I have been diagnosed with orbital myositis twice, ten years apart, once at Columbia Prespeterian in NYC (while nine months pregnant) and once at Wills Eye Hospital in Philadelphia
. Both times, after exhaustive testing, the results were that this is an auto immune disease that is "idiopathis", cause unknown.
I know that this is of little comfort, but I have not had a reoccurance since 1993. While 1980 an 1993 were very bad experiences, I cannot complain about the last fifteen years.