I too do not have prostate cancer but, was diagnosed with polycythemia vera and am taking Hydroxyurea as a long lifetime treatment. I also have a significant amount of hairloss. Is there anything we can do to save our hair? I also would like to impose the question of prognosis for polycythemia vera. None of the doctors are willing to state or predict life expectancy, I only know what I've read on the internet. Thank you for answering our questions.
Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count.
This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.
I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.
t want to see me, that fever was not from gleevec, and that I needed to monitor myself by myself by simply taken ibuprofen. This is what I did all last week and only this Monday he did a blood work.
For now, what can I do to help my body to build my immune system back? Any vitamins? I'll appriciate any advice.
I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.
I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.
Hi,
Thanks for your advise!
I forgot to mention background of the disease.
He was diagnosed with "Essential thrombocytosis" 4 years back and was prescribed hydroxyurea (also known as hydroxycarbamide) for reduction of the platelet count to the normal range.
Frequency of hydroxyurea (500 mg) usage - one tablet on one day and two tablet on next day.
Doctor said he got above transferred onto Leukemia.
About his health condition - he had no complications from Diabetes.
In the treatment of Longitudinal Melanonychia the hyperpigmentation of the skin and nails induced by medication such as doxorubicin, cyclophosphamide and hydroxyurea can be reversed back to normal. Treatment may depend on the underlying cause. Longitudinal Melanonychia needs to be evaluated by biopsy to corroborate if it is benign finding rather than a sign of subungual melanoma.
Take care and keep us posted.
i get my heart checked every 2 weeks now and i am fine with the qt thing. i take the chemo pill called gleevec and have to force myself to eat so i dont get sick when i take it. how long will these withdrawel problems go on? i have xanax to take (1mg) but dont work to good. i should would appreciate any advice from any one on how to deal with these issues, family dr says its anxiety but i think its the withdrawels from the high dose of elavil.
It is safe with tolerable side effects which include edema, skin rash, fatigue, and myelosuppression. Other treatment options include hydroxyurea, interferon alpha, and stem cell transplantation.
The advanced phase and the blastic phase can be worrisome, but can still be treated.
At this point, it is very important that she regularly follows-up with her hematologist. There will be series of blood examinations to check how she responds to the medicine she is taking.
Good luck.
I am a Leukemia Survivor also. What type of Leukemia did you have, and what was your treatment. I have CML, and have achieved a major molecular response through a oral chemo drug called Gleevec.
It does not sound like these patches have anything to do with the Leukemia. I would see a Dermatologist to have them evaluated. I hope that helps you a little bit.
I should mention that I have CML but it has been in remission for the last two years and I am no longer taking Gleevec.
I am scheduled to be looked at by a group that kills the nerve endings in the heart that causes AF but there is an 18 month waiting period.
My question is how many times can I be cardioverted and what is the downside of having it so often?
I have a oncologist who treats my blood disease and he told me that the itching is a symptom of this disease and we have tried so many medication for this itching and one of them is Hydroxyurea . I am taking it .It helps some but you have to be careful with it and under doctor's care to check your blood cells because it can lower your blood cells. I go for blood work every month. I am getting panic attacks and get very upset when I know I have to take a shower and cry sometimes.
I got a letter today saying the new born screening she had says there is a sickle cell traits in her.myself and the father are both AA!Thou am 35years.can My age affect mybaby sickle cell traits???Just been feeling so sad ever since I heard it.been making calls to the sickle cell organization listed in the letter but they promised to get back at me.have read stuffs online!Just not happy.my 2years old toddler never had this.Thou she has had another test which result will be out in a week time.
I was diagnosed w/CMML in 2009 and did 6mos of Vidaza. Monocyte levels keep rising and are now at 28%. 54 yr old male. My drs. just keep telling me to watch and wait, but I don't feel comfortable doing that, especially since I am fighting a recurrent staph infection that keeps returning every month.
She then went to Mayo and the doctor there told her she did not have Leukemia based on her blood work there, but she had been overdosed on Hydrea during the summer to the point her wbc was 3 and was only recovered to 11 by the time of her appt in Sept. Now her wbc is 58 and her hometown doctor is putting her back on Hydrea. Her family is concerned she is going to take a serious chemo drug when there is still a question of what she has. Could it be an infection that isn't showing up?
Recommended
