And you can always change your mind later, although you should give a drug at least a few months to work. And yes, there’s a chance it might not work out for you, but MS progression definitely won’t work out for you, and so you are right to try to attack your MS with something.
I have a ton of experience with Avonex, and it has served me well for more than eight years. I don’t like needles, so I did try Gilenya for a couple of weeks, but I came back to what’s tried and true for me.
I started on betaseron (betaferon here in UK) 2 weeks ago, so have so far injected 7 times. On nearly all the injection sites I have a slightly raised red area, approx 1 1/2 - 2 centimetres in diameter, not at all itchy or bothersome in any way. Where I did the first 2 injections I now only have very small marks, more like tiny bruises.
I suppose I am looking for someone to tell me it is ok to ignore this. I don't want to go to the doc or MS nurse and risk the drug being stopped.
The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me.
My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.
I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ???????????
I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???
I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.
I will try to answer your questions.
> Fingolimod isn't yet approved all over the world? so it cant be prescribed in hospitals yet? big chance i cant find in Australia and carry on with my betaseron injections.
Fingolimod is currently not available anywhere outside of clinical trials. I know they did large phase 3 trials and that they had trouble recruiting enough people. I don't know if they're still recruiting.
I have been on Betaseron since 1995. I have not had an attack since I started using the Betaseron. 3 1/2 year ago I slipped on the stairs and landed hard on my tailbone. A pain shot up through my back and gave me a terrible headache. Over the next few days, my leg started going numb. Went to the doctor and he sent me for x-rays and gave me muscle relaxants. Nothing on the x-ray. Sent me to my neurologist. He examined me and said it was MS and had me take three courses of solumedrol.
I hope that my being here does not mean that I am going into a flare cuz looking back it seems that I can document my flare history around the times I manage to get to the forum.
Its not that I don't love you guys, I have been trying to be here more, but I just don't have the energy. I have had a lot going on over the last few months and I decided to ramble about it in my journal for those who care to read it.
I started it in July of this year after giving Betaseron a try. My life became a living h*ll on Betaseron. It was definitely not the drug for me. My doctor went over all of my options, but at that point trying another shot was not going to happen. Ty I would never even consider since I have children to raise.
Anyway, I knew going into the appt that I wanted to try LDN and was prepared for a fight to get an RX for it.
They are suppose to strip my membranes how does that work? Does it hurt.
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