have been diagnosed with Chari malformation type
1 and have been looking on the net to try and find out more. Only thing is that all these different sites seem to tell me different info so I was wondering if anyone here knew…?
-Will the symptoms progress and how quickly? (I curerently suffer with headaches, neck and arm pain, numb/tingly feet and legs, hiccups, dizziness, occasional black outs.)
-Can I lead a normal life if I don't have surgery?
- How successful is the surgery on average?