I'm sorry your daughter is going through this. My 3 year old son was diagnosed late this summer with EE. He's been on flovent since August, and it's really working towards getting him to eat and gain weight. However it's turned him into a very aggressive, very mean little boy. Does anyone know of any other medicine out there that won't cause such a reaction?
What medicines have you or your children been on for this? My 3 year old son was just diagnosed with EE this past August, and he's been using Flovent 1 puff twice a day since then. The last month or two I've noticed that he has been extremely aggressive, agitated, and just plain mean and disrespectful. I am 100% sure it is due to the Flovent. Is there an alternative I should be asking for? Will all of the EE medicines give his just such a reaction since they are all going to be steroids?
I have had a endoscopy and was told I have a fairly serious case of this disease, which is why I have swallowing difficulties and I given a prescription for flovent to treat it.
However, I now have a $4000 deductible on my health insurance, and can no longer afford to spend $200 or $250 for the flovent inhaler.
Canadian versions of the inhaler are slightly cheaper, but not by much.
I went to an allergist who is having me tested for food allergies and suggested I take h1 as well as h2 antihistamines. He suggested I might have Eosinophilic Esophagitis which is an inflamed esophagus due to an allergic reaction. I found this website if you want to read up on it: http://ezinearticles.com/?What-is-Eosinophilic-Esophagitis?&id=2289454. It sure seems to fit the description of my symptoms.
I am trying to find answers to resistant h.pylori, eosinophilic esophagitis, and severe acid reflux. Antibiotics, steriods, prevacid, and several other medications were used to no avail. The esophogal lining is severely decreased...
Vomiting and stomach upset are prevalent.
I'm looking for dos and donts for these conditions and any successful treatments.
Thank you!
Listed right under causes on this website
http://www.medicinenet.com/eosinophilic_esophagitis/article.htm#what_is_and_what_causes_eosinophilic_esophagitis
I developed a breathing issue in May 13', by July 13' I had an endoscopy performed and they found signs of Eosinophilic Esophagitis, , , finally by Nov 13' I realized that I had not been tested for Herpes back in May when all of it started, and found out I was Herpes + (both 1 and 2). To this day I have NEVER had an outbreak.
So, two years ago I went to see a GI doctor because I was having severe stomach pain. He decided to do an endoscopy to see what was going on and discovered that I had GERD and eosinophilic esophagitis. I was then put on Protonix, 40mg once a day, and scoped a year later.
The scope last year revealed that I had Barrett's Esophagus as-well as eosinophilic esophagitis and also Schatzki Rings. So, I was raised to 40mg twice a day on the Protonix.
Three years ago I was diagnosed with LPR after coughing for a year. I am coughing again now since before Christmas, so had another endoscopy. The biopsies showed that my esophagus is lined with eosinophils. The doctor didn't think it was eosinophilic esophagitis because my main symptom is coughing. I have had choking issues but it is not a constant thing. I have had eosinophilc pneumonia and also am hypothyroid and have interstitial cystitis.
Hello,
I cannot think of any condition associoated with both urticaria and difficulty swallowing except eosinophilic esophagitis. Symptoms of EE can range from severe heartburn, difficulty swallowing, food impaction in the esophagus, nausea, vomiting and weight loss to urticarial rash.Mostly, patients with eosinophilic esophagitis suffer from food allergies also.
Diagnosis is obtained during an upper GI endoscopy where biopsies are taken of the esophagus.
Recently I had an endoscopy done and the biopsy showed that I have Eosinophilic Esophagitis. I am slightly hopeful that this may be the cause to my chest pains, excess gas, and overall feeling of ******-ness.
My gastroenterologist referred me to an allergist and I have an appointment with them on Friday. However I'm wondering if there's any other type of Dr.
t show anything abnormal with my throat, but the biopsies showed that I had eosinophilic esophagitis. Not sure if this is relating, but worth mentioning.
