Neurontin for interstitial cystitis

Common Questions and Answers about Neurontin for interstitial cystitis


1344197 tn?1392822771 DMSO was the first drug to be FDA approved for the treatment of Interstitial Cystitis. Other medications used include Lidocaine, Heparin, Sodium Bicarbonate, and Elmiron. Instillations are often done weekly or every other week. Treatment of spasm of the pelvic floor muscles should be considered in patients when present. The use of physical therapy can improve symptoms in many patients. Intravaginal Valium, which has potent muscle relaxing properties, may also be of benefit.
Avatar n tn This amount seemed to be sufficient, until this past year, when I was diagnosed with fibromyalgia and interstitial cystitis, thus increaseing my pain and causing a lot of unrelieved BT pain. I've never been one to like to take strong meds like this, and never allow myself to become addicted, but,as a mother,(amongst other ADLs and committments), I have to take my meds in order to get out of bed some days and function, due to the severity of my pain.
1113762 tn?1266119076 I take 8 vicodin and 6 neurontin a day just to stay semi-functional. Obviously the vicodin is for pain, and the neurontin is for neuropathy in the kidneys. My doctor says that with all of the stones I have passed that the inside of my kidneys behave like and amputee patient. They think some of my pain is "phantom" pain. Just like the amputee still feels pain in the limb that was removed. My kidneys are thinking that I am passing a stone even when I am not.
Avatar n tn 49 yo female, On warfarin for 2 yrs for APS: (showers of splinter hemorrhages, poss. PE 2 early misscarriages, 1 very diff preg- but healthy baby :), 2+- 8hr srokes R eye, 5 burst vessels in digits & 1 in lower leg after strong pinching pain and release then large bruise. Migraine daily for 3 months, Meniere's 30 days, episodic acute abd. symptoms `4x/yr). Since Warfarin get 4 splinter hem. at a time, occ numbness & tingling. Did have 1 yr.
Avatar f tn I have fibromyalgia, degenerative back disease and interstitial cystitis. For the past year, I've had pain and a feeling to stretch my legs which my doctor diagnosed as restless leg. I was treated with neurontin and ultram and the feeling went away for a couple of months. It's now back with a vengence and nothing is helping. Sometimes walking helps, but not always. I'm at a loss as to what this is and the doctors seem to be also. I really need help for this. If anyone has any ideas, etc.
522415 tn?1242941355 Hi, I have had Fibro for almost 7 years in addition to Trigeminal Neuralgia, Sphenopalatine Neuralgia, Cluster headaches, TMJ, High Blood pressure, Interstitial Cystitis, Crohn's Disease and Reflux. It (Fibro) started really bad then got better once I lost weight and excercised regulary no matter how much pain I was in I would atleast walk a little. I as with everyone else tried a ton of stuff.
Avatar f tn All other causes were ruled out, other than possibly being on the antihistamine atarax, and pain medicine ultram for my interstitial cystitis for several years now could have been the root cause.??? I wonder what you think of this? MY pain Dr. doesn't think my neuropathy is from the lupus, he said it wouldn't be so severe, but I know my body, and I feel that it is either that, or the medicines aforementioned that I no longer take.
Avatar n tn Well, I take Plaquenil for the lupus; Inderal for my heart; Losec for my stomach. You are right. These health problems can be very depressing. It is so strange to be young and to be worried about your heart. And I must admit that I am always afraid that my heart may become worse someday soon. I try not to think about it but it isn't easy.
Avatar f tn Because I've just had two surgeries one for my bladder and one for endometriosis we're going to begin treating it with nutrients for the metabolic issue and neurontin for the fibro and see how things are in a month instead of my having yet another procedure(not to mention if they biopsy my thigh but the problems in my arm, the test isnt reliable). But if I am not feeling better in a month I will opt for a the biopsy as to try and get a confirmed diagnosis.
Avatar n tn Briane, I don't mind the questions at all. I take 800 mg neurontin 4X a day for depression, it is also a good med for nerve pain which is the cause of my depression. I have an autoimmine disease called interstitial cystitis (IC) that gives me severe bladder spasms, also nerve damage from my two back surgeries at L5 S1--my feet are affected and I walk with a cane. I don't have any side effects from the neurontin, at least not now but I think I remember being lightheaded at first.
