Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse. Do I have crohn's, lupus, what????
Welcome to the gastroenterology community! I think you should find a different GI doctor. Pentasa Sachet is for IBD (inflammatory bowel disease) which the colonoscopy says she doesn't have. She probably has IBS (irritable bowel syndrome) which is something completely different. Has she tried eliminating different foods from her diet like lactose and gluten?
hi guys im 6 weeks pregnant and have uc / im currently on azathoprine/ pentasa granules/ doc says these meds are safe in pregancy? has anyone else been in my situation?
I have proctitis and don't think people with IBD ever go into remission.
The only thing that they acchieve is less pain and symptoms that makes life bearable. So, in essence if you ever get to the place where you enjoy life again then you will see that you have been in really, horrible PAIN! This is like putting a frog in a pot of water and turning the heat up: He will stay in the pot until he cooks to death.
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
Japan has not done any drugs trials for this and prescribed oral pentasa to me, which let to an almighty flare. They prescibed pentasa liquid enemas, then steroids liquid enemas, then oral steroids all the while I am getting thinner, but puffier (thanks steroids!), my knees were very painful and my eyesight was blurry. I flew to the UK (nightmare 12 hour flight) + few hour transfer.
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
2 yrs. ago. Daily I take Pentasa 4g/day, 50mg of 6mp plus folate. Four mos. ago probs started. Mild muscle soreness in forearms, then traveled to hands, legs & feet. No severe cramping. My arms would tingle and go numb from the shoulder to my fingers. My legs and feet would ache and also get a numb/COLD feeling and tingling sensation. It would be intermittent and switch from side-to-side and limb-to-limb with no obvious pattern.
My daughter (14) has Crohn's disease, and it's treated with Pentasa (8 pills a day). Right now she is an a flare, and is on tube feeding every night where she is getting 80% of her nutrition for the day.
She gets extremely tired when she is in a flare, and has an extremely hard time to get up in the morning. Is there any kind of supplements or vitamins which can help?
She is also having joint and bone pain in her right foot and knee. Anything that can be done there?
Thank you!
I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
I am on Cimzia and Pentasa 4grams a day, for the Crohns itself, Dicyclomine for most bowl and rectal spasms (works in calming down the need to go), and Tramodol 100mg (8 max a day) though I sometimes use more.
Strange thing, the Tramodol acts like a diuretic and with the Dicyclomine, tends to control the pain and symptoms to the point where I am functional again. Although, if it wasn't for the Pentasa and Cimzia , I would be in the hospital or going crazy from the pain and discomfort.
I was told i had IBD about a year ago. I noticed that every time I drink, my right side and my right lower back throbs very very bad. Is drinking a bad idea when you have this? I dont drink often, maybe twice a month. It doesnt only hurt when i drink it hurts most all the time but worse when i drink. Could the pain be my colon?
Ibd is basically Ulcerative colitis and chron’s disease, they are both chronic diseases that cause inflammation in your intestines and other spots, I’m not a professional gastroenterologist or anything but since my uncle has chron’s disease I know a thing or two. Even after surgery you will still have a bit of Ibd symptoms, you seem to have a lot of bleeding that doesn’t seem to be caused by hemorrhoids.
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
This was after many different tests for different things. I was on Prednozone and Pentasa at first. I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other. Please ask anything. It's like having a baby, all modesty is out the window.
Another method of treating this form of arthritis is to gain control over the inflammation in the colon due to IBD. The arthritis symptoms will usually lessen when the IBD is quiescent. IBD patients being treated with prednisone often get a bonus side effect of relief from joint pain.
Spinal arthritis (Spondylitis)
In spinal arthritis, symptoms could appear months or even years before the onset of IBD.
i have uc 2 years ago i have no diahrea no belly pain just some time see some blood when i go to bath i take pentasa 4 pills per days for 8 mounths i i didn't see any blood from the first 10 days when i started to take pentasa i stopped to take it 7 mounths but then the bleeding back then i started to take pentasa again but since 3 months but bleeding never stop come and god ,,,i heard that vitamin D, yoghurt , banana, fenugreek,tumeric..
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