I had a multi nodule goiter. Before surgery I was on 50 mcg Levi. I was so hyper I could almost walk across ceilings. Can you have Graves' disease after thyroidectomy. Having horrible itchy skin, ear eczema and hyperpigmentation all over my skin. Damn Drs only want to run tsh. I tremor all the time and my legs are so weak. They take my Levi up and my tah goes low. Please help. Don't know where to turn. Graves on my family but no doctor will listen.
Graves Disease is never cured BUT it is managed better without a thyroid or after RAI.
You still have the antibodies but no thyroid for it to attack.
As for meds, you swap one lot for another.
You go from anti-thyroid meds to a T4 medication so basically you are on meds for life.
The thyroid regulates every organ in your body and if no thyroid, meds have to do the job.
Hyperthyroidism is a lot easier to manage without a thyroid.
Usually, surgery is the preferable option if someone has Graves thyroid disease (because RAI can sometimes make eye disease worse if already present). Graves Eye Disease is caused by different antibodies than the thyroid disease. They are related, but having one doesn't necessarily mean you'll get the other.
I also have Graves disease and from my understanding you are never "cured", but, once your thyroid is either dead or you have it removed you should no longer be suffering from the symptoms. Except the protruding eyes, that is the only symptom that they can't reverse. That you are going to have to live with for the rest of your life. That's why it's so important to get treated before that happens. I would say that your tiredness is from being perimenopausal.
If you don't mind. I see you posts starts out as Graves Disease and you are looking for a surgeon?
While I would have to do some checking around on this can you post the reason for the removal? - Is it for Graves disease?
My daughter was diagnosed with Graves on June 4th. She is 6. Luckily, I'm a teacher and have been able to stay at home with her the past couple of months to get this under control. I feel like our lives have been turned upside down. We started out with a sore throat and a diagnosis from an ENT of Thyroiditis......We ended up seeing a pediatric endocrinologist in an emergency visit because of her heart rate. We've been on methimazole since.
My daughter had a total thyroidectomy for Graves Disease when she was 14. She is now 22 years old and she takes 120 mg of Armour Thyroid. I am concerned with her lab work and what an opinion would be if she is getting too much or not enough Armour Thyroid. Her doctor seems to think it is ok. Her most recent lab work shows:
Free T3 4.3
TSH 0.
I have been going to an Endocrinologist for almost 1 year. He has done several ultrasounds showing that I have 5 tumors on my thyroid. I have a biopsy which showed they were benign. I recently had another ultrasound which showed one of the tumors had shrunk but another one appeared.
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
I am a 33 yr old female who was diagnosed with Graves disease almost 2 yrs ago. At this point it is pretty much out of control and I am having problems getting into see an Endo. My TSH is .009, T3 1329 and T4 3.94. I have had a numerous amount of symptoms develop over the last few months the one that concerns me the most is a constant feeling of someone chocking me. Although my levels are extremely high I have still managed to gain 25lbs over the past year and a half.
ve been on carbimozole for hyperthyroidism and Graves Disease for about 6 years now and last summer my thyroid became underactive, making me very depressed, lathargic and I put on a lot of weight in very short period of time even though I was exercising more. I'm scared that the same will happen after surgery, and feel like I won't be able to cope if it happens again. I suffer from BDD and the idea of putting on weight is a real issue for me.
I had a total thyroidectomy and the labs came back and we thought it was Graves but the labs said something like DeQuaine's but I google and cannot find it. I was also kind of out of it when my surgeon told me this. I had to stay in the hospital longer due to my calcium levels and forgot to ask him again and write it down. Does that ring a bell?
Yes, TT stands for total thyroidectomy...surgical removal of the entire thyroid gland.
Do you know whay you have nodules? Do you have Hashimoto's thyroiditis or Graves' disease. Depending on the cause of the nodules, iodine supplements can make the condition worse. Were you advised by your doctor to take this?
Are you taking any thyroid meds?
My daughter was diagnosed with Graves disease at 15. At first her whole face was swollen and her eyes were bulging. It took 2 months to diagnose her. She is on Tapezole, which brought the T3 and T4 to about normal. Her eyes are still bulging and she is in pain from severe dry eyes. Now they want to take out her Thyroid. Then do eye surgery. Does anyone know if a thyroidectomy would help the bulging eyes? Please help!
I have been diagnosed with both graves and hashimotos and my endo says we will treat which ever disease is "winning" at the moment....hashi is winning right now but graves is still doing a number on my eyes and skin. I am seriously considering thyroidectomy. Any thoughts?
Recommended
