I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
I have ulcerative colitis for a few years, I been in hospital a couple of times but the last time i was in it was due to the pain killing drug meloxicam for joint pain. I am almost sure celelbrex is in the same family, so to speak, as meloxicam.. I ended up losing the lining of my stomach. I had had a problem with anti flams for a while and i new i couldnt take celebrex as i had terrible cramps in my stomach.
I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse.
I've been having digestive problems since June 2007. My doctor, after diagnosing many things including IBS, decided to send me for a CT scan of my abdomen and some blood work. I am now waiting to hear what they did or did not find.
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
Stress does not help my Crohns at all which is something I need to work on. The pain and bleeding seem to get worse everytime and no I feel that nothing is working. I am dubious about having the Methotrexate treatment but also know that something needs to be done. Would welcome any comments or advise.
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
Hi,
My daughter, age 14 1/2 at the time, came down with pancreatitis this past July. It was acute, and painful but her amalase and lypase levels were not extremely high. Nevertheless, she was hospitalized for 4 days on IV until her levels returned to normal. They said they didn't know how she got it. Ever since the pancreatitis she has been in pain just about every day (and missing quite a bit of school). It doesn't seem to make a difference as to the types of food she eats.
I seem to have all the symptoms of nausea, fatigue, tummy pain AND really bad back pain. No-one else seems to have the back pain which worried me until I saw your post. I get it right at the base of my spine, but also into my left buttock and up my back. It aches and aches so bad some days. So I sympathise with you. I went to the Chiropractor about 10 time and now I am with a physio to see if he can help. Have you had an MRI or CT scan on your back? I am considering having to ask for that.
Japan has not done any drugs trials for this and prescribed oral pentasa to me, which let to an almighty flare. They prescibed pentasa liquid enemas, then steroids liquid enemas, then oral steroids all the while I am getting thinner, but puffier (thanks steroids!), my knees were very painful and my eyesight was blurry. I flew to the UK (nightmare 12 hour flight) + few hour transfer.
I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other. Please ask anything. It's like having a baby, all modesty is out the window. Crohn's is a scary thing, hard to understand and sometimes depressing to deal with.
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
i have uc 2 years ago i have no diahrea no belly pain just some time see some blood when i go to bath i take pentasa 4 pills per days for 8 mounths i i didn't see any blood from the first 10 days when i started to take pentasa i stopped to take it 7 mounths but then the bleeding back then i started to take pentasa again but since 3 months but bleeding never stop come and god ,,,i heard that vitamin D, yoghurt , banana, fenugreek,tumeric..
I left out my daughters autonomic symptoms - she has dizziness, lightheadness, confusion, tachycardia upon standing, blood pooling in her legs, positive tilt test, she also has joint pain that travels from one joint to the other, plus neck pain, and debilitating fatigue.
right now, she is on Florinef, cymbalta, Pentasa (GI), salt pills, dextrostat, vitamin d, iron, birth control pills, multivitamin, vitamin C, L-carnitine.
thank you for this post however im still concerned by this as im still told that she cant take any thing like the pill or have the injection because it apparently can put her in a lot of pain due to her tableets not working properly. is this true?
In fact I almost went on it, aside from the fact I have joint pain and generally have to take a narcotic for it.
Your aunt needs to watch her diet, figure out what makes the symptoms worse. For me its fiber, any veggies that are not cooked to mush and sometimes milk. She needs to have a decent calorie intake along with the right nutrients. I suggest going on boost with a low residue diet ( mayo- clinic has the diet on there website) during an acute flare.
His symptoms are as follows:
Fatigue & Severe Weakness – He said yesterday that it is now hard for him to open a Gatorade bottle and he used to be able to lift at least 150 lbs and do hard labor.
Severe Stomach pain – The pain is so intense it sometimes will drop him to his knees.
Severe Diahrea – He goes to the restroom up to 30 times a day. He can’t seem to keep much food down and is now having ensure and Gatorade go right through him.
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