Avatar n tn I have interstitial cystitis or painful bladder syndrome. I have, last time I was checked, 14 hunners ulcers lining my bladder. I can hold 95cc of urine before I have to empty the bladder. I urinate 60-70 times per day 12-15 per night. I am considering the Interstim implant.
623131 tn?1223061075 Hi, newbie here. I have been dx'd with Pudendal nerve entrapment and interstitial cystitis. I have had the gamut of tests and procedures. I went to Houston back in 2002. I had the nerve block in the Alcock canal done, PNMLT (motor latency tests)and Doc Renney's eval done. I was a candidate for surgery and had it done. I was one of the earliest patients and the surgery was considered controversial then because of limited surgical outcomes. I am 30% better.
Avatar f tn I am taking 8 vitamins a day along with Neurontin, Zanaflex, Bentyl, Celexa, and Phenergan for nausea. The neurontin and vitamins has helped my mobility. Before I would alternate between a walker/ wheelchair to having very few problems. I wish you the best of luck.
192368 tn?1224207730 i do go to a pain management specialist, but all he does is give me Lyrica and Hydrocodone (which makes me throw up, however is the only thing that half way helps the pain) Interstital cystitis (comes and goes) Insomnia--I never sleep for more than 3 hours or so Irritible bowel syndrome (have had colon surgery for that, but my stomach is a mess) headaches like crazy retinal detachment in both eyes (2 years ago, better now but still see "floaters" occassionally) constant burning pain
Avatar n tn He knows it is something though. Along with everything else, I have interstitial cystitis, I don't know if this just happens to stand alone. If anyone has any thoughts or suggestions I would greatly appreciate them!!! Thanks in advance for any guidance you may offer!!! Have a great day!
Avatar m tn Hi, I've never been any kind of forum before so please bear with me if I don't understand some if the lingo people use. At the beginning of pain treatment (of which I will post my history following my question) starting with Percocet, to which my body did not like the acetaminophen, then 10mg of rapid release OxyContin, to 20mg rapid release, then switching to Oxyneo 20mg twice daily. (Percocet and OxyContin were as needed) and NOW I'm taking the 30mg Oxyneo twice daily or every 12 hours.
367247 tn?1310679253 I would like to suggest you investigate the possibility of interstitial cystitis - an extremely painful urological condition that often makes its presence felt initially through painful intercourse. If you find you are frequently taking trips to the bathroom too, then this is a real possibility. It is quite rare and very difficult to diagnose without surgical exploration. I would be interested to hear how you get on.
460948 tn?1232305722 Here's a full list of what I have and it continues to grow as now I have an appointment on May 13th with a well known neurologist. Interstitial Cystitis, Mellody Sponge Kidney Disease, Pelvic Floor Dysfunction, IBS, Fibro, Lupus, Hyper Joint Syndrome, and finally newly DX with Intention Tremor. While I continue to hold strong against using opiates I must say that I feel defeated with all of these medical issues and they only continue to grow.
Avatar f tn I have interstitial cystitis (diagnosed 2/2012) and fiber myalgia (diagnosed 8/2012). I have been tested for Cold Urticaria. The current diagnosis is aquagenic pruritus. That does not explain why it only happens when the temperature outside drops. I can jump in a cold pool outside in the summer or indoors in the winter and nothing happens. My neurologist can not rule out SFPN. Again, the closest place I can get tested is Cleveland Clinic. Does anyone know what this could be?
Avatar f tn I have interstitial cystitis (diagnosed 2/2012) and fiber myalgia (diagnosed 8/2012). I have been tested for Cold Urticaria. The current diagnosis is aquagenic pruritus. That does not explain why it only happens when the temperature outside drops. I can jump in a cold pool outside in the summer or indoors in the winter and nothing happens. My neurologist can not rule out SFPN. Again, the closest place I can get tested is Cleveland Clinic. Does anyone know what this could be?
