neurontin and lupus

when i was first hospitalized in o4 the drs said that there was either a case of lupus going on or something like ms. lupus was actively persued and ms not, as my ana was 180 which was extremely hign so thats my story. what else can mimic ms?

She has almost become crippled by this hip problem and pain and pain meds and Neurontin do nothing to help. Her fatjher has Multiple Sclerosis and I am desperate to find out what is wrong with her. She is becoming very depressed to be so sick at such a young age. She also has IBS. Do you see anything about all her symptoms that could indicate something?

We are still in the process of ruling things out. FMD is treating her for Shingles with Valtrex, and Post Herpatic Neuralgia with Neurontin and Vicodin, but nothing has helped yet! Haven't considered Lupus at all. Her vit. D, and B12 has been historically low, and she is on supplements for both. Oral vit. D, I give her B12 injections monthly and levels have been normal! Diabetes has been ruled out already.

I have a new prescrition for neurontin and I will be trying that within the next few days, but with all my previous disasterous trials with so many other medications I can only hope I don't have a severe reaction to this neurontin. I did read that one of the regulars on this site takes neurontin and has had success with this med for pain and/or anxiety control.

My question is has anyone else experienced the pain and burning in their feet and if cell what did you do and if you took neurontin how long before you began to feel better and what was the dose. thank you for any and all advice.

t tell that it helped me very much. I also took Neurontin for several months also. I guess it works well for some people and for others the neurontin did better. It costs so much more than the neurontin even with my insurance. I no longer take either of these and can not tell much of any difference with my nerve pain. I think it really does depend on the individual, not everybody responds the same to the same med.

My psychiatrist is thinking about it for my anxiety, since nothing is working since a terrible and weird and untreated Paxil withdrawal four years ago. And to the poster, she says it's okay to take with klonopin, if that's any help, since I'm on klonopin and asked her about that.

But, her pediatrician has just upped her Neurontin and started her on Mobic. So, we are praying that these combined will bring her more relief. We are hoping to raise enough money to get her to the Chairi Institute this year. I hope that this can article can be helpful for those of you that are struggling to help loved ones understand how debilitating Chiari and Syringomyelia are. Hope you are feeling well, Selma!

I have a 5mm Chiari, with alot of symptoms. I've been seen by the best and passed around by the rest! I have myoclonic seizures, spasms, and twitches (over 500 a day!). Trouble with my gait, lose of smell, blurred vision, head pain, exshaustion, memory problems... and the list goes on. The one thing that seems to keep everything under control is predinsone (I also have Lupus and EDS) I'm at 35mgs a day right now, and that makes almost all of the symptoms go away.

I was prescribed 2400 mg of neurontin a day which to me seems like a lot. I had a cold the other week and it was just a normal cold, which with my luck postponed the chemo. Now after I got over my cold I tried to cut my neurontin down to 1600mg a day, and do I evwer feel weird, so I increased back to where it was which doesnt help anyway. It has taken me over a half a hour to forty five minutes.

Were you tested with MRI for MS, blood tests for Lupus, and/or RA. My neurologist tested me for above, blood tests came back positive for Rheumatoid Arthritis (RA), I need to have more specific blood tests to rule out Lupus as well. I must have had a "flare up" at the beginning of all this that is why I went to the Doctors, Podiatrist, Orthopedist, and finally to the Neurologist who is now sending me to a Rheumatologist.

I am taking a strong dosage of neurontin and I have the same effects as described. I can sit for up to 5-7 minutes before a flow begins. Not sure if it is the neurontin or a pain medication. I have nerve damage and need both medications.

Yes I became parinoid and and anxious I got off it immediatley and switched to kolonipin which works well for me

That is what I call Tweeks, you get tweeked and more pain for about three days to a week. I was on Neurontin and actually have myofascial pain but they thought it may have been a nerve at first. The neurontin didn't do a thing for me. I was on 1200mg/day and it took me two months to get off of it because I got insomnia and had to take benedryl to get off of it and be able to sleep. It is low on side effects except feeling tired and dumb.

I'm taking the generic form, just recently resumed but have used it in the past. Neurontin is Rx-ed for nerve pain as an "off label" use, that it, treating nerve pain is not the function for which it was designed so it's not listed as a use on the manufacturer's label. It is actually an anti-seizure med, but it was found to also reduce neuropathy in patients. It is my understanding that Lyrica works much in the same way, and is a newer medication by the same company.

The problem many people have with Neurontin and meds like it is they start at two high a dose and increase too fast. That maximizes the sides effects and they stop it, when it might have worked wonders. Then it goes on their *bleep* list. Neurontin is not used for sleep unless the problem with sleep is with neuroapthic pain or paresthesias. We had a pain management doc visit us a while back and he wrote a couple Health Pages for us. You might be interested in both.

Hello I have a question about neurontin. I recently stopped taking tramadol after 13 years. I had a very difficult time doing so. I stopped Dec 6. My doctor put me on neurontin but I think I am now having withdrawal symptoms from neurontin. I have been taking about 900 mg a day since September. It gives me a lot of side effects such as drowsiness and the inability to think quickly.

I have been on Neurontin (Gabapentin) for 7 years and recently the pressure in my eyes is high and it's possible the drug has caused this. My pupils react slowly to changes in light and my left one is always bigger than the right. I have extremely bad neuropathic pain all over my body and I have tried many other drugs but none work that well and I am not sure what happens next.

I was given some sample bottles to try, but after reading the possible side effects and the possible effects from stopping its use, I decided to try some other ways of dealing with my neuropathy.

but if its going to help I willtake it...My right leg has alot of nerve damage and deep scar tissue and it bothers me pretty bad...but for some reason they wont prescribe me pain meds that I can just take when Im in pain...they want me to take this one so I have to be on it all the time...I kinda feel like they think Im a drug addict or something and I want to yell at them....its so hard to chase toddlers around when your limping...Im a stay at home mom by the way...

This is all so interesting and I thank you for sharing. I take Neurontin ONLY at night bc it helps me sleep but I otherwise hate the way the drug makes me feel. It surprises me that it is abused, but that would explain why lyrica is controlled-it must have some abuse potential. The kicker on this all is that I don't have an addictive personality. I allowed myself to become addicted this time, but I'm in my late 40's. If I ever get out of this mess,I'm not going back.

Hi j503, I want to welcome you to the Pain Management Forum and let you know that we are glad that you have found this Forum. I nedd to let you know taht there are NO Doctors on this Forum ONLY CP (Chronic Pain) Patients that help each other with their own expertise and experience that they have gained from their own Pain issues. I'm sorry that you aren't getting any relief from your Neurontin.

Do you feel that this is related to stopping Neurontin ??? Also, are Neurontin and Lyrica the same drug? I have been hearing this, but have not found anything to support this in my google search. Do you have any opinions about the use of Neurontin for opiate withdrawal? Nauty..........

I have many issues with my back including 5 surgerys and I have also taken Neurontin. It has not been effective in my teatment for pain but it has been effctive for my nerve issues. Good luck with everything.....

I stopped taking it suddenly after my detox because of the same issues you are having and never had a problem - and my dose was twice yours and I was taking for a much longer period. You should not have a problem.

I use Neurontin and it works wonders! At 1200mg/day, I started having side effects (balance and vision problems) so I had to back off to 900mg/day. I am thinking about giving Lyrica a chance after this pregnancy when I go back onto meds.

Neurontin and lupus

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