Eithne01,
The treatment of chronic myeloid leukemia (CML) has changed significantly since the late 1990s, with the development and subsequent approval by the Food and Drug Administration of imatinib (in 2001), the first of a class of medications called tyrosine kinase inhibitors, which target the specific abnormality that causes CML.
Before that time, patients were treated with other therapy, including interferon and bone marrow transplant, and had very poor outcomes.
My doctor told to come for additional test in two weeks. Now my WBC is 1.3 and absolute neutrophils count is 0.04. I was told to stay home on antibiotics. How long it may take for my counts to clime back to safe range. And of course, I'm off gleevec right now. Does it seem that dose of 400mlg is too high for me.
I have been diagnosed with CML since Novmber of 2007. I am still a little confused about some things. and i guess when my WBC's got back to 4.5 I was excited and thought I was all good- In the clear huh... Well in less than a month my WBC's dropped back down to 1.8 and they say that I am good as long as I don't go past 1.5. Ok fine. I don't go back for another month and I already feel like **** and have had pneumonia 2x in the past month.
My 24 year cousin is my best friend and was just diagnosed with CML and her doctors are very optimistic, but she has so many qiestions she is scared to ask. They are going to put her on the "Miracle Pill" will she lose her hair? Will is hurt her chances of have children? As optimistic as the doctors are, is there any chance that this is a fatal condition?
We are scared should we be?
Fortunately for me I have a fantastic Dermatologist who explained the Melanoma was very shallow (.2mm) and was able to remove the Melanoma with a wide excision.
Now, fast forward 17 months and 11 other mole removals. My Primary Care took some blood work and noticed one of my liver enzymes (SGPT) was mildly elevated (60). Since I had Melanoma she sent me to get a cat scan of the Liver, gallbladder, pancreas and all the other goodies in the RU quadrant.
m a 28 year old male, not super fair skinned, Mediterranean descent, with no family history of melanoma, and no major sunburn as a child. After becoming curious how many moles I had, I counted 117 total across my body, with the vast, vast majority being tiny spots, like pricks of ink from a pen. Most of them are on my arms. I'm actually not sure if they're all moles or if some are freckles, but I decided to count them all as moles just to see what the number looked like at the end.
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What’s concerning, no scaring the hell out of me is that to my knowledge, you can’t just TELL the difference between an atypical mole and melanoma just by looking at it. And the fact he called it atypical means it shares visual characteristics with melanoma, which to me means IT LOOKS LIKE MELANOMA. I don’t know if his use of the term “right now” was a definite or if he just wanted to ease my mind but with a disclaimer.
For your own peace of mind, see your primary care provider (PCP) and see about getting a referal to a dermatologist. Even a PCP can determine if there is any reason to be concerned about Melanoma, but a dermatologist is still a good doctor to go to. If cancer is still suspected, either the PCP or the dermatologist will refer you to an oncologist. Nevertheless, it might not be Melanoma. So, don't hit the panic button just yet.
The best one is Melanoma, which is pure and natural. Melanoma is what the staff at a rehab center had me on after day 4 from pain killers and benzos. Also explain this to your doc, he might write you a very small prescription of Ambien. I mean a small amount like 5 or 10 at the most. But try the melanoma first. Great job!!!!!!!!!!
Hello,
I can understand your concern regarding melanoma. It is the most common cancer in women aged 25-29 years and is second only to breast cancer in women aged 30-34 years. Hereditary factors are important causes and similarly sun exposure increases the risk. But there are many other risk factors also like atypical/dysplastic nevi (particularly >5-10) and common nevi> 100.
Melanomas are usually >6 mm in size,with irregular borders ,asymmetrical and dark in color.
Melanoma-astrocytoma syndrome. People with this rare condition have an increased risk of melanoma and astrocytoma (a type of brain tumor). The specific gene for this condition is thought to be located on chromosome 9. Families with both melanoma and brain tumors have been shown to have alterations in CDKN2A that affect the p14ARF protein."
You can get the genetic testing for this if you are worried.
thank you for commenting, I have 2 other kids who have appointments with the dermotologist coming up, both again have many freckles and moles. My son's melanoma was on his face between his eye and temple and the freckle grew and turned black very quickly, it was just over early detection. He had to heave a large skin graft and sentinal node biopsys done. 3 nodes were negative but 2 had "nevic, mole cells" in them.
One other question, does this mean I have a high chance of developing melanoma? I had a mildly dysplastic mole last year and then this. I have virtually no moles and only a few freckles, no family history and I take aspirin daily (supposed to reduce melanoma 30%) to prevent recurrence of colon cancer.
Now I am terrified that it was a melanoma and I have scrapped it off and the cancer will start growing without me knowing. Can you scrap off a melanoma? If it was a melanoma will the pigmentation grow to the surface again? Does melanoma heal? I know if I go to the gp they will not refer me to a dermatologist and can not afford to pay privately.
I got diagnosed in Febuary of this year with a cataract, my optomitrist refered me to a specialist, and when I went to see him in November, there was a tumor within my eye, and subsequent retnal tearing. He booked me in for immediate surgery as he said it was eye melanoma. My surgery is in about 2 weeks. My question is; would my untreated cataract for at least 1 year cause, or attribute to me getting eye melanoma?
Hello, I had a suspicious mole on my neck removed in June and it came back as mild-moderate dysplastic nevus with differential diagnosis of early melanoma in-situ. The area was re-excised with 3mm margins. Since then I have had the slides re-evaluated by UPenn Dermatopathology and their diagnosis was Severe dysplastic nevus with differential diagnosis of evolving melanoma in-situ.
My other Question is, what else I can do what are my chances of survival and reoccurrence, it’s been a year and 1 month and im scared every day and worry worry all day it’s very stressful for me, I just don’t know what do expect, im seeing them every 3 months and I did go for 2 other dermatologist and oncologist back then and now im still worried,,,,
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