betaseron long term

The CRABs have lots of data on there effectiveness and safety long term. I'm not sure the same can be said of Gilenya. I'm also not sure how well it will protect you around a child. Kids are little disease factories and they get infections that adults should never be near (like Haemophilus influenzae. ) I'm not sure WBC sequestration is good thing is that environment. Quix might have a comment. I think I'd be cautious.

We are committed to providing new approaches to MS care, and the FDA approval of Extavia marks the beginning of our long-term commitment to the MS community in the US." Extavia will be available to patients in the US this fall. Along with their prescription for Extavia, patients will be given access to a support program including a nurse helpline, one-on-one injection training and reimbursement support services. Extavia patients will have an autoinjector available to them from Novartis.

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me. My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.

Hi Thenea I have been on betaferon for 3 1/2 years, I got "quarter" size raised red areas on my arms and thighs, these would last for many months, never any problems with my buttocks or stomach. I eventually stopped injecting my arms because they were such a mess. I have found it difficult to inject my buttocks recently as my hand shakes when I reach round to do the shot.

I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ??????????? I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???

At the end of the day it very much a personal choice and as some others have indicated Gilenya is a new drug so the long term potential side effects are not yet known. However it would not have been licensed unless it has passed rigorous testing. I am currently on a drug trial in Uk for a similar oral drug to Gilenya and will be in a better position to comment after this week when I go into the extension trial (after 5 months on either placebo or drug) as I will know I am on the drug then.

I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.

I am going to be starting Betaseron soon. I have read up on it quite a bit, but am curious to know if any of you are currently taking this, have been on it, etc... and if so, what was it like for you? My biggest concern about this one is that everything I read warns of extreme depression. That is already a daily struggle for me, pretty bad. Sure hope I don't get worse with this medication. I hate getting in those ruts of depression. For me, it can last for months on end...

Long-term follow-up of benign multiple sclerosis in Hordaland County, Western Norway Abstract Objective To study the frequency of benign multiple sclerosis (MS) after 20 years disease duration and identify early clinical and demographic prognostic factors of a benign course. Methods A population-based cohort including all 230 MS patients with clinical disease onset during 1976–1986 in Hordaland County, Western Norway was followed up with clinical examination in 1995 and 2003.

I started on betaseron (betaferon here in UK) 2 weeks ago, so have so far injected 7 times. On nearly all the injection sites I have a slightly raised red area, approx 1 1/2 - 2 centimetres in diameter, not at all itchy or bothersome in any way. Where I did the first 2 injections I now only have very small marks, more like tiny bruises. I suppose I am looking for someone to tell me it is ok to ignore this. I don't want to go to the doc or MS nurse and risk the drug being stopped.

I too read in an article or publication on APS and MS. I've read that MS patients can have a low to medium positive result in the anticardiolipin IgG or IgM who are on beta-interferons.. It also stated a significant fraction of patients with true MS may have positive serology for IgG or IgM anticardiolipin antibody. My research has stated via Neurology books (googled them and you can get snippets of pages) that there are people with MS who have positive serology for IgG or M.

If you are among the 50% of MS patients who have chronic Mycoplasma infections, this can be treated with long-term antibiotics (doxycycline)

I feel that talking to someone that has personal experience with the drugs, is the best way to really learn about the side-effects and their efficacy-long term. Of course, everyone reacts to different drugs in different ways and to varying degrees. Lump the information together, to get a general idea of how they may work for you. For those of you on Interferons, make sure that your doctor is doing follow up blood work, at least every 6 months to check how your liver is handling the drug.

I had physical symptoms that sound similar to yours!!! I ended up with a hole in my septum but no other long term effects. I would try not to worry too much until you see the ENT! Its great that you have stopped for a month now! Have your physical symptoms gotten any better now that you arent using? Stay off of it now that you have a month!!! Its a dangerous drug that psychologically just wants to keep pilling you back in!! Keep posting and let us know how you are getting on!!!

myself to get up? Is this in my head, or is it possible there are long term effects to pain meds and suboxone use? Could it just be me? Has anyone else felt this?

Betaseron long term

Common Questions and Answers about Betaseron long term

betaseron