Ketogenic diet in patients with myoclonic astatic epilepsy
Common Questions and Answers about Ketogenic diet in patients with myoclonic astatic epilepsy
ketogenic-diet
Sorry about your son. There is a movie you might want to watch concerning epilepsy. The movie is "First Do No Harm". It is a true story concerning the use of the Ketogenic Diet with good results in treating epilepsy in children. Sure wish you the best with your son.
t the only benefit of a ketogenic diet, which has been found effective in treating epilepsy, reverses type 2 diabetes, and preventing heart disease. New research indicates the low-carb, high-fat ketogenic diet fights depression and bipolar disorder.
In fact, Dr. Westman said people who follow a high-fat ketogenic diet experience improved health across the board.
"Here at Duke, we use mainly the low-carbohydrate, ketogenic diet to treat diabetes and obesity.
We ended up with the last resort being the ketogenic diet. After the diet she was put on Depakote for maintenance....its proven to be the most effective drug for her.
Her known triggers for her myoclonics that cluster are fore most illness, followed closely by stressed and also flashing lights.
Anyways...my daughter is 18, but functions near a 2-3 year old level. She is semi verbal, a lot of swearing, always seems mad/mean.
She is on a ketogenic diet to help with the Lyme, so she gets low carbs, no sugar or processed foods, no dyed foods, no grains.
I have called her pediatrician and scheduled an appointment to evaluate her, but thought I would ask here as well, because it'll be two weeks before they can see her.
Thoughts, insights? Anything specific ringing a belly that I should look deeper into? Is there a connection to children's emotions and lyme, or is this two separate issues?
About 12 years ago or so (I was in my late 20's), I was diagnosed with myoclonic epilepsy. This diagnosis came after many test and many failed prescription treatments.
I am sill unable to find any information on myoclonic epilepsy in adults. Does anyone know where I can get more information relating to this.
Are there any adults here that have the same problem? And if so, would you mind us sharing our problems. I sure would like to have someone to talk to.
Thanks!
just checked what a ketogenic diet is, this type of diet is extremely unhealthy and damages livers of any person hbver or not
The ketogenic diet is a high-fat, adequate-protein, low-carbohydrate diet:
high fat damages the liver
adequate-protein is ok but from vegetable or little white meat, no red meat, no diaries
low-carbohydrate leads nowhere, it is processed and refined carbohydrates to increase blood glucose which makes damage, so the problems is refined cereals not not carbohydrates
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He has an excellent reputation and a 6th sense about things related to epilepsy, according to many health professionals we spoke with in the hospital 3 yrs. ago. He pretty much says what you wrote above, about each patient being an individual and he believes it is worth the trial with my son of trying to wean him - so I guess we will go with it. Thank you so much for your excellent advice and patience.
Palatal myoclonus is a regular, rhythmic contraction of one or both sides of the rear of the roof of the mouth, called the soft palate. These contractions may be accompanied by myoclonus in other muscles, including those in the face, tongue, throat, and diaphragm. The contractions are very rapid, occurring as often as 150 times a minute, and may persist during sleep. The condition usually appears in adults and can last indefinitely.
sir my son aged 01 yr is suffering with myoclonic epilepsy. his Mri brain reveals reduction of white matter. he is unable to sit stand talk or holding any thing . we are giving him sodium valporate since last 09 month now it is stopped we are also giving him methylcobalamine nitrazepam 7.5 mg once a day , lamtac 10 mg twice tab canitine 250 mg thrice a day. when he was 02 month he was giving jerk to his head forward 20-25 times thrice aday.
My 1 year old son is suffering from ailment diagonesed Myoclonic epilepsy, when he was 2 month old we observed seizure inwhich he was putting his head front(slam seizure) for 10 to 12 times at a strech twice or thrice in a day.His MRI brain reavels sgnificant reduction in volume of white matter pre dominantly involving bilateral frontal temporal and parietal lobes.Medication given is sodium valporate, nitrazapam, lamtac,.
These can occur alone or in combination with seizure types or epileptic syndromes, absence epilepsy, myoclonic epilepsy, etc. Myoclonus is brief involuntary twitching of a muscle or a group of muscles. It is a medical sign suggestive of underlying nervus system disorders like multiple sclerosis, parkinson’s disease, alzheimer’s disease, serotonin toxicity, some forms of epilepsy. It may originate from lesions of cortex, sub cortex and spinal cord.
If the answer is yes, she might have juvenile myoclonic epilepsy. It usually only starts in puberty but there are always exceptions when it comes to medicine.
Another alternative is progressive myoclonic epilepsy which seem to fit her symptoms a bit more. There are 6 different PMEs each with their own defining symptoms but they all have certain symptoms in common which include generalised seizures (previously known as grand mal), myoclonic seizures, ataxia and progressive dementia.
The majority of patients with a diagnosis of any brain tumor, will experience at least one episode of a seizure.
I'm no brain surgeon, lol!, BUT the brain lining is NOT a protective barrier!
This means that any compression from the tumor is likely to affect the lining and not the skull, right?
Now should this tumor indeed cause compression on the adjacent neurons inside the lining , this alone would mean a possible interference on neuron communication which is via electrical signals.
During sleep, there was mixed frequency delta and beta activity, all with vertex waves and sleep spindles in a normal configuration and distribution. Ocasional left frontocentral sharp waves were noted during sleep. No clinical accompaniment is noted.
IMPRESSION: This is a mildly abnormal study with left frontal sharp waves during sleep, as described above. Background otherwise normal for developmental age and there are no eletric clinical seizures recorded.
Hi to you.
First of all, i hope you check back...I know how painful it is to watch what you see. I agree with teddybear...get a second opinion.
I too am not a doctor, but have had 18 years experience with my daughters seizures. My daughter was diagnosed with infantile spasms with intractable myoclonic seizures ( uncontrolled) I am not in Any way saying this is what's going on with your little one, what you describe is what I see in my daughter.
Nathan was started on a diet for Seizure control...Ketogenic Diet. He had his last grand mal seizure the 3 day on the diet. His muscle and drop seizures ended 2 months later completely, but we noticed they were less harsh with each one he had til they just stopped." - excerpt from KetoGenic Diet for Seizures.
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