I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
Has anyone used Celebrex for their Crohn's? I have severe joint point pain and I have been told that Celebrex is a huge help for this. I am wondering about side effects and medicine interactions.
Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse. Do I have crohn's, lupus, what????
I have been on several different medications since then and am currently taking Imuran and Pentasa to control my disease. The Crohn's seems to be under control. For the last year, however, i have been having a pain in my lower back (actually it is more in my buttocks). My GI doctor didn't seem to think it was anything, probably a muscular thing. Went to the Chiropractor 7 times to no avail.
I've been having digestive problems since June 2007. My doctor, after diagnosing many things including IBS, decided to send me for a CT scan of my abdomen and some blood work. I am now waiting to hear what they did or did not find.
My daughter also takes pentasa and WAS taking prevacid. The prevacid didn't seem to help her and our GI switched her to prilosec. My daughter has had no complaints with the prilosec. Both prevacid and prilosec have the same actions so they do the same things. The only interaction that I know of with prevacid and penicillin is with a type of penicillin called Ampicillin and it may inhibit the absorption of the prevacid.
Stress does not help my Crohns at all which is something I need to work on. The pain and bleeding seem to get worse everytime and no I feel that nothing is working. I am dubious about having the Methotrexate treatment but also know that something needs to be done. Would welcome any comments or advise.
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
Hi,
My daughter, age 14 1/2 at the time, came down with pancreatitis this past July. It was acute, and painful but her amalase and lypase levels were not extremely high. Nevertheless, she was hospitalized for 4 days on IV until her levels returned to normal. They said they didn't know how she got it. Ever since the pancreatitis she has been in pain just about every day (and missing quite a bit of school). It doesn't seem to make a difference as to the types of food she eats.
I flew to the UK (nightmare 12 hour flight) + few hour transfer. Was prescibed 1g pentasa suppositories, stopped all other meds and tapered the oral steroids and all symptoms stopped within 10 days.
I've just started a flare when in the UK for xmas (had doxy... antibiotics which I think triggered it) and doc prescribed asacol foam enemas- FX they will work. I will buy a few boxes to take back to Japan and avoid another flare.
Your answer brought me back to logic for the first time and I checked the symptoms of Pentasa and Ulcerative Colitis and as you said most of the symptoms are related to them.
I would like to forward my warmest appreciation for your input and to be honest, the last two months made me suffer but helped me appreciate how much I love my family, life, and God hence no more sexual sins would be committed in this life.
God bless you Doctor and regards to Dr. Cumming as well.
I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other. Please ask anything. It's like having a baby, all modesty is out the window. Crohn's is a scary thing, hard to understand and sometimes depressing to deal with.
I have had Crohn's 4 years and was on Pentasa and 6MP successfully for the first two. I have frequent problems with my esophagus. My doctor actually put me on Diflucan today for a really swollen throat because he thinks I have candida. I actually couldnt eat all day because it was so bad. It feels constricted, full and heavy. Does your tongue look like thrush? You know, white and furry, like little babies who nurse? It might be as simple as that.
I am 59yo and was diagnosed today (Tuesday) with shingles. I have had Crohn's for the last 5yrs and am on 5mg of Prednisone/day as well just being switched to Lialda 2.4gms/day (from Pentasa 4gms/day) one month ago. I was started on Famvir today-500mg tid. I am leaving for Hawaii on Wednesday and am scheduled to swim with the dolphins on Thursday. I have completed my first full day's dose of medicine and will continue until the prescription is completed.
After a while the noises and joint pain may go away, but the joint continues to undergo damage. It just becomes quiet and the pain gets transmitted to the other parts of the head. The patient who experiences once a month headaches, along with a poppin joint, eventually becomes the twice a week headache patient with no joint noises.
Vision: The trigeminal nerve is responding to a muscle and jaw joint compression by irritation of its maxillary/opthalmic division.
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