betaseron study

I have been on Betaseron since 1995. I have not had an attack since I started using the Betaseron. 3 1/2 year ago I slipped on the stairs and landed hard on my tailbone. A pain shot up through my back and gave me a terrible headache. Over the next few days, my leg started going numb. Went to the doctor and he sent me for x-rays and gave me muscle relaxants. Nothing on the x-ray. Sent me to my neurologist. He examined me and said it was MS and had me take three courses of solumedrol.

She also mentioned a double dose study that was performed where patients were given doses of Betaseron on the same day and no serious adverse effects were reported. I'm assuming it was 0.6 mg/2 mL. She also reminded me that the 0.3 mg/1 mL dose was pretty small to begin to with and not to worry. Other than that, I was told to skip the next day and resume my schedule. And with that, the universe was restored to proper order!

//pagingdrgupta.blogs.cnn.com/2010/03/29/scientists-find-there-may-be-two-forms-of-multiple-sclerosis/?

Copaxone is the weakest and he did not recommend it for me. Betaseron, Rebif and Avonex are essentially the same drug, Intefereon beta, administered in different doses. My Neuro is a big believer in Neutralizing antibodies. Avonex NAB rate is around 5% Rebif around 10-15% Betaseron 25-30% NABs can bind to the active side of the interferon molecule rendering it useless. So naturally (if you believe in NABs) you would likely pick the one with the lowest NABs.

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

Also, the type of interferon used is different than that in Betaseron. Betaseron is interferon beta-1b NOT interferon beta 2-b. These little points are important. Also, in discussing male sperm counts and motility one must consider many, many factors - not just the most notable med the person is on. A man's sperm count and activity may be affected by things we don't even think about like temperature, alcohol, depression, meds like anti-depressants or antihypertensives.

As per Lulu's suggestion, I am posting this recent press release in a new post so it isn't missed. Multiple Sclerosis - FTY720 (Fingolimod) Trial Results Article Date: 15 Dec 2008 - 0:00 PST www. medicalnewstoday .com/articles/132947. php "FTY720 (fingolimod), an experimental oral drug for relapsing MS is more effective than current treatments according to new research reported today. The trial, called TRANSFORMS, is the first of three studies of FTY720 to report.

I just wrote to the study coordinator for a study being held in Portland, Or. They are still looking for test subjects and a few of you might be interested. I could do the low fat part, but the vegan diet would take me out of the running. I have to have my butter and ice cream. The contact person for this is listed on the NMSS website or if you want more info drop me a PM and I'll send you the contact information.

I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.

My Neuro wants me to switch from Rebif to Betaseron. I have been taking Rebif since March 09 and have had to do one round of Solu Medrol in May and will find out tomorrow if I have to do another. I also have pretty bad injection site reactions which is why the Neuro wants the switch. I guess Rebif has acid in the injection and it makes the site reactions worse? My question is, I am under the impression that Betaseron is not pre mixed and also that there is not an auto injector?

could help with a disability claim. I have a betaseron kit and a rebif kit, which I was urged to research. I'll follow up in December, at which time we will discuss my options. He highly recommends that I begin treatment and explained that today's treatment will be my hope ten years from now. Opinions, experiences, advice, wisdom . . . all coveted. Please share.

I just got a call from my neuro's office. They are wanting me to participate in a study they are doing and I would love to know what you all think. She said they are doing a study on patients taking copaxone, rebif and betaseron. I would need to go to their office and sign a consent. The they send me to a dermatologist to have a biopsy done of the injection site (same day as injection). And that is all I have to do and they will pay me for it.

She told me that it was once thought that persons with mild MS disease, were all placed on Copaxone. She said that a study was done, paid for by the makers of Rebif, to determine if Rebif or Avonex were better at treating MS than Copaxone. At the end of this trial, it was determined that Copaxone was just as effective as preventing more lesions and brain volume loss, as the Interferons, Rebif and Avonex. (Please note that this is what I was told by my Neuro.

The third study by Ebers et al (in press) very nicely complements the other two studies in that it compares the current clinical outcomes of the persons who got betaseron during the original betaseron trial done 16 years ago (181 subjects) with the persons who were on placebo in the same trial (79 subjects). The basic finding was “No differences in outcome between original randomization groups could be discerned using standard disability measures”.

I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ??????????? I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???

The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me. My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.

He did warn me about the miscarage risk. The last visit, he said to get off Betaseron 1 month before ttc. The BetaPlus nurse said give it two months. My husband and I discussed this. The current plan is to get off the Betaseron at the end of next week. That would be 2 wks in to the last pack of bc pills. We are planning to use alternate methods of bc for the next cycle. That would put me off of Betaseron 8 wks prior to the hoped for conception, and off the bc pills for 6 wks.

While we're all panicking about Betaseron (at least those of us who take Betaseron) a new study has come out showing that patients with MS who have less stress, or who manage their stress effectively, have fewer lesions. I'm not sure if I can link to the article, as it's a competitor with this website, but the article is on WebMD, and it's from Neurology (I wonder if the tags will work!

I saw on your other post the mention that they want you to take Rebif instead. Be sure that your neuro is fine with that - they are both interferons and work the same way.

Pretty much said I wouldnt be sitting there looking like this if I had been on meds (not sure that that is entirley true only a 30% chance in my opinion) She gave me the option of another med covered by my health insurance which is Betaseron. Gave me the CD to watch and sent RX to pharmacy. Of course I come home and read all teh possible side effects and its making me want to do nothing now. I am so med paranoid (and Im a Nurse for Pete's sake!

Hard to answer your question without more information. Why do you have only those four choices? Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below: http://www.nationalmssociety.

So the doc tells me I don't have a UTI. That's the good news. The bad news is that I'm still experiencing muscle spasms and spasticity on Betaseron. I thought this would go away when the fever resolved, but it hasn't. Who else on here is taking Betaseron (or some sort of interferon?) And if so, did you have problems with muscle stiffness, and did it resolve?

The specialist recommended Rebif or Betaseron (sp?). He also mentioned a clinical trial. I had been interrested in the trial med, but I was beginning to get a little nervous. My local nero said today that he did not think that the trial was a good idea. I am inclined to agree. Anyway I am supoed to start Beta. when the drug company contacts my insurance. If anyone else is interrested in the trial, you can follow the link below. It does not use a plecibo.

Betaseron study

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