This is a clear criminal act. How come FDA is not allowing the safe to use Mesalazine Enema, which has been used for years in Europe and Canada? I am not certain how I can spread the word so that all UC patients who are suffering can get benefited. Please spread the word and let CCFA know that this drug needs to be made available in US. I have to buy it from UK or Canada at my own expenses. This is outrageous when I am paying so much for insurance. Please advise.
I have UC and Pentasa 2grs/day for 2 years - Oct 11 (4 protected vaginal and 4 unprotected BJ, 1 deep French Kiss - all CSW in Germany) after 5 weeks: hi fever, major fatigue, heavy sore throat, mouth blister, chest congestion. Then on Dec.
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
Thanks for your reply. She is already taking Ciproflaxin,plus Flagyl, Pentasa and Welchol.
In assition, She was presecribed the steroid enemas to combat ulcers which fomed between the pouch and her anus; which is so contracted (possibly from the lack of solid stool for 20 years?) that with the constant irritation of liquid stool, cleansing and shrinkage she says it too painful to insert the tip of the enema bottle.
JUST FORGOT TO TELL YOU THAT I AM SUFFERING FROM ULCERATIVE COLITIS SINCE 10 YEARS AND NOW I AM ON MESALAZINE 800 MG TWICE DAILY. I MAY BE SUFFERING FROM BOTH UC AND CROHN'S DISEASE. MY WEIGHT IS ONLY 35 KG AND I AM HAVING MESALAZINE SINCE 10 YEARS.MY HB LEVEL IS 11. PLZ REPLY TO THE ABOVE QUESTION ABOUT MY HEART.
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
I AM 18 YEARS OLD. MY PROBLEM IS THAT THROUGHOUT THE DAY MY HEART BEATS IN A FUNNY MANNER. LIKE THERE ARE 5 TO 6 REGULAR BEATS AND THEN THE NEXT BEAT COMES AFTER A SLIGHTLY LONGER PAUSE. I HAVE HAD ELECTRO AMD ECHOCARDIOGRAMS AND THEY BOTH WERE NORMAL. I GET VERY SCARED WHEN THIS HAPPENS. I GET PALPITATIONS. I AM THE KIND OF PERSON WHO PAYS A LOT OF ATTENTION TOWARDS THESE THINGS.IS THIS CONDITION DANGEROUS????
I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse.
I am on Cimzia and Pentasa 4grams a day, for the Crohns itself, Dicyclomine for most bowl and rectal spasms (works in calming down the need to go), and Tramodol 100mg (8 max a day) though I sometimes use more.
Strange thing, the Tramodol acts like a diuretic and with the Dicyclomine, tends to control the pain and symptoms to the point where I am functional again. Although, if it wasn't for the Pentasa and Cimzia , I would be in the hospital or going crazy from the pain and discomfort.
A family friend (who gave birth 35yrs ago) said that before she delivered she received an enema. Do they still do this?? She also told me morning sickness starts in the second trimester and i definitely know that is wrong lol.
My mom told me that in the hospitals Some of them give you Enemas and I really don't want one!! Unless I for some reason need one, but she also said they do it as a precaution so the baby doesn't swallow or breath in BM. I'm all for it if it Needs to be done for her safety but I'm not sure about it.. Any stories or advise.
Has anyone had to use a enema or went to the er and had one done? Should i try it myself or go to er? Does it hurt? What should i expect? Im really nerves and kinda scared :( never had any of these prob. Be4 and this is all new to me..
No enema
Self-administered or given by nurse
If constipated at onset of labor
To start or stimulate labor
At times, enemas have been able to start contractions. Doctors or Midwives might want an enema performed to help stimulate or speed labor. The decision of whether you will or will not need an enema should be discussed with your doctor or midwife during one of your prenatal appointments.
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
This was after many different tests for different things. I was on Prednozone and Pentasa at first. I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other. Please ask anything. It's like having a baby, all modesty is out the window.
He prescribed her half a tablet of Tryptizol every night before going to bed against nausea and one Pentasa Sachet every night before food against irritated bowel disease.
Moreover, she did a Gastroscopy which didn't show anything.
Can anyone of you help or might have had a similar experience? Is the doctor right with his treatment suggestions? She is also on the pill (Yasmine) which she started only in May though but wasn't taken while she was in Canada and the pain subsided.
I have been suffering from chronic ulcerative colitis (UC) over the last twenty years. I’m in control of it and lead almost a normal life. I’m currently on 3 grams of Rafassal (Mesalazine) and 200 mg of Imuran (Azathioprine).
My last colonoscopy revealed multiple areas suspicious of low grade dysplasia (LGD) in sigmoid colon and recotoanal junction. There is also doubt they might be high grade dysplasia (HGD).
My doctor advised that these LGDs be removed.
i have uc 2 years ago i have no diahrea no belly pain just some time see some blood when i go to bath i take pentasa 4 pills per days for 8 mounths i i didn't see any blood from the first 10 days when i started to take pentasa i stopped to take it 7 mounths but then the bleeding back then i started to take pentasa again but since 3 months but bleeding never stop come and god ,,,i heard that vitamin D, yoghurt , banana, fenugreek,tumeric..
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