levaquin lyme disease

I saw a Rheumatologist today hoping to get some answers and they just did more blood work and told me to come back on April 14. He said that it could be Lyme Disease but I did have a Lyme test shortly (within a day or two) of being on prednisone for over two weeks and it came back negative. I am at a loss. He is doing a Western Blot along with a lot of other blood work. Could this be Lyme Disease? If not, what other options?

Hello everyone! I'm new to this site and to Lyme. I've been doing so well on Levaquin for 30 days. Infact, I've been feeling great! Last week, I began having pain in joints and neck. I know Levaquin can cause this, but so can Lyme. I'm not sure if I should stop taking the Levaquin now, wait and call my doctor on Monday, or try something else first? My doctor is not a Lyme doctor.

I had Bartonella, and might still have it. I was surprised when the antibody test turned up "not negative" at IGeneX as I didn't think I had any symptoms. But there's so much overlap with Lyme, that it's hard to know which is causing the common symptoms. I had the "preponderance" of neuro symptoms, as Dr. Burrascano describes it, when Lyme and Bartonella are both present.

There are two Virginia Sherrs in Pennsylvania who write about Lyme. One is a psychiatrist (retired, I believe) who has written stories about how she got Lyme and was told by various MDs that perhaps she had a psychiatric problem. The other one is a GI doc and wrote this article to explain what Lyme + Bartonella do to the gut. Burrascano's Advanced Topics paper also talks a bit about Bartonella. http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf Hope this helps! P.S.

Often Lyme patients have Bartonella species co-infections, and in some areas these occur at almost the same high incidence (30-60%) as Mycoplasma (40-70%) co-infections in Lyme Disease. Treatment can be a problem if multiple co-infections are present, and I have a table to explain the multiple treatment used by practitioners like Dr. Richard Horowitz, an expert on treating co-infections in Lyme Disease. I was going to post the table, but the format did not work out.

Thank you for that link. And a sarcastic thank you to the FDA for FINALLY putting that warning out! Since at LEAST 2001 people have had terrible and long-lasting and sometimes horrible side-effects from the use of those drugs. I don't know if people here remember the anthrax scares after 9-11 when several high officials were sent anthrax in envelopes. "Tuesday, September 18, 2001, one week after the September 11 attacks.

I had what I thought was an evil flu or Lyme disease--body aches with an other-worldly headache that caused pain in my jaw. No fever or stuffy nose, but mucus dripping down the back of my throat. Whenever I bent over and my head was upside down I saw stars--my first clue that I had a sinus infection of some kind. I am on round three of antibiotics (now on levaquin) and while it's holding the infection at bay it doesn't seem to be eliminating the infection, either.

Europe already knew about Borreliosis before Lyme. It is actually a misunderstanding to call it Lyme Disease all over the world. Borreliosis is a more appropriate name. In Europe, there is b.burgdorferi, but more common is b.garinii, which rarely causes arthritis, and usually results in neuroborreliosis. There is another species in the more Eastern parts of Europe called b.afzellii. It causes a nasty and distinctive skin discoloration and swelling. Then there is b.

The "official" position on Bartonella by the CDC and the IDSA is that bartonella henselae is a mild disease that is usually self resolving (the immune system takes care of it without meds). When many LLMDs began pointing out that a lot of Lyme patients also had Bartonella, the "official" response was that, no, we do not get it from ticks, even though it is proven that ticks carry the disease.

I do not have a lyme dx but I am working with my neurologist on it...I am also looking for an LLMD in my area. I am sure that I will have no trouble finding one near Philadelphia. I have a question about antibiotics. Since 2001, I have what I thought was an allergy to Cipro. Took it for an upper respitory infection for 3 days and had terrible problems. The Dr then gave me Levaquin, took for 7 days, with the same side effects.

As I read your description, I imediately thought of Lyme Disease - sounds classic. What kind of testing for Lyme was normal? Was it the ELISA or did you have a Western Blot? Do you know what the strength of the MRI machines was? Your initial symptoms do sound like you had a localized lesion in the thoracic spinal cord. But, the way the symptoms then generalized to involve the entire body does not sound at all like MS.

HI, - just wondering how long you have been infected with lyme? Could your other health probs. be part of the lyme?

I also got tendinitis from levaquin so they changed me to minocycline. If cipro is in the same family as levaquin then it should start to help the Bart's, if that is what you have. Best wishes....

the reason Lyme Literate Medical Doctors are familiar with Bartonella, is that it shows up a lot in Lyme patients. Ticks that carry Lyme also carry Bartonella. Since Lyme is immune suppressing, Bartonella with Lyme is generally worse than Bartonella by itself. Most doctors are completely unaware of Bartonella, or think it is nothing to worry about. I have it, and I had to spell it for my PCP after I got diagnosed by an LLMD, because she had never even heard of it.

I believe that chronic Lyme patients will benefit from a biofilm buster not because of Lyme Disease research, but because of other research into biofilms, like the promising work going on in BC. Sorry I don't have a simple answer to your question. There are some supplements that are claimed to help break up biofilms, but I don't know if they're scientifically proven or not. I read good things about Nattokinase, so I've been taking it faithfully for several months now.

wughead My LLMD would say that you have lyme specific bands and if you were having symptoms of lyme disease, he would treat you. He says that antibiotics help like 97% of people with specific bands for lyme with symptoms. Do you have a lot of neurological symptoms??

I had an old friend who had had Lyme some years before, so I knew a bit about it, and took the positive test results to a Lyme specialist, who tested me again and diagnosed both Lyme disease and another infection often carried by the same 'Lyme' ticks.

To be honest, even though I tested WB/IFA CDC positive through Igenex, I was a little skeptical about really having Lyme disease with all the contradicting information and since I had no rash. I can now say with confidence that I atleast have a spirochetal infection, because these J-H reactions are like nothing I have ever felt. I saw some videos on YouTube of other people having severe J-H reactions, and it's comforting to know that I am not alone.

thanks everyone, Ive been in touch threw the years with I consider the best lyme Dr. around, hes in BC. he still says its lyme. Ive been told i have everything under the sun, even hospitalized 7 yrs ago for meningitis for 10 days. My Dr. here in NS treated me for three months with the help of Dr. M then **** hit the fan, so that was the end of that. I was in today to see my psychiatrist ( cause Im a nut you know) lol. my legs and arms started to twitch really bad...

Not medically trained but before my igeneX tests came back I followed Burrascano protocol of doxy, then Flagyl, then off a week, it was a rotation but you can't drink with the Flagyl. If you think you have Bart's I would stay on meds because a month will not cure anything. My igeneX results came back positive for Bart's the first time. I went on levaquin with minocycline but had to stop the levaquin because I got tendinitis. Most people dont get it.

Well after the positive lyme test, their daughter refused to accept the lyme diagnosis and treatment for lyme. Why ? Because she was already addicted to painkillers and I think the lyme disease had by then affected her decision making (as well as all of the drugs she had been taking). This young woman had been taking so many painkillers, that when the producers and camera crew arrived at her apartment to film her, they found her unconscious on the floor.... glass shattered around her !

Are positive Lyme Disease Titers registered in the chronic stage of the disease?

Many docs say it is, but there is a substantial minority opinion that Lyme is a much more complex disease than run-of-the-mill infections and requires much longer treatment, because the Lyme bacteria have particular characteristics that allow them to evade a short course of abx: the Lyme bacteria have a very slow reproductive cycle, and antibiotics are effective mostly when the bacteria are dividing, therefore a longer course of treatment is called for, as is done in tuberculosis (usual treat

Levaquin lyme disease

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