Avatar n tn Even without a diagnosis, it might be worth trying one of the therapies suggested, or maybe gabapentin/neurontin. It did not work for me. Neither did Zonegran. I tried them for the other nerve problems, but sorry to say, they didn't work for this either. Well, good luck, with both kinds of docs if you decide to follow up, anyhow I know your misery. you are not alone.
Avatar f tn I have a condition called interstitial cystitis diagnosed by cystoscopy with hydrodistention (done under anesthesia)- it can cause painful spasms, a lot of pain, frequency in urination and occasionally, urine samples show traces of blood. An immediate relative of mine has spasms in the pelvic floor and takes valium generic (least amount he can get away with) to help so sitting is more comfortable.
172715 tn?1285498090 That night I woke up with bad pain, it had inflamed my Interstitial Cystitis. So I stopped it again. I am debating whether to try it again. Even if it does not inflame the Interstitial Cystitis I can not take it if causes me to be constantly hungry and over eat, and therefore gain weight. I would like to be able to take it. There are so many meds with weight gain as a side effect, cant they make just one that has weight loss as a side effect?
1113762 tn?1266119076 Neurontin 800 mg four times a day= neuropathy in kidneys Vicodin 7.5/500 mg four times a day= pain Zanaflex 4 mg every 8 hours as needed= muscle relaxer for the splinting muscles Zofran 4 mg every 6 hours as needed= nausea Diphenhydramine 50 mgs every 4 to 6 hours= itching associated w morphine Morphine 5-10 mg every 6 hours= pain for renal colic Dont give up....It has been a rough journey to get where I am. So many people tell us that it is all in our heads....As much as I hate to say it...
Avatar f tn I have endo, pcos, fibromyalgia and interstitial cystitis PNE and PFD. I am 35 I have been on Elavil Trofanil Ditropan Elmiron, Neurontin, Topamax Dolobid. Have had an interstim implant in my hip. 38 weeks of pt, nerve blocks, instillations, hydrodistentions, DSMO, botox. I have 1 of the top IC specialist in the world. We have no insurance. Ny husband suffers from CMT disease, if you dont know what it is look it up.
492652 tn?1252949008 A year after having the surgery I was diagnosed with interstitial cystitis and also urethral stenosis. I've been dealing with occassional pain from both for 11 years now. A couple months ago, I noticed I was having the same pain I had before my surgery. I was wondering if anyone has had a reoccurance of vulvar vestibulitis after surgery? It could very well be something else, since it's been 11 years, but the symptoms are all the same.
Avatar f tn I could fall back to sleep just fine, but it was interrupted quite a bit. Have you seen a Urologist? They might want to check you for Interstitial Cystitis. I was checked for this as well, but it turned out I just had Irritable Bladder, which is very common for people who have fibro. It does sound a bit crazy to treat the pain by treating the sleep cycle too, but both are really important if you do have FM. If I don't get enough sleep, my body will hurt more.
Avatar n tn They use it for a lot of things and I take 800 mg 4X a day, from my psychiatrist for depression, but my urologist wanted to give it to me for my interstitial cystitis and it also helps the back pain I have that's referred to my feet because of nerve damage following surgery at L5 S1. I've been wanting to ask a question here about that but the forum is always full when I check. I've seen you ask questions in the cardiology forum too.
Avatar n tn Due to my realpse I participate in a professional diversion program. I've been taking Ultram for chronic pain (along with Neurontin and wellbutrin) for about 3 years now. I've done well. Have never had "that" feeling with any of my meds, and have not had a desire to take them other than as prescribed. Unfortunately, my diversion program is now insisting I stop Ultram because it is addicting. Have any formal studies been done?
Avatar n tn I have been diagnosed with Interstitial Cystitis and though they have me on many medications my pain has worsened. I've found that some of my worst pain happens when I need to have a bowel movement. I have to really push and then my movement is a few hard balls. I usually feel better after this for a little while. I hurt from just below my navel down and inside. Sometimes I have spasm like pains that double me over. I take about 5 aspirin and lay down till they take effect.