betaseron betaplus

I should really say "absentmindedly". I have a Betaseron app on my iPhone and I got an alert today to take my injection, so without even thinking or checking the calendar on the app, I immediately prepped and administered my injection. Two hours later, I got another alert because I forgot to record the injection so I looked at the calendar and realized, oops, I injected myself yesterday as well. Anybody else ever make this mistake?

He did warn me about the miscarage risk. The last visit, he said to get off Betaseron 1 month before ttc. The BetaPlus nurse said give it two months. My husband and I discussed this. The current plan is to get off the Betaseron at the end of next week. That would be 2 wks in to the last pack of bc pills. We are planning to use alternate methods of bc for the next cycle. That would put me off of Betaseron 8 wks prior to the hoped for conception, and off the bc pills for 6 wks.

I have not yet started it yet and plan to talk to my doctor tomorrow to get the scoop - I trust him implicitly and will follow his advice. By the way, BetaPlus (the service associated with Betaseron) also has options to provide the drug in the event insurance stops coverage - so that will be my plan B. Good luck to all!

I just received my letter stating that I can receive Betaseron for $50 a month. We have to pay up front on our insurance, so I filled out the form for patient assistance (upon Betaseron rep's recommendation). I found the form by googling "Betaseron Patient Assistance Program". Have you been directed to the form?

ve been on Betaseron since February. When I was without insurance, I had my PCP order a liver panel and CBC so that I could screen for potential problems with the medication, not that I'm necessarily qualified as a humble nursing student, but desperate times, desperate measures. I finally qualified for health insurance in May and booked an appointment for July which they then cancelled and tried to rebook for me at the end of October.

I would like to hear from MS patients regarding their experiences in dealing with the various manufacturing company call centers - Betaplus (Betaseron), Shared Solutions (Copaxone), Patient Services (Avonex & Tysabri), Others?. What do you like and don't like? What services are important to you vs. which are not? What are your pet peeves and how do you suggest we fix them? Thank you all!

ve been trying to figure out what to do about health insurance. My neurologist and I were discussing Betaseron and gawking at the out-of-pocket cost. Luckily he was nice enough to waive the fee for my next visit, but we haven't figured out a solution for the medication. He told me to come back when I got insurance so I could get a proper diagnosis and a prescription. Does Medicaid cover Betaseron?

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.

My Neuro wants me to switch from Rebif to Betaseron. I have been taking Rebif since March 09 and have had to do one round of Solu Medrol in May and will find out tomorrow if I have to do another. I also have pretty bad injection site reactions which is why the Neuro wants the switch. I guess Rebif has acid in the injection and it makes the site reactions worse? My question is, I am under the impression that Betaseron is not pre mixed and also that there is not an auto injector?

I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ??????????? I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???

The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me. My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.

I saw on your other post the mention that they want you to take Rebif instead. Be sure that your neuro is fine with that - they are both interferons and work the same way.

Pretty much said I wouldnt be sitting there looking like this if I had been on meds (not sure that that is entirley true only a 30% chance in my opinion) She gave me the option of another med covered by my health insurance which is Betaseron. Gave me the CD to watch and sent RX to pharmacy. Of course I come home and read all teh possible side effects and its making me want to do nothing now. I am so med paranoid (and Im a Nurse for Pete's sake!

Hard to answer your question without more information. Why do you have only those four choices? Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below: http://www.nationalmssociety.

I have been on Betaseron since 1995. I have not had an attack since I started using the Betaseron. 3 1/2 year ago I slipped on the stairs and landed hard on my tailbone. A pain shot up through my back and gave me a terrible headache. Over the next few days, my leg started going numb. Went to the doctor and he sent me for x-rays and gave me muscle relaxants. Nothing on the x-ray. Sent me to my neurologist. He examined me and said it was MS and had me take three courses of solumedrol.

So the doc tells me I don't have a UTI. That's the good news. The bad news is that I'm still experiencing muscle spasms and spasticity on Betaseron. I thought this would go away when the fever resolved, but it hasn't. Who else on here is taking Betaseron (or some sort of interferon?) And if so, did you have problems with muscle stiffness, and did it resolve?

I too read in an article or publication on APS and MS. I've read that MS patients can have a low to medium positive result in the anticardiolipin IgG or IgM who are on beta-interferons.. It also stated a significant fraction of patients with true MS may have positive serology for IgG or IgM anticardiolipin antibody. My research has stated via Neurology books (googled them and you can get snippets of pages) that there are people with MS who have positive serology for IgG or M.

I am going to be starting Betaseron soon. I have read up on it quite a bit, but am curious to know if any of you are currently taking this, have been on it, etc... and if so, what was it like for you? My biggest concern about this one is that everything I read warns of extreme depression. That is already a daily struggle for me, pretty bad. Sure hope I don't get worse with this medication. I hate getting in those ruts of depression. For me, it can last for months on end...

I started on Betaseron within a month of the diagnosis. I have symptoms from the old lesions but never had another clinical exacerbation. I stopped taking the Betaseron after 6 years (two months ago). Two more MRIs after diagnosis showed no new lesions. The second MRI (a year after diagnosis) looked like "classic M.S." (I was told by an M.S. specialist). The third MRI (last year) showed some of the lesions were smaller. Question: by whatever criteria is being used now, is this M.S.?

My Dr. wants me to start the new oral meds after the baby is born. I was on Betaseron for one year before we conceived. In that year, I had three relapses that required steroids. He said that ment that the Betaseron was not effective. One of the relapses really does not caount against the treatment because it was the 10th week of the treatment. I guess I am ok with trying the new meds. What do you all think? Would you try it? Do you think that it is a good idea?

You may want to infer on the cost of Rebif, Avonex, and Betaseron with your insurance company. You may also want to contact MS Lifelines (for Rebif), Avonex (I think its MSActiveConnect), and BetaPlus (for Betaseron), too, to see if there's something they can do to defray costs. I'd call the Shared Solutions people first. They may be able to help defray quite a bit of the cost.

He said that he believes in a higher dose - high frequency shot....either rebif or betaseron. His preference is betaseron....ultimately more meds being injected than Rebif, and much lower instances of injection site problems. The negative is slightly higher chance of antibodies being built up. The efficacy is about the same. So the MS specialist said Betaseron and we now have a box of the stuff sitting on our kitchen table. How did you end up with Rebif?

Both medicines you list have strong safety profiles and stood the test of time (although the Extavia brand is newer, but I believe is is the same as Betaseron), as have a few other medicines you don’t list. And you can always change your mind later, although you should give a drug at least a few months to work. And yes, there’s a chance it might not work out for you, but MS progression definitely won’t work out for you, and so you are right to try to attack your MS with something.

I was only on Betaseron for 4 months, and I had tried Rebif for 4 months as well. Both gave me darker, half-dollar sized blotches around my injection site, and the use of the auto-injector helped a little bit. The spots faded after a couple of weeks. In a way, it helped me remember which site I was supposed to inject next (I know, bad gallows humor)! Try Shell's advise.

Well the Beta Nurse just left. I did my first dose of Betaseron today. More anxiety over possible side effects then teh shot itself, Shots dont really bother me as I am a nurse. But still have the anxiety over side effects. Shot itself wasnt bad, not itch or redness like I had with teh copaxone. I took ibuprophen, and hopefully I dont get any flu like symptoms. Will do next shot on Saturday.

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