could anyone give me ideas as to where or who i would contact to get some patient assistance for acute hep c treatment? I am not working, cannot wait on s.s. disability. I try to do some construction work when available, but it is really rough.
Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count.
This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.
Is it possible that after taking gleevec for only two weeks WBC droped from 36.7 to 7? All other blood counts are also came back to normal range. Could doctor make mistake in diagnosis of CML? Maybe I should get seg second opinion?
I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.
After two weeks on 400mlg gleevec my WBC droped from 36.5 to 7.1. My doctor told to come for additional test in two weeks. Now my WBC is 1.3 and absolute neutrophils count is 0.04. I was told to stay home on antibiotics. How long it may take for my counts to clime back to safe range. And of course, I'm off gleevec right now. Does it seem that dose of 400mlg is too high for me.
Am on Gleevec 400mg, now having problems with blisters on the palm. What can I do about it?
I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.
I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.
You might find he starts to be able to tolerate the pill. Gleevec is first choice for treating CML, and if he is doing good in every other way then encourage him that he is doing great.
I hope this helps you. I would be glad to help you with any other questions.
This is my understanding of the patient assistance programs for Incivek. The list price, which no patient will have to end up paying, is $49,200 for 12 weeks. HOWEVER, the patient assistance programs, are more than generous. Typical Co-pay for the three prescriptions that will be needed will be between $50 and $250 each.
Without the patient assistance program I probably wouldn't be SVR - when my insurance refused to let me extend, they coudln't have made it easier and didn't even make me feel bad about needing them to help.
I am also on Copaxone - can I suggest that you talk with them again at Shared Solutions and ask what criteria they use for patient assistance? They fund for people without insurance or underinsured through NORD - national organization of rare disease. Unfortunately it sometimes takes more than one phone call to connect with the right people at SS to get help.
If you can't work it out with SS you might talk to your neurologist about other options.
If in need, call the Schering-Plough Patient Assistance Program at 1-800-521-7157 and/or the Roche Patient Assistance Program at 1-877-757-6243.
November 10, 2008
http://www.hepatitis-central.com/mt/archives/2008/11/choosing_and_af.
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