My little 2 week old child was diagnosed with Wolff-Parkinson-White syndrome after presenting with SVT at 275 bpm. It was brought under control with digoxin and propranolol, but when they realized it was WPW, they took her off the digoxin. She has had a couple of episodes since we left the hospital, but we were able to stop them with an ice bag on the face.
Has anyone else dealt with WPW in an infant? Got any observations or suggestions?
I have lost nearly 10 pounds over the past month and often feel fatigued. I went to the Cardiologist for an echo and halter monitor. He told me that my Bicuspid Av is not leaking but my Ejection Fraction was around 48% He told me that he could give me medication for this but it would slow my heart rate... and with my halter monitor my slowest bpm was 38 at 3AM (while sleeping) so he doesn't want to slow it down more.
Does anyone have experience with pediatric ablation? My daughter has SVT and they are recommending ablation. I'm terrified about it. Just looking for some stories about success or no success.
Hi I'm 30 and was dxd with wpw in Jan 08 after being rushed to the hospital with a hr of 314. Very scared.......the docs told me that my best bet was to have ablation so I had a specialist come from Mass General in Boston to perform the ablation. The docs cleared me to return to my normal lifestyle, working out etc. Since then I have had continuous palpitations and just last week was once again rushed to the hospital with hr in the 200's. Now they tell me I have A fib.
A year and half ago my oldest son ( 6 at the time) was diagnosed with WPW Syndrome and SVT. During one of his "episodes" ( I don't know what else to call them) his heart monitor read his heart rate at 278 beats per minute. He was originally put on atenolol and after 11 months we noticed that his behavior had gotten much worse (even violent at times). His Ped. Cardiologist then put him on Sotalol. He takes a smaller dosages in the morning and a higher one at night.
My husband and I would like to start trying for a baby but i'm on Betablockers for a tachycardia that no-one can find a reason for! i'm only on 1.25mg of bisoprolol, and would like to know what risks there are. I'm currently on a waiting list to see cardiology and find out what their opinion is but would like a bit of advice.
Hello - I'm 30 years old, and I was diagnosed with WPW back in college after a few episodes of rapid heartbeats. I've never taken any medication for the WPW, and I haven't yet had an ablation procedure. I very rarely have symptoms of WPW - my last episode of rapid beats was about five years ago.
I recently visited a cardiologist to ask about WPW because my husband and I are thinking about having a baby, and I wasn't sure how pregnancy might affect someone with WPW.
Hi,
I was recently diagnosed with WPW, and have only had symptoms for the past 2 months. I've also had sudden pains in my wrists, elbows, shoulders and legs, and really bad pins and needles in my feet. On the right side more than the left.
Not sure if this is related to the WPW at all, but it's only been happening for the past week or so, while I've had almost constant palpitations.
I took Digoxin for a number of years in reponse to an atrial fibrillation event. My new physician did not feel I needed to be on it any longer. What are the side effects of discontinuing this medication? I have been off it for several months and some odd changes in my body.
I have both of these diseases, Mytral Valvue Prolance and WPW. The problem is that I am having parpitation episodes that bring my heart to 156-170 speed; they are not that frequent. My doctor suggests Catheter Ablation. I am a little nervous and would like to know how one (WPW) can be treated without treating or affecting the other (Mytral Valvue Prolance). Are my palpitation related to the second one as well? I am 34 years old and don't know if I should wait before that operation.
Hi Annbez,
I just googled WPW and it's my worst nightmare that something that seems so common like PVCs can actually be something like WPW and cause sudden death. According to wikipedia, "the incidence of WPW syndrome is between 0.9 and 3% of the general population". Do you have experience with someone that has WPW? Why would you think it was WPW or suggest that i ask about it? Back in 2002, I had a stress test done along with echocardio, wore a monitor for 24 hours etc.
The Heart Rhythm Society did a few randomized trials to assess the efficacy of calcium channel blockers, beta-blockers and digoxin in SVT. A comparison of verapamil, propranolol and digoxin showed equivalent efficacy in a small group of patients. However, in general calcium channel blockers and beta-blockers are preferred to digoxin. Digoxin has been around for a long time! I used Digoxin over 50 years ago for my PSVT, and my recollection was that it did little to prevent episodes.
I have some Afib and some PAC's, my doc said Digoxin and Toprol do the same thing, I chose the Digoxin.
Does anyone take the Digoxin for these conditions and it works? Which do you think is better?
I've been diagnosed with WPW. 2 days ago I had a cathater Ablation and it went well the Dr said it was successful my ECG's where fine till I went to the toilet and I noticed an extra heart beat . They then put me on a portable monitor and they saw it again. The Dr said he saw it in the first ECG and in the operation but was doing the Ablation for the WPW since it was the Dangerous part .
I have probably lost my libido being a patient of wpw syndrome. Second, I take concore 2.5 mg but I still feel the pain. And the strange thing is that when I am stressed or pressured the chest pain increases and I can hardly speak at that moment. So, I would be so grateful if you just answer me these two questions.
s my completely unprofessional opinion on what I know about digoxin, and I took it for a number of years as a kid for SVT. It's an old drug that's been used literally for centuries. I took it back in 1957. It's inherently toxic and if that fact was not enough to curtail its use, there's evidence that suggests the drug, even at dosages normally considered safe, can cause visual problems, serious skin rashes, and may significantly aggravate asthma.
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