
I planned on breast feeding, but I did buy a sterilizer and bottles anyway (will need them eventually) and I couldn't breastfeed so im thankful for having tjem already, my other half had to run out and get formula after a few days of trying. So much easier when everything already done. And I had my bottles already clean just in case.
First, congratulations on breast feeding! Pumping is definitely a chore and you're to be commended for doing it exclusively. As for pregnancy, the hormone produced by breast feeding shuts off your period. As long as you don't have a period you're safe. Pumping should work as well in that regard as regular breast feeding deos. Whenever you stop pumping or slow down considerably, that's when you should start using protection again.
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