From what you have posted, at this point there is possibly only a suspicion that there might be CLL. The most important thing for now is to know the "absolute number of lymphocytes". On the CBC report, this would be a line that says something like:
- lymphocytes abs
or
- lymphs #
(The line that says % doesn't matter.)
Usually, a doctor wants to see a high absolute number of lymphocytes for 3 months before becoming too concerned.
It has been 15 mos since I was diagnosed w/CLL. In that time I have experienced occassional left arm tremors, for example, if I hold my cell phone in my left hand to dial or text I experience a tremor.
In addition, I have had attacks of cellitutis, is that related to the CLL??
Had silver nitrate treatment x 2. Now am on 1% Cyclosporin, which burns like acid. Nothing has even begun to work.He said the next step was to have ocular surgery where the mast cells are literally scraped off, but he said it's not always successful.
I continue to have extreme photophobia and feel like I have gravel under my eye lids. Please advise as to treatment, as am one miserable and discouraged woman.
My husban is two years out on his bone marrow transplant, he had stage 4 non hodgins lymphoma, they call it cll. The Dr said he is doing good in remission , but, Gary is TIRED all the time, his back itches , he is loosing weight because he isn't 'hungry, he almost passes out when he exert himself. He has a caugh too. he is getting the night sweats again sometimes not all the time. We don't know what to think ...when the Dr. say yes your fine...your blood work it good. help please...
There are two other drops like Restasis, xiidra which patients do not like and is very expensive and Cequa which is same medicine as restasis but stronger concentration. Ask you ophthalmologist about Restasis (cyclosporin) think it just became available as generic.
Question concerns Merkel Cell Carcinoma and CLL. Patient is 63 yo male, dx'd with prostate cancer '95 and treated with seeds. PCa metastatic to bone in '99. PCa controlled with double dose Casodex. Patient dx'd with CLL '99-no treatment given. WBC mostly 35-45K asymptomatic except slow wound healing. Patient dx'd with Merkel Cell Carcinoma '07. Merkel cell treated unsuccessfully with chemo and successfully with radiation.
s team studied blood samples provided by 45 CLL patients up to six years before they knew their CLL diagnosis. The researchers ran two different tests on the blood samples, looking for monoclonal B cells.
All but one of the patients had monoclonal B cells in their pre-CLL blood samples, and 41 out of 45 had monoclonal B cells show up on both blood tests -- so monoclonal B cells could be a marker of future CLL."
Note that is about CLL, not AML or CML.
My father has had CLL for many years and now my doctor is doing final blood test to confirm the disease and a CAT Scan. Since my father has this and now I do (I am 59 yrs) does this mean CLL is hereditary.
I was sort of taken by surprise, I thought my white cell count was off because I was under stress with a husband who has terminal bladder cancer and I have been tired and stressed.
Does this disease always progress slowly or does it depend on each person?
Hi, unfortunately with smudge cells and your other signs, the first thing to look into is CLL and other B-cell blood cancers. The high calcium suggests Multiple Myeloma, but then CLL can also cause high calcium.
It's important to remember that CLL usually has a very good survival rate.
You don't mention easy bruising, so maybe the marrow is still okay.
If your WBC and your number of smudge cells hasn't been rising, that should probably be a good sign.
Good luck to you.
I was just diagnosed with CLL atypical. I am a 48 yr old, white female. I have heard that CLL atypical has a tendency to progress quicker or be more aggressive. I am in stage 1 (on 0-4 scale). I would appreciate any information that anyone can give.
she was taking cyclosporin dosage of 100mg bd, which was increased after 10 days(January 4, 2010) to 150/100mg bid . her SGOT/SGPT level started rising from December 28, 2009 they started fluctuating till Feb 8,2010. After Feb the SGPT levels shoot up and it was highest of 218/398 on March 22, 2010. it should be also kept in mind that cyclosporin also have a tendency to effect the liver and increase in LFT levels.
I was diagnosed with CLL at 48 and am now 53. Have been in watch and wait mode these years....and my counts have been growing slowly and no concerns so far. At my last lab work though, my lymphocytes jumped from 74% of my wbc to 85%....a significant jump from all these years of creeping growth. I'm quite concerned.....I am not currently sick or fighting any infections......am I now at the point where I can expect things to start going downhill?
s cauterized and have had silver nitrate brushed across the back of both eyes. Now am taking 1% cyclosporin, which burns like fire for about a minute.
Question - has anyone had success in treating this miserable condition? I am so discouraged as feel the photophobia and gritty feeling in my eyes is never going to go away.
Any thoughts/suggestions would be greatly appreciated.
I am a Vietnam veteran and was diagnosed with CLL in 1994 (There has already been an Agent Orange/CLL connection made). I began suffering various skin cancers a couple of years before and have been through many mohs surgeries. My oncologists agrees that CLL and Skin cancers are most probably related to my exposure to Agent Orange during my tour in Vietnam.
FYI! I was also diagnosed with Crohns disease in 1985 and suffered a severe bout of Shingles (hospitalized) in 1999.
I was diagnosed with CLL about five years ago and have had no treatment yet. My most recent blood work showed the following "high" levels:
WBC - 74.7
RBC - 6.13
HGB - 16.6
HCT - 52.1
RDW - 20.4
Lymph% - 86.1
Gran # - 9.0
Lymph # - 64.3
Baso # - .5
The one "low" count was Gran % at 12.0
I have no idea what any of this means. My hematologist tells me that we're still in a "wait and watch" stage, as I get more and more fatigued and am constantly sweating.
At what point do Doctors start treating CLL,three months ago my wcc was 23.0 and I am due to have another blood test. What would be considered a high escalation rate over the three month period.
I am a 50 year old woman with CLL, diabetes and COPD., My CLL is considered indolent.Stage 1-2 . Over the last 5 months I have steadily developed increased pain and stiffness symetricly in my hips and elbows. Sometimes in my hands too. It has become debilitating. My RA level has come back very, very high. and I'm now on painkillers daily. Is this a sign my CLL is transforming into something more aggressive? Or a new thing ?
My ophthalmologist recently prescribed restasis for dry eyes. I read that cyclosporin can causes cancer. Is this true? Are these drops safe?
I'm stage 0 CLL with a wbc of 10.7. I have been dealing with new symptoms lately. Within the last 3 weeks my thyroid took a dive down to 5.5 TSH. I have also developed dry eye. A recent ANA test level was 1:1280, which is very high according to my internist. I saw a Rheumatologist who said its not lupus come back in six months. However I'm feeling very poorly emotionally and physically. Low, low energy, a bit off balance, slight dizziness and disorientation, and muscle aches.
Recommended
