I had some side effects from it such as nausea and hair loss to a certain extent. The nausea was fixed by taking it at night which seemed to really help.
Being on it did not eliminate me from other meds as I am currently back on prednisone 40mg for a month due to a flareup. Pentasa and Asacol never worked for me either.
I guess in short every medication works for different people in different ways. I dont know if this helps...but I hope you get it sorted ou! All the best!
Japan has not done any drugs trials for this and prescribed oral pentasa to me, which let to an almighty flare. They prescibed pentasa liquid enemas, then steroids liquid enemas, then oral steroids all the while I am getting thinner, but puffier (thanks steroids!), my knees were very painful and my eyesight was blurry. I flew to the UK (nightmare 12 hour flight) + few hour transfer.
I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
7 itchy pimples left triceps–since then tongue thrush–colon disorder-minor diarrhea– urge to vomit– lower back pain-burning penile tip for 3 nites–weight loss 2KG–apettite loss–6 tiny wht dots under tongue till date–minor tongue ulcer–night sweats till date–lack of good sleep till date
J4 HIV Antibody: negative 84 days post 1st risk & 34 (2nd)
J6 brown spots on back not sure if had them b4–occasional dry cough–recurrent mild fever for 4 days
J10 WBC 6.
My doctor increased my 6-mp which as caused my hair to fall out. I am now back on steroids and about to start a 12 week course of Methotrexate injections..... I feel like I have lost the last 3 years of my life and do not know what to do next. Stress does not help my Crohns at all which is something I need to work on. The pain and bleeding seem to get worse everytime and no I feel that nothing is working.
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
i have uc 2 years ago i have no diahrea no belly pain just some time see some blood when i go to bath i take pentasa 4 pills per days for 8 mounths i i didn't see any blood from the first 10 days when i started to take pentasa i stopped to take it 7 mounths but then the bleeding back then i started to take pentasa again but since 3 months but bleeding never stop come and god ,,,i heard that vitamin D, yoghurt , banana, fenugreek,tumeric..
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse.
I am on Cimzia and Pentasa 4grams a day, for the Crohns itself, Dicyclomine for most bowl and rectal spasms (works in calming down the need to go), and Tramodol 100mg (8 max a day) though I sometimes use more.
Strange thing, the Tramodol acts like a diuretic and with the Dicyclomine, tends to control the pain and symptoms to the point where I am functional again. Although, if it wasn't for the Pentasa and Cimzia , I would be in the hospital or going crazy from the pain and discomfort.
My symptoms include, diarrhea, bloating, abdominal pain, mucus/white tissue in stool, mucus in stool, some blood in stool, loss of appetite, passing out, sweating (especially if i get up and do stuff), fatigue, joint pain (especially in my knees & hips), head ache, increased frequency of stool. I'm in jeopardy of losing my job due to attendance and I'm getting really frustrated. I'm also a mother of a 3-year old, so its interfering with my relationship with him.
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
I'm losing hair too. Not in clumps but I clog the drain once a week from my hair loss. And all my friends said their hair was so full and healthy during pregnancy and after lost some. I get a ball of hair during evey wash and its not normal for me also my scalp itches like crazy and I don't have bugs lol o had my husband check lol!
I lost a ton my first pregnancy. I was taking OTC prenatals. This time around my doc recommended prescription prenatals and I haven't had any hair loss or breakage this time. And bonus, the prescription prenatals are free with Affordable Healthcare Act!
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