Tried the anxiety, antidepressants, and sleeping pills, and nothing has even been able to touch this problem. I mean they don't even phase it. It as not improved one inch this entire 20 months.
I've had on-and-off mild nausea, including two episodes of vomitting. To check for possible gallbladder problems I had an abdominal ultrasound. The report showed a normal gallbladder but "inhomogeneous pancreas". The doctor has ordered amylase, lipase, and liver function blood work. I have been on proton pump inhibitors for years for GERD and eosiniphilic esophagitis. It's weeks before I can see the gastroenterologist.
I have Eosinophilic esophagitis, Progressive Peripheral neuropathy, Monoclonal gammopathy of undetermined significance and now low Oxygen saturation. Any thoughts for the root cause?
I too have been suffering for about 17 years for what I thought and still am thinking is acid reflux. I did fine for many years taking zantac and or prilosec. I lost 55 lbs and everything went away even though I stayed on zantac because I could feel some shortness of breath if I didn't take it. I gained about 30 lbs back and this past summer all the meds stopped working. My biggest problem with my Gerd from the start is that I feel like my food gets stuck in my throat or down in my chest.
Hi, haven't you been checked out for Eosinophilic Esophagitis? That won't show up on any scan, they have to do a biopsy by taking small snips with an endoscope. It's caused by certain immune cells running amok: eosinophils and mast cells. It's an 'emerging disease', i.e. it's known only fairly recently.
See if this sounds like you:
https://rarediseases.org/rare-diseases/eosinophilic-esophagitis/
...not only the symptoms but also it being mistaken for GERD.
Can herpes esophagitis be mistaken for eosinophilic esophagitis? The eosinophils were only elevated in blood back when I first contracted virus in May, and biopsy of esophagus tissue was high for eosinophils. However here we are in December and the back of my throat is still swollen and inflamed as ever. If it is herpes esophagitis, I'll never be able to cure it correct?
I have had a endoscopy and was told I have a fairly serious case of this disease, which is why I have swallowing difficulties and I given a prescription for flovent to treat it.
However, I now have a $4000 deductible on my health insurance, and can no longer afford to spend $200 or $250 for the flovent inhaler.
Canadian versions of the inhaler are slightly cheaper, but not by much.
I notice that the ingredient that in Flonase is the same (fluticasone propionate) as is found in Flovent..
The stomach emptying study came back regular, and the endoscopies always come back with eosinophilic esophagitis. The first diagnosis put me on Aciphex for almost 2 years. After, I was able to stop taking the medicine and had no issues for 3-4 years. Then symptoms started to return. This time, I was put on Nexium (twice a day, before breakfast and dinner). The nexium seemed to help, but really reduced my appetite.
He has, Hypogammaglobulenmia , Eosinophilic Esophagitis (allergy in esophagus), Pots syndrome (heart), and in the last 6 months has debilitating knee pain and fatigue. They did a smudge test and found cells. His ALT is 146 , AST is 112. His Lymphocyte Abs is 5741. Im sick inside, I can't eat, I can't sleep, Im so scared!!! He will see Oncologist/ Hematologist on April 8th. For now we just wait. Any any any advice would be soooooooooo appreciated. Thank you.
now i had an egd procedure. throat came back good with them taking a biopsy to rule out eosinophilic esophagitis. found erythematous mucosa with no bleeding in gastric antrum. it said gastric mucosal abnormality characterized by erythema. what all does this mean?
ve had breathing issues and eosinophilic esophagitis show up since all of this started 3 years ago.
I too have been suffering for about 17 years for what I thought and still am thinking is acid reflux. I did fine for many years taking zantac and or prilosec. I lost 55 lbs and everything went away even though I stayed on zantac because I could feel some shortness of breath if I didn't take it. I gained about 30 lbs back and this past summer all the meds stopped working. My biggest problem with my Gerd from the start is that I feel like my food gets stuck in my throat or down in my chest.
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